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- June 17, 2015 at 2:34 am
There is tremendous hope for this combo, and results get better as time goes on. Search for the article on braf/mek (not tafinlar and mekinist, which I am on, and you are starting, but similar drugs and results) from the asco 2015 conference. 2 year overall survival 51%. My oncologist says the curve flattens out at around 30%, which is excellent in the melanoma world. I have been on since Feb 2014.
Regarding side effects, it was a little rocky to start, with chills, but once my oncologist determined my personal proper dosage, which was every other day, not every day, I have been fine, with NO side effects. Just a 2 week period over New Years when I went off for 2 weeks due to sore feet.
Keep your spirits up and hope you are on the path to join the 30% who have long term success with this combo.
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- June 17, 2015 at 2:34 am
There is tremendous hope for this combo, and results get better as time goes on. Search for the article on braf/mek (not tafinlar and mekinist, which I am on, and you are starting, but similar drugs and results) from the asco 2015 conference. 2 year overall survival 51%. My oncologist says the curve flattens out at around 30%, which is excellent in the melanoma world. I have been on since Feb 2014.
Regarding side effects, it was a little rocky to start, with chills, but once my oncologist determined my personal proper dosage, which was every other day, not every day, I have been fine, with NO side effects. Just a 2 week period over New Years when I went off for 2 weeks due to sore feet.
Keep your spirits up and hope you are on the path to join the 30% who have long term success with this combo.
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- June 17, 2015 at 2:34 am
There is tremendous hope for this combo, and results get better as time goes on. Search for the article on braf/mek (not tafinlar and mekinist, which I am on, and you are starting, but similar drugs and results) from the asco 2015 conference. 2 year overall survival 51%. My oncologist says the curve flattens out at around 30%, which is excellent in the melanoma world. I have been on since Feb 2014.
Regarding side effects, it was a little rocky to start, with chills, but once my oncologist determined my personal proper dosage, which was every other day, not every day, I have been fine, with NO side effects. Just a 2 week period over New Years when I went off for 2 weeks due to sore feet.
Keep your spirits up and hope you are on the path to join the 30% who have long term success with this combo.
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- March 18, 2015 at 1:00 am
Please check with your doctor regarding dosage.
I am on Mekinist and Tafinlar (the other combo). I started at the full dosage. Due to side effects I was reduced to a lower dosage, and then that lower dosage every other day. At first I was skeptical that it was 1/4 of the "normal", but the normal is not important. I am now 12 months on the combo, feeling great, no side effects.
I hear the new "normal" might actually be every other day.
Make sure you question your doctor. Is your doctor an informed oncologist?
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- March 18, 2015 at 1:00 am
Please check with your doctor regarding dosage.
I am on Mekinist and Tafinlar (the other combo). I started at the full dosage. Due to side effects I was reduced to a lower dosage, and then that lower dosage every other day. At first I was skeptical that it was 1/4 of the "normal", but the normal is not important. I am now 12 months on the combo, feeling great, no side effects.
I hear the new "normal" might actually be every other day.
Make sure you question your doctor. Is your doctor an informed oncologist?
-
- March 18, 2015 at 1:00 am
Please check with your doctor regarding dosage.
I am on Mekinist and Tafinlar (the other combo). I started at the full dosage. Due to side effects I was reduced to a lower dosage, and then that lower dosage every other day. At first I was skeptical that it was 1/4 of the "normal", but the normal is not important. I am now 12 months on the combo, feeling great, no side effects.
I hear the new "normal" might actually be every other day.
Make sure you question your doctor. Is your doctor an informed oncologist?
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