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gmschmidt

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      gmschmidt
      Participant

        Thanks everyone.

        gmschmidt
        Participant

          All very good perspectives!  Thanks everyone.

          gmschmidt
          Participant

            My husband's Dr is at siteman, he gets his treatments there as well as test, etc.  He has not had surgery though.  Siteman as a facility, has an excellent reputation, but you might want to research the Surgeon if you don't know him/her.  

            Best of luck!

            gmschmidt
            Participant
              Good to know! Thanks
              gmschmidt
              Participant
                As always, thanks Bubbles for the information.
                gmschmidt
                Participant
                  Abear, good to know! Was/is your husband on Opdivo alone, or Opdivo combined with another drug?

                  Thanks
                  Gail

                  gmschmidt
                  Participant
                    I know its been a almost 3 years since this post, but I’m wondering if the CPAP helped with your fatigue. Thanks!
                    gmschmidt
                    Participant
                      Yeah, we strip the tube every time he dumps the fluid. They showed us how to do that before we left the hospital. There has been tissue before, along with the red fluid, but now it’s white chuncks.

                      His is in the armpit as well. I guess it’s ok. ??

                      gmschmidt
                      Participant

                        When you say all you need is MyChart, do you mean you pulled it up for them on a phone or computer or did you try to print something out.  I found a link on "my chart" to download records which I did but it's a zip file.  I tried to extract the files (which I have done before) and it says their extracted, but they aren't.  Also its a SDMF file.  ?

                        gmschmidt
                        Participant

                          Yeah, I've heard and read that stage 4 melanoma automatically qualifies, but I still can't complete the application without answering that question yes or no.  I spoke to an attorney about them filling it out, and they said I didn't need them.   They suggested I do it on line though as opposed to going in, I can't remember why.  On-line is much more conveinent for me anyway.  I guess I'll go ahead and call SSA Monday.  I just thought maybe someone in the same situation as me might have just filled out an on-line app and would know the answer.  The last time I called the SSA the wait time was 90 minutes.  smiley   

                          Thanks

                          gmschmidt
                          Participant

                            Yes, when he retires he will be collecting a monthly pension.  It was my understanding that doesn't matter.   A lot of people get part time jobs after they retire, but he wouldn't have that option since he's unable to work, which is where the disability comes in.  I do tax returns for a living and I have a couple of clients who  receive both a pension and Social Security Disability.  So I guess I'd better research that a little better.  Thanks

                            gmschmidt
                            Participant

                              Thanks everyone for the great suggestions.  I'll get shopping!

                              gmschmidt
                              Participant

                                Have you gotten your taste back?

                                That's awesome and encouraging that you are NED since 2013.

                                Thanks

                                gmschmidt
                                Participant

                                  I had searched dry mouth and found a lot of information on dry mouth and oral ulcers, but didn't see to much on the loss of taste.  His appetite is fine, he just can't taste anything.  I told him he should turn that to his advantage and only eat healthy food.  Why eat chocolate, if you can't taste it, right?  But even with side effects that aren't that serious, I guess you always want to know if there are others that are experiencing the same thing.  Every thing that happens to him he always wonders if it's the disease, the treatment or just aging.    I'm glanced at your blog, it looks like there is a lot of information there.  I'm going to definitely make time to take a closer look.  Thanks!!

                                   

                                  gmschmidt
                                  Participant

                                    I had searched dry mouth and found a lot of information on dry mouth and oral ulcers, but didn't see to much on the loss of taste.  His appetite is fine, he just can't taste anything.  I told him he should turn that to his advantage and only eat healthy food.  Why eat chocolate, if you can't taste it, right?  But even with side effects that aren't that serious, I guess you always want to know if there are others that are experiencing the same thing.  Every thing that happens to him he always wonders if it's the disease, the treatment or just aging.    I'm glanced at your blog, it looks like there is a lot of information there.  I'm going to definitely make time to take a closer look.  Thanks!!

                                     

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