Hello,
Another one of these “Anyone else seen this?” posts. My mind is always picking at the “melanoma scar” like everyone else.
So, I did a year of Opdivo from Feb 2018 to Feb 2019. Had maybe a bit of a rash in the beginning, but very minor. Main side effect was shortness of breath and dry mouth. In Sept, they found distant spread of melanoma on the skin, so classified stage 4 and prescribed the combo, which I started about 2 weeks ago. Here’s the question though. About a month before I started the combo, and about six months after having ended opdivo treatment, I started getting a rash (not “serious”, but pronounced) on the torso front and back, accompanied by some, but not horrible itching. It looks very similar to some of the pictures I’ve seen of the rash that opdivo can produce, but it was six months after the end of opdivo, and – as far as rashes go – it was much more pronounced than anything I experienced DURING opdivo treatment. Seemed weird to me. My doctor too, because was asking all the “have you changed detergent” type questions. I’ve now since started the combo, and that has ratcheted the rash up a bit (pretty much all over front and back now), but especially the itching, which is strong on torso and limbs. I know that rash and itching is pretty common with Yervoy, and I’m hoping that it doesn’t get so bad that they have to stop it. The thing I’m trying to figure out is what could have caused the wide-spread rash, six months after the end of opdivo and before yervoy? Wondering if there’s another thing going on besides the immunotherapy?
Anyone every have an NEW immunotherapy side effect kick in strongly six months after treatment’s end? Thanks.
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