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UPDATE on recent scans

Forums General Melanoma Community UPDATE on recent scans

  • Post
    aldakota22
    Participant

      Had visit with Dr. Anna Pavlick yesterday and got results of Cat Scans & MRI  from 6/15/13.On the plus side Iron count is back to normal after being on the low side early this year.Just had to  take iron supplement..Also gained 4 pounds .First time in over 2 years after remaining at same weight.Appetite has always been great.All in all the results were awesome."Z" has been doing its job for the most part as there is no evidence of disease from the head down.Still have a few brain mets with the largest being  1.2 x 1.1  x  0.4  cm.

      Had visit with Dr. Anna Pavlick yesterday and got results of Cat Scans & MRI  from 6/15/13.On the plus side Iron count is back to normal after being on the low side early this year.Just had to  take iron supplement..Also gained 4 pounds .First time in over 2 years after remaining at same weight.Appetite has always been great.All in all the results were awesome."Z" has been doing its job for the most part as there is no evidence of disease from the head down.Still have a few brain mets with the largest being  1.2 x 1.1  x  0.4  cm. All others are substancially smaller and measured in mm.They all remain stable when compared to MRI of  2/20/13 and  4/13/13. No new ones from MRI of Feb. 2013.Will have MRI again in two months. As i have no problems stemming from these mets she is of the opinion that this is something I can actually live with.Feels that any  Gamma knife treatment at this point is not reccomended.Still taking "Z" for over 21 months.Plan  B if needed will be to switch to Dabrafenib expected to be available the first week of July.Known to  work as a effective a "Z" to long time users as myself.Want everyone to know out there that after what felt like a Death Sentence  in early 2011, now feels  with God  & modern medicine I now have a Life Sentence.To all my fellow warriors in our unwanted battle with melanoma do everything you can to Beat the Beast..The research is advancing toward a cure or at least a treatment as a chronic condition.Life is good.Keeping all my fellow warriors in my prayers.Looking forward when all posts here will be ones of hope and happiness.I feel my good results have been cause of God, modern medicine, my PMA and of course the love and support of my honey and family. Also know that all here are wishing me well also. Thank you.      Al

    Viewing 32 reply threads
    • Replies
        hbecker
        Participant

          Al, I'm so happy to hear your great news! Thanks for sharing!

          ~Hazel

          hbecker
          Participant

            Al, I'm so happy to hear your great news! Thanks for sharing!

            ~Hazel

            hbecker
            Participant

              Al, I'm so happy to hear your great news! Thanks for sharing!

              ~Hazel

              rosa1
              Participant

                It's great to hear you're doing well, Al!  Hopefully dabrafenib will kick those small brain mets in their butt!  Keep the positve attitude and keep fighting.  As always, I wish and pray the best for you and everybody on this board fighting this battle!

                All the best/Rosa  smiley

                 

                rosa1
                Participant

                  It's great to hear you're doing well, Al!  Hopefully dabrafenib will kick those small brain mets in their butt!  Keep the positve attitude and keep fighting.  As always, I wish and pray the best for you and everybody on this board fighting this battle!

                  All the best/Rosa  smiley

                   

                  rosa1
                  Participant

                    It's great to hear you're doing well, Al!  Hopefully dabrafenib will kick those small brain mets in their butt!  Keep the positve attitude and keep fighting.  As always, I wish and pray the best for you and everybody on this board fighting this battle!

                    All the best/Rosa  smiley

                     

                    Brendan
                    Participant
                      Great news, Al. Keep it up! Thanks for posting.

                      Brendan

                      Brendan
                      Participant
                        Great news, Al. Keep it up! Thanks for posting.

                        Brendan

                        Brendan
                        Participant
                          Great news, Al. Keep it up! Thanks for posting.

                          Brendan

                          awillett1991
                          Participant
                            Never have I heard such a positive report on brain mets. You are one amazing individual Al!
                            awillett1991
                            Participant
                              Never have I heard such a positive report on brain mets. You are one amazing individual Al!
                              awillett1991
                              Participant
                                Never have I heard such a positive report on brain mets. You are one amazing individual Al!
                                JerryfromFauq
                                Participant

                                  Love this post.  This is why I tell people to not give up and let dispair destroy them. 
                                  (Easier said than done, I know!)

                                  JerryfromFauq
                                  Participant

                                    Love this post.  This is why I tell people to not give up and let dispair destroy them. 
                                    (Easier said than done, I know!)

                                    JerryfromFauq
                                    Participant

                                      Love this post.  This is why I tell people to not give up and let dispair destroy them. 
                                      (Easier said than done, I know!)

                                      Richard_K
                                      Participant

                                        Al,

                                        Talk about PMA!  Your plan sounds good and glad to hear you continue on Zelboraf.  My wife and I just got back from Barcelona Spain.  Roche asked me to come and speak about my Zelboraf experience at a global Research and Early Development conference.  Keep it up, maybe they'll be looking for other long term responders.

                                        Richard_K
                                        Participant

                                          Al,

                                          Talk about PMA!  Your plan sounds good and glad to hear you continue on Zelboraf.  My wife and I just got back from Barcelona Spain.  Roche asked me to come and speak about my Zelboraf experience at a global Research and Early Development conference.  Keep it up, maybe they'll be looking for other long term responders.

                                          Richard_K
                                          Participant

                                            Al,

                                            Talk about PMA!  Your plan sounds good and glad to hear you continue on Zelboraf.  My wife and I just got back from Barcelona Spain.  Roche asked me to come and speak about my Zelboraf experience at a global Research and Early Development conference.  Keep it up, maybe they'll be looking for other long term responders.

                                            Richard_K
                                            Participant

                                              Al,

                                              Hope you appreciate this.  Apparently I can no longer put my name at the end of the post as it will not pass the "provanity filter".

                                              Richard_K
                                              Participant

                                                Al,

                                                Hope you appreciate this.  Apparently I can no longer put my name at the end of the post as it will not pass the "provanity filter".

                                                Richard_K
                                                Participant

                                                  Al,

                                                  Hope you appreciate this.  Apparently I can no longer put my name at the end of the post as it will not pass the "provanity filter".

                                                  Owl
                                                  Participant

                                                    Al, good to hear that your scans went so well! Your positive attitude will help keeping and fighting the last stubborn mets in your brain.

                                                    We got a call from the clinic yesterday, they have doublechecked the scan results of my husband with the radiologists and they had great news (the report was kind of hard to read even for the doctors). The radiologists can not see that any of the lymphnodes, no bigger than 6mm, are still suspect, means he is some kind of NED. We are more than happy as you can imagine!

                                                    All the best,

                                                    Jenny

                                                    Owl
                                                    Participant

                                                      Al, good to hear that your scans went so well! Your positive attitude will help keeping and fighting the last stubborn mets in your brain.

                                                      We got a call from the clinic yesterday, they have doublechecked the scan results of my husband with the radiologists and they had great news (the report was kind of hard to read even for the doctors). The radiologists can not see that any of the lymphnodes, no bigger than 6mm, are still suspect, means he is some kind of NED. We are more than happy as you can imagine!

                                                      All the best,

                                                      Jenny

                                                      Owl
                                                      Participant

                                                        Al, good to hear that your scans went so well! Your positive attitude will help keeping and fighting the last stubborn mets in your brain.

                                                        We got a call from the clinic yesterday, they have doublechecked the scan results of my husband with the radiologists and they had great news (the report was kind of hard to read even for the doctors). The radiologists can not see that any of the lymphnodes, no bigger than 6mm, are still suspect, means he is some kind of NED. We are more than happy as you can imagine!

                                                        All the best,

                                                        Jenny

                                                        randallgford
                                                        Participant

                                                          Love your posts. My husband also had first scans after being on Z for 7 weeks, also had WBR. His larger brain met shrunk, small one went away, remaing are very small and stable. His body scans also show significant regression of disease, and we are cautiously optimistic. He also has a very positive mental attitude, its finally starting to rub off on me. Thanks for your encouraging news, hope to join you as a long time responder to Z.

                                                          randallgford
                                                          Participant

                                                            Love your posts. My husband also had first scans after being on Z for 7 weeks, also had WBR. His larger brain met shrunk, small one went away, remaing are very small and stable. His body scans also show significant regression of disease, and we are cautiously optimistic. He also has a very positive mental attitude, its finally starting to rub off on me. Thanks for your encouraging news, hope to join you as a long time responder to Z.

                                                            randallgford
                                                            Participant

                                                              Love your posts. My husband also had first scans after being on Z for 7 weeks, also had WBR. His larger brain met shrunk, small one went away, remaing are very small and stable. His body scans also show significant regression of disease, and we are cautiously optimistic. He also has a very positive mental attitude, its finally starting to rub off on me. Thanks for your encouraging news, hope to join you as a long time responder to Z.

                                                              HelenK1
                                                              Participant

                                                                To Al and randallgford–

                                                                   Your good news and determination have really cheered me.  Congratulations on that wonderful news.

                                                                   I wondered if your Zelboraf course of treatment has been a daily dosage, or the purposely interrupted schedule of # of days on meds, # of days off?  Also, did you work up to the dosage or was the dosage always the same, and what was the dosage?

                                                                   Lots of questions but this information would be helpful to me.  Thanks very much.

                                                                  

                                                                HelenK1
                                                                Participant

                                                                  To Al and randallgford–

                                                                     Your good news and determination have really cheered me.  Congratulations on that wonderful news.

                                                                     I wondered if your Zelboraf course of treatment has been a daily dosage, or the purposely interrupted schedule of # of days on meds, # of days off?  Also, did you work up to the dosage or was the dosage always the same, and what was the dosage?

                                                                     Lots of questions but this information would be helpful to me.  Thanks very much.

                                                                    

                                                                  HelenK1
                                                                  Participant

                                                                    To Al and randallgford–

                                                                       Your good news and determination have really cheered me.  Congratulations on that wonderful news.

                                                                       I wondered if your Zelboraf course of treatment has been a daily dosage, or the purposely interrupted schedule of # of days on meds, # of days off?  Also, did you work up to the dosage or was the dosage always the same, and what was the dosage?

                                                                       Lots of questions but this information would be helpful to me.  Thanks very much.

                                                                      

                                                                    Tina D
                                                                    Participant

                                                                      Al,

                                                                      Glad to hear the good news of things remaining stable and nothing new! I always look forward to seeing your posts, and I am so glad to hear things are going well.

                                                                      Tina

                                                                      Tina D
                                                                      Participant

                                                                        Al,

                                                                        Glad to hear the good news of things remaining stable and nothing new! I always look forward to seeing your posts, and I am so glad to hear things are going well.

                                                                        Tina

                                                                        Tina D
                                                                        Participant

                                                                          Al,

                                                                          Glad to hear the good news of things remaining stable and nothing new! I always look forward to seeing your posts, and I am so glad to hear things are going well.

                                                                          Tina

                                                                          Snickers60
                                                                          Participant

                                                                            Good news, AL !   I forget where your medical treatment is ?  I think MDA won't have Pd-1 until perhaps July or Aug. also.  

                                                                            Here's hoping they can get something going to STOP those brain mets.   I don't like them !   Wayne keeps up with you on a regular basis.    

                                                                            KEEP ON FIGHTING THE BEAST, AL !   You are WINNING !    KEEP THE FAITH !

                                                                            Snickers60
                                                                            Participant

                                                                              Good news, AL !   I forget where your medical treatment is ?  I think MDA won't have Pd-1 until perhaps July or Aug. also.  

                                                                              Here's hoping they can get something going to STOP those brain mets.   I don't like them !   Wayne keeps up with you on a regular basis.    

                                                                              KEEP ON FIGHTING THE BEAST, AL !   You are WINNING !    KEEP THE FAITH !

                                                                              Snickers60
                                                                              Participant

                                                                                Good news, AL !   I forget where your medical treatment is ?  I think MDA won't have Pd-1 until perhaps July or Aug. also.  

                                                                                Here's hoping they can get something going to STOP those brain mets.   I don't like them !   Wayne keeps up with you on a regular basis.    

                                                                                KEEP ON FIGHTING THE BEAST, AL !   You are WINNING !    KEEP THE FAITH !

                                                                                POW
                                                                                Participant

                                                                                  That's very good news, Al! I love the conservative approach where if your brain mets are stable and not causing any symptoms, leave them alone. Very wise. I'm also intrigued by the possibility of you switching to dabrafenib when it becomes available. Who knows? That may be just the ticket to kick those stubborn brain mets out the door.

                                                                                  Keep fighting the good fight. You're doing great!

                                                                                  POW
                                                                                  Participant

                                                                                    That's very good news, Al! I love the conservative approach where if your brain mets are stable and not causing any symptoms, leave them alone. Very wise. I'm also intrigued by the possibility of you switching to dabrafenib when it becomes available. Who knows? That may be just the ticket to kick those stubborn brain mets out the door.

                                                                                    Keep fighting the good fight. You're doing great!

                                                                                    POW
                                                                                    Participant

                                                                                      That's very good news, Al! I love the conservative approach where if your brain mets are stable and not causing any symptoms, leave them alone. Very wise. I'm also intrigued by the possibility of you switching to dabrafenib when it becomes available. Who knows? That may be just the ticket to kick those stubborn brain mets out the door.

                                                                                      Keep fighting the good fight. You're doing great!

                                                                                      Linny
                                                                                      Participant

                                                                                        I ran into the same problem, Richard! LOL

                                                                                        Linny
                                                                                        Participant

                                                                                          I ran into the same problem, Richard! LOL

                                                                                          Linny
                                                                                          Participant

                                                                                            I ran into the same problem, Richard! LOL

                                                                                            aldakota22
                                                                                            Participant

                                                                                              Helen K,  to answer your quetions. My dosage is full dose from day one.That is 4 pills (240mg ) in morning ,then 4 pills at 12 hours later.No break in  treatment for over 21 months now.Any other questions you have just ask.Beat the Beast.   Al

                                                                                              aldakota22
                                                                                              Participant

                                                                                                Helen K,  to answer your quetions. My dosage is full dose from day one.That is 4 pills (240mg ) in morning ,then 4 pills at 12 hours later.No break in  treatment for over 21 months now.Any other questions you have just ask.Beat the Beast.   Al

                                                                                                aldakota22
                                                                                                Participant

                                                                                                  Helen K,  to answer your quetions. My dosage is full dose from day one.That is 4 pills (240mg ) in morning ,then 4 pills at 12 hours later.No break in  treatment for over 21 months now.Any other questions you have just ask.Beat the Beast.   Al

                                                                                                  HelenK1
                                                                                                  Participant

                                                                                                    Thanks so much, Al, for the information.  This helps a lot.

                                                                                                    Helen

                                                                                                    HelenK1
                                                                                                    Participant

                                                                                                      Thanks so much, Al, for the information.  This helps a lot.

                                                                                                      Helen

                                                                                                      HelenK1
                                                                                                      Participant

                                                                                                        Thanks so much, Al, for the information.  This helps a lot.

                                                                                                        Helen

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