› Forums › General Melanoma Community › Anyone Not Respond After Adding MEK?
- This topic has 12 replies, 3 voices, and was last updated 11 years ago by
killmel.
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- January 27, 2014 at 6:59 pm
Hi all,
i was doing great after starting Tafinlar 6 months ago, now after about 1month on Mek, I feel like I'm getting worse. More mets on scalp and face.
Going for brain MRI and check-up on 2/12–
. I'll call Dr. Pavlick now, she said that sometimes the Mek makes the skin flare up before getting better, but I would have thought by now…
Thanks
Karen
- Replies
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- January 27, 2014 at 11:54 pm
Karen,
my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok.
Amy
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- January 28, 2014 at 1:21 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 28, 2014 at 1:21 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 28, 2014 at 1:21 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 28, 2014 at 1:29 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 28, 2014 at 1:29 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 28, 2014 at 1:29 am
I just lost my whole reply.
Let's try again.
Amy, I'm sorry to hear about your progression. Do the docs have a what's next?
dr P's NP and I missed each other. Last week when we spoke she said something like " well if this doesn't work, well try something else." I have no clue what she's talking about, but I'll find out. Maybe it's just cutaneous & my brain's ok, I'll see if they want to move up MRI..
if anyone else has progressed or partially progressed on MEK, please post.
Thanks
-
- January 27, 2014 at 11:54 pm
Karen,
my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok.
Amy
-
- January 27, 2014 at 11:54 pm
Karen,
my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok.
Amy
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