Jill and Eric in Fl

Eric passed peacefully at 3:54am on Monday Oct 25th. We are heartbroken to say goodbye to such a wonderful father and husband. I don't think reality has quite set in and yet my heart is already in a million pieces. Prayers to all the fellow warriors, keep fighting and never give up hope.

Thank you for all the prayers and well wishes

Jill and Eric in Fl

Eric passed peacefully at 3:54am on Monday Oct 25th. We are heartbroken to say goodbye to such a wonderful father and husband. I don't think reality has quite set in and yet my heart is already in a million pieces. Prayers to all the fellow warriors, keep fighting and never give up hope.

Thank you for all the prayers and well wishes

Jill and Eric in Fl

Eric came home today, Dr Weber said that since the liver tumors showed an increase of size he was going to stop the IPI and attack it with chemo to try to get something to work. I forget the chemo name but it was 2 or3 and one was like carbo something, I am too tired to look it all up  now. I asked if this progression could just  be the IPI causing the tumors to swell before they shrink and he said yes but since there was no way to now if it is IPI or disease progression he didn't want to waste time waiting to see which it was he wanted to attack. He said if we do nothing that Eric would most likely not be here in 4 months with this type of progression so he wants to attack hard and fast, he said we will do 3 rounds of this chemo and then get scans and if we are stable or shrinking we will look into Braf/MEK but he said that trial wouldn't open for 4 weeks and he wants to hit it before then, He scared us but at least he wants to attack and not just wait and see. He said Eric had all the classic side effects to IPI and may be showing a response but only time will tell. The good news is the pain is finally under control, we are going to try to wean off the steroids and hopefully the pain won't come back. Eric feels like they actually have the pain meds dosed a little high and they said we can wean off that too a little but we are going to get on  either no steroids or a lower dose before we start messing with reducing the pain meds. Eric is in shock, feels ok, just kinda knocks the wind out of your sails. He says give him a few days and he will be back in the fight. He says he thinks he focused too much on what IPI could do and not enough on what God can do so we will take a few days, relax, refocus and then focus more on God and get back in attack mode.

Thank you for all your support, I read this website everyday and would be so lost without it, thank you for all the insight

Jill

Eric came home today, Dr Weber said that since the liver tumors showed an increase of size he was going to stop the IPI and attack it with chemo to try to get something to work. I forget the chemo name but it was 2 or3 and one was like carbo something, I am too tired to look it all up  now. I asked if this progression could just  be the IPI causing the tumors to swell before they shrink and he said yes but since there was no way to now if it is IPI or disease progression he didn't want to waste time waiting to see which it was he wanted to attack. He said if we do nothing that Eric would most likely not be here in 4 months with this type of progression so he wants to attack hard and fast, he said we will do 3 rounds of this chemo and then get scans and if we are stable or shrinking we will look into Braf/MEK but he said that trial wouldn't open for 4 weeks and he wants to hit it before then, He scared us but at least he wants to attack and not just wait and see. He said Eric had all the classic side effects to IPI and may be showing a response but only time will tell. The good news is the pain is finally under control, we are going to try to wean off the steroids and hopefully the pain won't come back. Eric feels like they actually have the pain meds dosed a little high and they said we can wean off that too a little but we are going to get on  either no steroids or a lower dose before we start messing with reducing the pain meds. Eric is in shock, feels ok, just kinda knocks the wind out of your sails. He says give him a few days and he will be back in the fight. He says he thinks he focused too much on what IPI could do and not enough on what God can do so we will take a few days, relax, refocus and then focus more on God and get back in attack mode.

Thank you for all your support, I read this website everyday and would be so lost without it, thank you for all the insight

Jill