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Probably off-topic

Forums Cutaneous Melanoma Community Probably off-topic

  • Post
    gopher38
    Participant

      Hello.  I don’t expect to get an answer here, but, who knows, maybe someone has some ideas.  Lots of knowledge floating around here.

      Has anyone experience pricking all over their body after their WLE?  I started getting this not-continual-but-regular pricking sensation after my WLE/SLNB and PET scan, but before I’d started my immunotherapy (so it’s not from the nivo/ipi, although it has continued since I started with that, for five weeks or so now).   It’s most frequent on the hands, but also on feet, torso, face, neck, etc.  I’ve – of course – been reading on-line, and they say that liver problems can cause this, so – always expecting the worst – I thought maybe it was melanoma spread to the liver, but my scans have all been clean (and my blood tests for the clinical trial have all been normal).  I thought maybe it was something in the PET scan fluid, but the nurse tells me that that would have all been out of the system in a few days.  Originally, I chalked it up to flat out nerves, but I’m truly not that anxious right now.  I’ve had operations before, and I’ve never had a problem with anesthesia or latex or whatever.  I suppose it could have nothing to do with my melanoma and associated operations, scans, etc, (like suddenly developing MS) but the timing would be truly strange.  I don’t think I’ve changed shampoo, detergent, etc.

      I’m just wondering about this WLE.  My mole was about the size of my thumb in the middle of my back, and I think the doctor said that they were going to take twice its width on both sides, which seems like a lot of skin.  I’m just wondering if they could have done some nerve damage during something like that?  If so, could it manifest itself in other parts of the body, like my face or hands?   What about the lymph nodes?  They took them out on both sides.  Kind of grasping for straws, but I can’t think of what would cause this.  Ideas appreciated.

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