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ajpeterson
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ajpeterson

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      • March 22, 2018 at 7:29 pm
      ajpeterson
      Participant

        Super interesting….I just had my first Nivo infusion with the new 480 dose, and I felt like I was hit by a truck yesterday.  My head feels like it is in a cloud….my stomach is extra sensitive…I'm EXHAUSTED.  I had been on the every 2-week regimine, and was excited to have the new 4 week rotation, but not after getting the infusion yesterday! 

        • March 23, 2017 at 8:21 pm
        ajpeterson
        Participant

          My previous melanoma was a very thin mole on my lower back 2 years ago, and this time in one lymph node on the same side of the groin.  The Dr has said that it's VERY rare that it would return, however I caught it early….it appeared in the upper groin area, and was about 3.5cm in diameter and very hard.  A FNA was done and was considered to be "suspicious for melanoma"….after that I had a PET scan and have a brain MRI in a few days.  The PET scan showed that the melanoma has stayed in the lymph node, except for a very tiny spot on one of my lungs, that they think is completely unrelated. 

          I've been having a little bit of dizziness, which I have attributed to a history of panic attacks?

          • March 23, 2018 at 1:42 am
          ajpeterson
          Participant

            My Oncologist said that my side effects are pretty normal…everything is manageable, just much more intense than the lower dose was. 

            How much longer are you on Nivo??  

            • April 13, 2017 at 3:20 pm
            ajpeterson
            Participant

              So he never needed surgery because the keytruda got rid of all of the cancer?  Did he have any major side effects from the keytruda? 

              • April 13, 2017 at 3:18 pm
              ajpeterson
              Participant

                Have you had any post-surgery side affects? 

                • March 30, 2017 at 3:38 am
                ajpeterson
                Participant

                  Will the oncologist bring this up?  Or is this something I should ask about? 

                  • March 25, 2017 at 4:57 am
                  ajpeterson
                  Participant

                    Finished my first ever brain MRI and I can definitely see why it's your least favorite thing!  I'm not claustrophobic and the technician was super nice, but I felt like I was on a space ship and forgot to tuck my legs in for the take off. ;). 

                     

                    • March 24, 2017 at 6:36 pm
                    ajpeterson
                    Participant

                      Thanks for the explanation about the terminology….that makes sense.  After your dissection, did you start some sort of treatment?  If so, what did you do?

                      I am having a brain MRI today, that I'm kind of freaked out about.  The Dr doesn't seem concerned because the melanoma is in my groin area and there doesn't seem to be anything else in other parts of my body.  

                      My husband sits at a desk/computer for his job and has been googling everything.  Thank goodness I have 25 3rd graders who keep me busy and away from a computer during the day, otherwise it might be more difficult to stay away from doing my own "research".  

                      • March 24, 2017 at 2:58 pm
                      ajpeterson
                      Participant

                        Was the Lymph Node dissection, a removal of the lymph node?  I'm still trying to figure out all of the language surrounding melanoma…. (sorry).  

                        Thanks for your response!  I found this site 2 days ago after not doing any computer searches for melanoma, for fear that I would find something horrible and my anxiety would skyrocket.  It's been nice to have a place to ask questions to others who are going through and have gone through the same thing.

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