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kandx

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      kandx
      Participant

        Glad to hear it went well! Sounds like a good plan you have in place and I'm glad to hear you're feeling good about it, too! Take care, kelly

        kandx
        Participant

          Hi Karina, I’m sorry for all you’re going through right now – the scan stress is considerable, too. I am also recently diagnosed stage 3a in September and also feel blindsided and scared for my two young kids (4&6 years). I don’t have advice since this is new to me as well, except that I have found reading posts here very helpful and have also joined a local support group I found through my cancer/melanoma center. Talking with others who understand some of the emotions because they have experienced them and gotten through them themselves has been helpful and grounding and hopeful to me. The melanoma primer link posted above is also very helpful; I’ve discovered the field is changing rapidly and up to date info is really different from older info. Take care, kelly

          kandx
          Participant

            I'm so sorry you are in that terrible waiting place for scans/tests/information. I am a new IIIA patient myself, so I'm learning and I don't have much helpful advice to share. It sounds like you are being proactive and doing all you can to get ahead in getting your scans moved up (and I think you are also waiting for BRAF testing results?). I'd repeat advice about not researching too much until you have more information, but I can't follow that advice myself. Hopefully someone else here can chime in with more specific advice, but in the meantime, I just wanted to respond that you are being heard out here and I'm wishing you good answers soon. Do keep us posted. – Kelly

            kandx
            Participant

              Thanks for posting and good luck!

              kandx
              Participant

                Hi Mike, Hang in there… it sounds rough right now, but glad to hear you are seeking another opinion since it sounds like there may be other options – including for managing these other pains. Reading your support for others and also all the support on this board for you is heartening. Sending positive thoughts for you especially today and tomorrow. – Kelly

                kandx
                Participant

                  So happy for you! Thanks for sharing your news here! 🙂 I'm doing a happy dance with you in spirit.

                  kandx
                  Participant

                    Thank you for posting the link here this morning! I was a bit late, but I was able to tune in for some of it. I hope they share the slides or a recording of the webcast later. I'm newly diagnosed and actively learning about and considering different treatment options and the slides were helpful. -Kelly

                    kandx
                    Participant

                      Oh, sorry to hear this – that sounds awful. I hope things improve a bit for you soon. Sending you good thoughts, as well. -kelly

                      kandx
                      Participant

                        Thanks for posting this update – good to know. I was wondering the same earlier this week for my own PET/CT scheduled for tomorrow as well.

                        -Kelly

                        kandx
                        Participant

                          I'm sorry to hear this news, too, Mike. I'm newly diagnosed and have been reading posts and archives and have really found the support community here a bright spot among everything else. I appreciate your support to the group… this is my first post/comment and it's just to say there are even more people supporting you through this next blip in the plan than you know. -Kelly

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