Melanoma Research Foundation | gopher38 | Activity https://forum.melanoma.org/user/gopher38/activity/ Activity feed for gopher38. Mon, 20 Apr 2026 11:41:14 -0400 https://buddypress.org/?v= en-US 30 hourly 2 35e16b13afe85704be98fd4fea1b64d6 gopher38 replied to the topic The TIL process in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-til-process/#post-275482 Thu, 12 Aug 2021 19:22:09 -0400 Thanks for the journal.  This will be very helpful to future people who go through this. So many steps!

]]> 1a98193ff71b9d5ef0f1a22f4b32247e gopher38 replied to the topic major rash 7 months AFTER last Opdivo treatment very puzzling. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/major-rash-7-months-after-last-opdivo-treatment-very-puzzling/#post-275387 Thu, 22 Jul 2021 14:05:42 -0400 I was on opdivo only for a year from 2/18 to 2/19.  We then stopped, as I was 3B and NED.  Very few side effects from opdivo.  Very mild rash, some shortness of breath, but low grade.  About 8/19, six months after stopping opdivo, they found progression and so I was supposed to start combo opdivo/yervoy, but there was a delay for various rea…Read more

]]> eedbb2790469ad96964f99f3fbd0c1fb gopher38 replied to the topic major rash 7 months AFTER last Opdivo treatment very puzzling. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/major-rash-7-months-after-last-opdivo-treatment-very-puzzling/#post-275379 Thu, 22 Jul 2021 02:05:40 -0400 Hello.  My last reply to this disappeared, so I’m going to try a shorter one.  I had a very similar reaction (intense rash on torso six months after stopping opdivo; much more intense than anything I experience during opdivo).  This was well before COVID reared its head.  I think immunotherapy just does what it wants, when it wants.

]]> be945f3eb006ed1a7c30c705995ee82f gopher38 replied to the topic When the triplet fails... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/when-the-triplet-fails/#post-275378 Thu, 22 Jul 2021 01:42:17 -0400 Very happy to hear they got you in for the TIL treatment.  Short-term pain for long-term gain.

]]> 96acbe8bd2474ee868db61dcdf9b5b70 gopher38 replied to the topic Next step: Clinical Trials in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/next-step-clinical-trials/#post-275377 Thu, 22 Jul 2021 01:29:57 -0400 Hello Amanda,

Thanks for posting an update.  Hoping this is successful and lasting.  I’m going to get google going and see what I can learn about this (thanks to Ed for the video too).  Would write more, but my last post on rash after opdivo disappeared into the ether.

Warren

]]> 3836ecc148c3b224449c4504d261b07d gopher38 replied to the topic What does a high LDH indicate and what should I do? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/what-does-a-high-ldh-indicate-and-what-should-i-do/#post-275243 Wed, 30 Jun 2021 23:01:55 -0400 Does this have another name than LDH?  Can you calculate it from other numbers?  After reading this discussion, I went on MyChart, and I can’t find anything called LDH on either of the two testing summaries I get after they do a blood draw/test. Is it something for which the doctor would have to do a special request?  You’d think they’d do it au…Read more

]]> b1ad181962f2769faad2c11d443802b9 gopher38 replied to the topic When the triplet fails... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/when-the-triplet-fails/#post-275215 Tue, 29 Jun 2021 16:39:13 -0400 Damn.  Did they say why? I mean, could another tumor/site (Israel?) have more success?  That sucks.

]]> dad3254bdc32e051be03f65f5c50a910 gopher38 replied to the topic Lag-3 + Nivo vs Nivo clinical trial data released from ASCO in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lag-3-nivo-vs-nivo-clinical-trial-data-released-from-asco/#post-274929 Tue, 08 Jun 2021 01:51:32 -0400 <p style=”text-align: left;”>I know that all melanoma development is local, in the sense that if a new treatment doesn’t impact a great number of people, but you’re a complete responder to it, that’s the biggest news of all in your universe.  That said, is this the biggest thing coming down down the pipe in terms of greatest potential impact on…Read more

]]> f6760ac9684fdc15b006373a080d0105 gopher38 replied to the topic When the triplet fails... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/when-the-triplet-fails/#post-274905 Wed, 02 Jun 2021 20:48:06 -0400 Going to be tough counting the days to the 9th, but hoping this is going to be a rousing success.

]]> 89a691afb9f0c0b2f40ec5dbaa4bb2a5 gopher38 replied to the topic triplet question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/triplet-question/#post-274903 Wed, 02 Jun 2021 20:29:10 -0400 Thanks.  That whole presentation is interesting.  I don’t get all the details, but it’s clear that there’s a lot of things being worked on, many of which are – if not always around the corner (although it sounds like some are pretty close) – also not decades down the road.

]]> 12e2c0a57920ea1ea443b3a9a90e80b3 gopher38 replied to the topic triplet question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/triplet-question/#post-274897 Wed, 02 Jun 2021 13:35:51 -0400 I frickin hate my insurance.  My HR person always tells me, “oh, we have a great insurance plan”. Maybe so in theory, but I had my first PET scan rejected for no apparent reason, and it took me literally months to get it reversed.  Then genetic testing was rejected, and it took me months to get it reversed. Now this. This better not take months.

]]> f06015a5f438e0d175a4eeed73ee3985 gopher38 started the topic triplet question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/triplet-question/ Tue, 01 Jun 2021 21:46:22 -0400 Hello,

Quick question for people doing the triplet therapy (BRAF/MEK inhibitor; PD-L1).  Did you have progression beforehand with PD immunotherapy, or did you go directly to the triplet?  I was under the impression that everyone (or pretty much everyone) did the single agent first, and then eventually (probably after ipi/nivo) moved on to the t…Read more

]]> cf8bff9a1981cbba8b3650a8b1481ad8 gopher38 replied to the topic CMP-001 has a new name and new trial in refractory stage 4 pd-1 patients in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/cmp-001-has-a-new-name-and-new-trial-in-refractory-stage-4-pd-1-patients/#post-274880 Mon, 31 May 2021 15:10:25 -0400 Thanks for posting.  It does one good to know that there’s always “something” coming down the line.

]]> 696d5762ae1d64df0d3fb17e8645b97a gopher38 replied to the topic Lag-3 data starting to come in and combination of Lag-3+Nivo shows great PFS in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lag-3-data-starting-to-come-in-and-combination-of-lag-3nivo-shows-great-pfs/#post-274768 Mon, 24 May 2021 15:04:26 -0400 This lag-3 sounds very positive.  More arrows in the quiver.  Thanks for sharing.

]]> 9e33c8ea329cfd6c54cc0edbb229462f gopher38 replied to the topic When the triplet fails... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/when-the-triplet-fails/#post-274664 Fri, 07 May 2021 20:27:14 -0400 I’m going to be following this closely.  Good luck.

]]> 974f0abebe81d80357e05da6397b2603 gopher38 replied to the topic How long do Braftovi/Mektovi therapy can last? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-long-do-braftovi-mektovi-therapy-can-last/#post-274608 Mon, 26 Apr 2021 20:12:57 -0400 No problem.  I’d hardly expect you to know.

]]> 919abde5d051c49824ed69620a7552bf gopher38 replied to the topic How long do Braftovi/Mektovi therapy can last? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-long-do-braftovi-mektovi-therapy-can-last/#post-274606 Mon, 26 Apr 2021 19:47:13 -0400

“The combo of targeted and immunotherapy can still work even if you have low PD1 expression, I think.”

Tried that already.  Seemed to do something, but not enough.  

]]> 679474fe84e5a96d367cc28a838914df gopher38 replied to the topic How long do Braftovi/Mektovi therapy can last? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-long-do-braftovi-mektovi-therapy-can-last/#post-274604 Mon, 26 Apr 2021 19:27:01 -0400 “I mean we know it stops working in about 9 months-15 months, right?”

Based on what I’ve heard, that’s pretty typical (maybe even a bit optimistic, unfortunately).

“I was wondering if there are any ppl here who were staying on it for years?”

I’m pretty sure that does happen also.

 

]]> d71789a25a15f35877c19a58ef9ebd81 gopher38 replied to the topic How long do Braftovi/Mektovi therapy can last? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-long-do-braftovi-mektovi-therapy-can-last/#post-274603 Mon, 26 Apr 2021 19:23:36 -0400 Looks like targeted therapy, although the combo is now vemurafenib and cobimetinib, plus atezolizumab.  I’m still interested in TIL, but I also saw a biopsy result just a day or two ago which said that I had very low PD-L1 expression, which I think maybe means that immunotherapy is not likely to work well on me (and maybe why I am where I am).  I…Read more

]]> d96c7be09ae8aac9aea4b44b52ba416d gopher38 replied to the topic How long do Braftovi/Mektovi therapy can last? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-long-do-braftovi-mektovi-therapy-can-last/#post-274600 Mon, 26 Apr 2021 17:28:57 -0400 Million dollar question.

]]> 973824f04673a738af9d58b89323604e gopher38 started the topic Does TIL always come after Immuno and Targeted? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/does-til-always-come-after-immuno-and-targeted/ Mon, 19 Apr 2021 20:41:56 -0400 Hello again,

I’ll try not to spam the board with too many dumb questions, but had another come to me as I was perusing the clinical trials pages.  Is it your understanding that TIL would always come after checkpoint blockers and targeted therapy in the melanoma treatment hit parade?  My impression is that they usually start with nivo/pembro. If t…Read more

]]> bf3a1e0ca2ac4c05fd03a1d5f041d96e gopher38 replied to the topic Distant Skin Mets a thing? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/distant-skin-mets-a-thing/#post-274550 Mon, 19 Apr 2021 14:07:35 -0400 Just a short note to say that, although I don’t know percentages, distant skin mets can definitely happen before spread to organs (although – as you say – that seems to be more common).  I had seven distant skin mets appear from neck to butt, before they detected any spread to organs.

]]> cb15335e9e997d876f575b76fe646adf gopher38 replied to the topic LXH254 ?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lxh254-3/#post-274549 Mon, 19 Apr 2021 14:04:54 -0400 Thanks both of you for the feedback.  That Weber video is great for an overview.  He makes things very understandable and clear for the layman.  And Bubbles blog is always extremely helpful.  Going to have to dig into this LXH254 more, because I’m still not sure what the advantage would be over dabrafenib/trametenib.

]]> 6cddc0d87f57650bcede4791a1d0e8e6 gopher38 started the topic LXH254 ?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lxh254-3/ Sat, 17 Apr 2021 20:39:09 -0400 ** Sorry if this is a double/triple post; the first two disappeared. Third attempt. **

Anyone ever heard anything (positive or negative) about LXH254?  As I mentioned in my last post, I’ve had progression after Yervoy, and the next step will be BRAF/MEK inhibitors.  While talking with my PA, I mentioned that I’d be keeping an eye out for c…Read more

]]> f1010e665289be8fec559cd546a1fdfd gopher38 started the topic LXH254 ?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lxh254-2/ Sat, 17 Apr 2021 20:31:17 -0400 Anyone ever heard anything (positive or negative) about this?  As I mentioned in my last post, I’ve had progression after Yervoy, and the next step will be BRAF/MEK inhibitors.  While talking with my PA, I mentioned that I’d be keeping an eye out for clinical trials, while we move ahead with the targeted therapy, and I of course asked her to k…Read more

]]> 44a749d04ee9998a5bf50283c9310c41 gopher38 started the topic LXH254 ?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lxh254/ Sat, 17 Apr 2021 20:22:43 -0400 Anyone ever heard anything (positive or negative) about this?  As I mentioned in my last post, I’ve had progression after Yervoy, and the next step will be BRAF/MEK inhibitors.  While talking with my PA, I mentioned that I’d be keeping an eye out for clinical trials, while we move ahead with the targeted therapy, and I of course asked her to k…Read more

]]> 220858917b3c1d3bb28e3f338670154e gopher38 started the topic ship is taking on water in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ship-is-taking-on-water/ Sat, 17 Apr 2021 20:03:42 -0400 Well, this melanoma thing sure has it’s ups and downs.  ~15 months ago, things were looking down, as I’d finished the combo treatment without effect.  Then I got a surprise positive scan where most of the lung lesions disappeared, and all were gone in the scan after that.  Couple of good scans after that, where maybe things would pop up, but th…Read more

]]> cb0cb86166844138e37c04c5f0049804 gopher38 replied to the topic Mixed Results — looking for my next treatment option in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mixed-results-looking-for-my-next-treatment-option/#post-274414 Sat, 27 Mar 2021 21:41:39 -0400 Tried to post on here twice, but didn’t seem to work.  Maybe third time is a charm.  Not like I had Bubbles-level advice to contribute anyway.  Just that it was good to see your post.  I’d been wondering how you were doing. Was hoping for some better news, but the next one will be better.  Some shrinking mets is always good because – as you said…Read more

]]> 29b78852de3a44ee1906810620a282a1 gopher38 replied to the topic COVID VACCINE & IMMUNOTHERAPY in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/covid-vaccine-immunotherapy/#post-274368 Mon, 15 Mar 2021 01:56:23 -0400 Had the J&J vaccine.  No side effects for me.  Hope it’s effective.

]]> 7924b82a37ac7d32e3c577dde3562da9 gopher38 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274258 Fri, 19 Feb 2021 23:15:01 -0500 Hope this went well.  Was meaning to post my experiences, which were that the apprehension was much worse than the actual procedure.  There’s nasty junk where it shouldn’t be; burn it out.  The halo things was strange, but less painful than I expected.

9 months after my procedure, the spot is still there, but not growing.  Hoping that it’s dea…Read more

]]> 8d2b4ad6b53fbacc07e7948b13429b11 gopher38 replied to the topic Booster for Ipi/Nivo in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/booster-for-ipi-nivo/#post-274257 Fri, 19 Feb 2021 23:10:55 -0500 I understand the reticence on the part of the “system”, but I agree that there’s an argument to be made that the should allow patients who haven’t had adverse secondary effects and appear to be at least partially responding to treatment, to go beyond the standard dosages.  I imagine that the financial risks are what precludes it, but – as a…Read more

]]> 3d7004748dab3ecae953a258cf72c825 gopher38 replied to the topic Maculopapular rash on Pembro in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/maculopapular-rash-on-pembro/#post-274256 Fri, 19 Feb 2021 23:07:03 -0500 Hello.  Don’t know what maculopapular rash is exactly, nor am I familiar with the treatments you’re doing, but I can say that my worst wave of rash came 5 months after I had stopped nivo (had to start again with the combo later after progression).  Horrible itching all over the torso, front and back, and neck.  I don’t think anyone really knows ho…Read more

]]> 8c7a3fa75d51cf208bca7fcbea34f802 gopher38 replied to the topic 2 years NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/2-years-ned-2/#post-274175 Sun, 07 Feb 2021 20:42:31 -0500 That’s a great milestone to pass.  Very happy for you.

]]> 4cd1d0d15c5853952c96aa37ec92de82 gopher38 started the topic Not numbness, but severe pain in extremities? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/not-numbness-but-severe-pain-in-extremities/ Sat, 28 Mar 2020 14:17:08 -0400 So I think that some numbness and weakness in hands and feet is pretty common with both nivo and ipi. Wondering if anyone – other than myself – has had it go beyond that to significant pain? Up until a few weeks ago, my melanoma hadn’t had any substantial impact on my physical abilities. I started to notice a little numbness in the feet, and…Read more

]]> df4870e73ff8bb248b620ce396f1bb28 gopher38 started the topic Trying to figure out a plan in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/trying-to-figure-out-a-plan/ Fri, 24 Jan 2020 19:23:27 -0500 Hello all.

Looking for some advice after my doctor visit yesterday. Had a scan this week and doctor said that there are several spots in the lungs that showed considerable growth since the last scan (boo), so he said that the combo does not seem to be working. Am now going to try targeted therapy, but – as I already knew – he said that that…Read more

]]> 220b6af2f3311ba7853adb9553c0b0da gopher38 started the topic Skin rash six months after stop of opdivo? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/skin-rash-six-months-after-stop-of-opdivo/ Fri, 15 Nov 2019 17:19:42 -0500 Hello,

Another one of these “Anyone else seen this?” posts. My mind is always picking at the “melanoma scar” like everyone else.

So, I did a year of Opdivo from Feb 2018 to Feb 2019. Had maybe a bit of a rash in the beginning, but very minor. Main side effect was shortness of breath and dry mouth. In Sept, they found distant spread of…Read more

]]> 7cfc1c8567fdc812856f4d62d3cdc686 gopher38 started the topic Combo, here we come in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/combo-here-we-come/ Tue, 22 Oct 2019 20:57:08 -0400 Little update with TL;DNR question

Q: What do people think of ports? I did a year of every-two-week infusions and blood-draws, 3-month scans, etc. between Feb 2018 and 2019 with just pokes in the vein. Didn’t bother me much, but I’m tougher to get a vein than nurses imagine when they first see me. I have very visible veins, but it usually…Read more

]]> e702a8110ae08bd33fdf0d9d65ea4b6d gopher38 started the topic Melanoma specialist in MN?? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-specialist-in-mn/ Fri, 13 Sep 2019 02:03:32 -0400 Hello all. My melanoma seems to be kicking up recently, and I’m scheduled to meet with him again on the 26th to discuss next steps (in the meantime, he’s supposed to be requesting BRAF testing on my tumors, finding out what I was really getting in the blind trial, and … coming up with a plan). I think my current doc is a smart guy, I like him…Read more

]]> e77f954321680232398e0c75b5bf34b6 gopher38 started the topic I’m apparently kind of an unusual case … not really in a good way though in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/im-apparently-kind-of-an-unusual-case-not-really-in-a-good-way-though/ Sun, 08 Sep 2019 21:21:24 -0400 Hello people,

Looking for some feedback/opinions on my situation, and particularly on CLNDs. Here’s the backstory:

Diagnosed IIIB 18 months ago. Resected and scans clear. Put on 12-month blind clinical trial of either opdivo or yervoy+opdivo. Scans clear through 15 months. Last month, ground-glass area in CT scan, which they thought m…Read more

]]> f4e10c97828122ece452efb290fc67f5 gopher38 started the topic Mostly bad news in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/mostly-bad-news/ Fri, 02 Aug 2019 17:50:38 -0400 Well, yesterday I had my meeting with the onc to go over the CT scan, and although they saw something in the lungs which might be a future concern, they didn’t see anything that looked like melanoma to them, so I considered that mostly good news. Monday, when I had my CT scan, I also visited the dermatologist, because there was one mole that I…Read more

]]> 42a769e7d6ff3e1abd593ba7a69cf3b2 gopher38 started the topic Mostly good news in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mostly-good-news/ Thu, 01 Aug 2019 18:59:51 -0400 Hello,
I had my 1.5 year scan today, and the great news is that they still haven’t seen any sign of metastatic melanoma. I was a little worried though, when the nurse said she wanted to pull up my scans for the doctor to discuss with me. What he showed me is that there was one “cloudy” area in the lung that was already visible on the last scan…Read more

]]> b77d22a1220e52c4703d408e24664123 gopher38 started the topic Milestone in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/milestone/ Fri, 22 Feb 2019 02:59:05 -0500 Finished my last infusion for my clinical trial: either opdivo alone or opdivo&yervoy.  Lost count, but I think it was 25 infusions.  Last scan was clean, thank goodness.  Next scan is 3 months.  Got to say, I'll be missing my regular infusion-security-blanket a bit, but I'll feel great if the next unaided one comes back clean also.  Only…Read more

]]> f1f1e74429b3dbce5cede8bf195847b6 gopher38 started the topic Job searching with cancer? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/job-searching-with-cancer/ Fri, 21 Dec 2018 17:08:15 -0500 Just looking for opinions.  I had stage 3 resected melanoma.  Currently reaching the end of a clinical trail.  Two months to go; so far, still NED.  Current work environment  has seriously degraded with arrival of new manager.  Would like to start looking at other options.  I feel like I can safetly look internally (they already know my history…Read more

]]> 5ecd7a1e74dc992ff8ad6896aea19d06 gopher38 started the topic Thanks to whomever is cleaning up the topics in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/thanks-to-whomever-is-cleaning-up-the-topics/ Fri, 31 Aug 2018 14:05:43 -0400 Hello,
Don't know who is managing this board, but I just wanted to say thanks for trying to keep it clutter free.  I find this forum extremely helpful in getting informaiton about my melanoma, and it would be a true shame if someone menaced it with shutdown. Seems like every night someone puts a bunch of junk posts on here, but every morning,…Read more

]]> ebcf060e2c1858a4a35d211324420254 gopher38 started the topic Probably off-topic in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/probably-off-topic/ Mon, 16 Apr 2018 01:11:06 -0400 Hello.  I don’t expect to get an answer here, but, who knows, maybe someone has some ideas.  Lots of knowledge floating around here.
Has anyone experience pricking all over their body after their WLE?  I started getting this not-continual-but-regular pricking sensation after my WLE/SLNB and PET scan, but before I’d started my immunotherapy (so…Read more

]]> 5f97e3e520bb3cb7b92867c16c317f12 gopher38 started the topic Mundane money question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mundane-money-question/ Fri, 30 Mar 2018 16:18:18 -0400 After I had my WLE/lymph node removal in February, the dermatologist scheduled me for a PET scan, which thankfully came back clean.  Seemed like a pretty logical next step, to see if the cancer had spread to other organs.  Well yesterday I got a bill from the radiology company, and the insurer (BCBS) hadn’t picked up any of it (>$6K).  I call the…Read more

]]> ad732e2fc48352eea82942f3eadba326 gopher38 replied to the topic Ipi/ Nivo and Type 1 Diabetes. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ipi-nivo-and-type-1-diabetes/#post-236894 Wed, 28 Feb 2018 04:09:59 -0500 Yikes.  That's not good to hear.  Hope things improve.

]]> c97f7df9367cf34bad4220a3aa28ccef gopher38 replied to the topic New to Melanoma 1/25/18 and Surgery 2/5/18 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-to-melanoma-1-25-18-and-surgery-2-5-18/#post-236815 Fri, 23 Feb 2018 20:06:31 -0500 Brad,
Just wanted to say that I admire your clear thinking analysis, in saying, in retrospect, decision A was a mistake (in this case, the CLND), but it was the right decision at the time.  And, you know, maybe you're wrong about that too (thinking decision A was a mistake), and only future info will reveal that.  You never know, but you make…Read more

]]> b51148d43945a03455be0667bf37f6bc gopher38 started the topic Thoughts on yervoy/opdivo trial in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/thoughts-on-yervoy-opdivo-trial/ Fri, 23 Feb 2018 19:48:25 -0500 Hello all,
First post (wish under better circumstances).  Diagnosed recently with IIIc.  Malgnant cancer on back and lymph nodes.  All removed and NED PET scan, but I've already read enough to know there are little nastys cirulating in my body looking for a place to land.  Was asked if I wanted to participate in yervoy + opdivo clinical trial,…Read more

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