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awillett1991

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      awillett1991
      Participant

        Karen, 

        my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

        Amy

        awillett1991
        Participant

          Karen, 

          my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

          Amy

          awillett1991
          Participant

            Karen, 

            my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

            Amy

            awillett1991
            Participant

              So very sorry to hear this Al! I PMd you.  Keep fighting!

              Amy

              awillett1991
              Participant

                So very sorry to hear this Al! I PMd you.  Keep fighting!

                Amy

                awillett1991
                Participant

                  So very sorry to hear this Al! I PMd you.  Keep fighting!

                  Amy

                  awillett1991
                  Participant

                    I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

                    Amy

                    awillett1991
                    Participant

                      I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

                      Amy

                      awillett1991
                      Participant

                        I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

                        Amy

                        awillett1991
                        Participant

                          I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

                           

                          Amy

                          awillett1991
                          Participant

                            I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

                             

                            Amy

                            awillett1991
                            Participant

                              I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

                               

                              Amy

                              awillett1991
                              Participant

                                Janet, 

                                rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

                                Blessings, 

                                Amy

                                awillett1991
                                Participant

                                  Janet, 

                                  rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

                                  Blessings, 

                                  Amy

                                  awillett1991
                                  Participant

                                    Janet, 

                                    rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

                                    Blessings, 

                                    Amy

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