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Sweats

  • Post
    SOLE
    Participant

      Hi everyone

      I have come across conflicting evidence concerning sweats and melanoma.

      So let me ask you this:

      Do you experience day sweats and/or night sweats?

      Under immunotherapy or not?

      Are those severe sweats like lymphoma cancer patients?

      Have you been able to link your sweats to recurrence or met apparitions or else?

      Thanks

      I have had mild night sweats for the last two weeks and maybe a few times in september and I wonder if it is linked to the metabolic activity of melanoma

    Viewing 23 reply threads
    • Replies
        debwray
        Participant

          Hi Sole,

          Most obvious cause of this for you is as a side effect of  the antidepressant- Do the timings fit ?Think it is very common.

          Might be more concerned  in 2 years if this suddenly started but not for you right now.

          Cheers Deb

           

          debwray
          Participant

            Hi Sole,

            Most obvious cause of this for you is as a side effect of  the antidepressant- Do the timings fit ?Think it is very common.

            Might be more concerned  in 2 years if this suddenly started but not for you right now.

            Cheers Deb

             

              SOLE
              Participant

                The september night sweats do not fit so that's why I inquire. I have stopped my antidepressants 3 days ago and I still get them at night…

                Janner
                Participant

                  I had side effects 6 weeks after coming off antidepressants.  3 days is nothing.  You need to relax a little – not easy to do when newly diagnosed.  But not everything is melanoma even though it seems it is.

                  Janner
                  Participant

                    I had side effects 6 weeks after coming off antidepressants.  3 days is nothing.  You need to relax a little – not easy to do when newly diagnosed.  But not everything is melanoma even though it seems it is.

                    Janner
                    Participant

                      I had side effects 6 weeks after coming off antidepressants.  3 days is nothing.  You need to relax a little – not easy to do when newly diagnosed.  But not everything is melanoma even though it seems it is.

                      SOLE
                      Participant

                        The september night sweats do not fit so that's why I inquire. I have stopped my antidepressants 3 days ago and I still get them at night…

                        SOLE
                        Participant

                          The september night sweats do not fit so that's why I inquire. I have stopped my antidepressants 3 days ago and I still get them at night…

                        debwray
                        Participant

                          Hi Sole,

                          Most obvious cause of this for you is as a side effect of  the antidepressant- Do the timings fit ?Think it is very common.

                          Might be more concerned  in 2 years if this suddenly started but not for you right now.

                          Cheers Deb

                           

                          Bubbles
                          Participant

                            Honey,

                            You are going to have to breathe and have some acceptance of your situation. It sucks. It's bad.  I am sorry that you or anybody else has to deal with any melanoma diagnosis. BUT…do you really want to GIVE your life to melanoma before it takes your life? Melanoma is NOT associated with night sweats. It is not tuberculosis or lymphoma. That is not one of its signs. Most folks who advance to Stage IV rarely have signs or symptom of any sort. Sorry. Again. But, it is true. You might progress to Stage IV. Should you do so, you will have better treatment options than at any other time in the history of melanoma. You may live to a very old age with Stage III melanoma. However, just like the rest of us…there is no crystal ball that will tell you how it is all going to turn out.

                            However, you could look to THIS guy for some inspiration:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/thisis-how-you-fight-cancer.html

                            Or perhaps the words written here…partly with you in mind…..http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/i-know-but-live.html

                            If you were really on your death bed tomorrow….would you want your last days, weeks, or months spent the way you have been spending your time recently? I'm positive the answer is no. So….do differently. It is not easy. It is hard to live with melanoma. But, you can. So…do it. LIVE. Focus outward…on those you love, on the important things and causes you cherish. CHOOSE life. It is brief…for all of us.

                            Timshel. I wish you well. Celeste

                              SOLE
                              Participant

                                Celeste,

                                While this is all still very difficult for me as you can see, all I'm really trying to do is to find answers from this community. For that, I thank you. You are s long time NED survivor and your wisdom is so much appreciated.

                                At the moment, I am not only challenged by the diagnostic but also by the total lack of support from the medical side. Our health system in Quebec (Canada) is really failing us and my onco surgeon has postponed our follow up appt for the third time now. My oncologist was not interested in analyzing my case beyond what the book says, no team effort, only comment being we dont know your real stage because you havent done the CLND yet so… She did not want to be supportive and that is here choice. But from the beginning I am desperately seeking for a solid team, one that cares about me beyond the simple medical act. And I have not found it yet and I struggle and I try to gather as much information as possible from all sources possible because I want to go on living what it left fot me. But with open eyes. You are blessed in the US to have more choices than what is provided here in Canada.

                                I do not whine about my situation, I simply am looking for answers that are not given to me by my "medical staff".

                                Of course I am in the process of changing my whole team but it's not easy here.

                                Thanks to all for your support.

                                SOLE
                                Participant

                                  Celeste,

                                  While this is all still very difficult for me as you can see, all I'm really trying to do is to find answers from this community. For that, I thank you. You are s long time NED survivor and your wisdom is so much appreciated.

                                  At the moment, I am not only challenged by the diagnostic but also by the total lack of support from the medical side. Our health system in Quebec (Canada) is really failing us and my onco surgeon has postponed our follow up appt for the third time now. My oncologist was not interested in analyzing my case beyond what the book says, no team effort, only comment being we dont know your real stage because you havent done the CLND yet so… She did not want to be supportive and that is here choice. But from the beginning I am desperately seeking for a solid team, one that cares about me beyond the simple medical act. And I have not found it yet and I struggle and I try to gather as much information as possible from all sources possible because I want to go on living what it left fot me. But with open eyes. You are blessed in the US to have more choices than what is provided here in Canada.

                                  I do not whine about my situation, I simply am looking for answers that are not given to me by my "medical staff".

                                  Of course I am in the process of changing my whole team but it's not easy here.

                                  Thanks to all for your support.

                                  SOLE
                                  Participant

                                    Celeste,

                                    While this is all still very difficult for me as you can see, all I'm really trying to do is to find answers from this community. For that, I thank you. You are s long time NED survivor and your wisdom is so much appreciated.

                                    At the moment, I am not only challenged by the diagnostic but also by the total lack of support from the medical side. Our health system in Quebec (Canada) is really failing us and my onco surgeon has postponed our follow up appt for the third time now. My oncologist was not interested in analyzing my case beyond what the book says, no team effort, only comment being we dont know your real stage because you havent done the CLND yet so… She did not want to be supportive and that is here choice. But from the beginning I am desperately seeking for a solid team, one that cares about me beyond the simple medical act. And I have not found it yet and I struggle and I try to gather as much information as possible from all sources possible because I want to go on living what it left fot me. But with open eyes. You are blessed in the US to have more choices than what is provided here in Canada.

                                    I do not whine about my situation, I simply am looking for answers that are not given to me by my "medical staff".

                                    Of course I am in the process of changing my whole team but it's not easy here.

                                    Thanks to all for your support.

                                    Bubbles
                                    Participant

                                      A melanoma diagnosis (at any level) immediately produces stress and fear….of course!  And….melanoma care is complicated and conflicted…no matter where you live!!  And….all of us long timers here advocate seeking out a melanoma specialist, with as many second opinions as it takes to get a plan that the individual is comfortable with, no matter what.  Linny has given you some Canadian options.  Ed is a Canadian mouse (melanoma trial particepant) who has also given you good advice. Looking for answers…and finding them…is essential in melanoma, and most other illnesses.  This board will be a great source of info and support for you.  I have never thought or said you have been whining.  I am only encouraging you to breathe and live….cause you are most likely going to have a very long and productive life WITH melanoma.  So…. all of us….myself included…do better when we make sure to appreciate our days…even when they are filled wth the great big green hairy wizard balls that belong to melanoma.  You will get through this.  Your days will get better.  Yours, c

                                      Bubbles
                                      Participant

                                        A melanoma diagnosis (at any level) immediately produces stress and fear….of course!  And….melanoma care is complicated and conflicted…no matter where you live!!  And….all of us long timers here advocate seeking out a melanoma specialist, with as many second opinions as it takes to get a plan that the individual is comfortable with, no matter what.  Linny has given you some Canadian options.  Ed is a Canadian mouse (melanoma trial particepant) who has also given you good advice. Looking for answers…and finding them…is essential in melanoma, and most other illnesses.  This board will be a great source of info and support for you.  I have never thought or said you have been whining.  I am only encouraging you to breathe and live….cause you are most likely going to have a very long and productive life WITH melanoma.  So…. all of us….myself included…do better when we make sure to appreciate our days…even when they are filled wth the great big green hairy wizard balls that belong to melanoma.  You will get through this.  Your days will get better.  Yours, c

                                        Bubbles
                                        Participant

                                          A melanoma diagnosis (at any level) immediately produces stress and fear….of course!  And….melanoma care is complicated and conflicted…no matter where you live!!  And….all of us long timers here advocate seeking out a melanoma specialist, with as many second opinions as it takes to get a plan that the individual is comfortable with, no matter what.  Linny has given you some Canadian options.  Ed is a Canadian mouse (melanoma trial particepant) who has also given you good advice. Looking for answers…and finding them…is essential in melanoma, and most other illnesses.  This board will be a great source of info and support for you.  I have never thought or said you have been whining.  I am only encouraging you to breathe and live….cause you are most likely going to have a very long and productive life WITH melanoma.  So…. all of us….myself included…do better when we make sure to appreciate our days…even when they are filled wth the great big green hairy wizard balls that belong to melanoma.  You will get through this.  Your days will get better.  Yours, c

                                        Bubbles
                                        Participant

                                          Honey,

                                          You are going to have to breathe and have some acceptance of your situation. It sucks. It's bad.  I am sorry that you or anybody else has to deal with any melanoma diagnosis. BUT…do you really want to GIVE your life to melanoma before it takes your life? Melanoma is NOT associated with night sweats. It is not tuberculosis or lymphoma. That is not one of its signs. Most folks who advance to Stage IV rarely have signs or symptom of any sort. Sorry. Again. But, it is true. You might progress to Stage IV. Should you do so, you will have better treatment options than at any other time in the history of melanoma. You may live to a very old age with Stage III melanoma. However, just like the rest of us…there is no crystal ball that will tell you how it is all going to turn out.

                                          However, you could look to THIS guy for some inspiration:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/thisis-how-you-fight-cancer.html

                                          Or perhaps the words written here…partly with you in mind…..http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/i-know-but-live.html

                                          If you were really on your death bed tomorrow….would you want your last days, weeks, or months spent the way you have been spending your time recently? I'm positive the answer is no. So….do differently. It is not easy. It is hard to live with melanoma. But, you can. So…do it. LIVE. Focus outward…on those you love, on the important things and causes you cherish. CHOOSE life. It is brief…for all of us.

                                          Timshel. I wish you well. Celeste

                                          Bubbles
                                          Participant

                                            Honey,

                                            You are going to have to breathe and have some acceptance of your situation. It sucks. It's bad.  I am sorry that you or anybody else has to deal with any melanoma diagnosis. BUT…do you really want to GIVE your life to melanoma before it takes your life? Melanoma is NOT associated with night sweats. It is not tuberculosis or lymphoma. That is not one of its signs. Most folks who advance to Stage IV rarely have signs or symptom of any sort. Sorry. Again. But, it is true. You might progress to Stage IV. Should you do so, you will have better treatment options than at any other time in the history of melanoma. You may live to a very old age with Stage III melanoma. However, just like the rest of us…there is no crystal ball that will tell you how it is all going to turn out.

                                            However, you could look to THIS guy for some inspiration:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/thisis-how-you-fight-cancer.html

                                            Or perhaps the words written here…partly with you in mind…..http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/i-know-but-live.html

                                            If you were really on your death bed tomorrow….would you want your last days, weeks, or months spent the way you have been spending your time recently? I'm positive the answer is no. So….do differently. It is not easy. It is hard to live with melanoma. But, you can. So…do it. LIVE. Focus outward…on those you love, on the important things and causes you cherish. CHOOSE life. It is brief…for all of us.

                                            Timshel. I wish you well. Celeste

                                            Linny
                                            Participant

                                              Sweats can happen for any reason. You can relax. Just because you have melanoma doesn't mean your body stops going through its normal paces. Odds are very good that it's the stress you're currently under that's giving you sweats.

                                              You sound so much like I did over 5 years ago. Except for one main difference: you were brave enough to seek out a forum and ask questions. I could not even do that. That's how freaked out I was about my diagnosis. I was hypersensitive about every single litte twinge I felt in my body. 

                                              The best thing a friend of mine told me was that this diagnosis represented a change to my regular routine. Learning a new routine can be scary as an adult. Once the new routine set in and I adapted, I was fine. Piece of cake!

                                              Right now what you need is feeling like you've regained some control. In another post you stated how upset you were after the doctor visit. Get a second opinion. Get a third one if the second one doesn't pan out. Make sure you are seeing a melanoma specialist and not a general oncologist. This means going to facility with a department and doctors dedicated to melanoma. These folks deal with melanoma every day and will be the most up to speed on treatments and treatment developments. They also will be more likely to have a decent clinical trial. I provided you with a list of facilities in Canada, one of which was in Quebec. I don't know much about these places. I've read notes on forums where folks have gone to Princess Margaret in Toronto and seem to be pleased with how they were treated over there.

                                              Finding a doctor and facility with whom you will feel comfortable is a first step to getting some control back in your life.

                                               

                                               

                                              Linny
                                              Participant

                                                Sweats can happen for any reason. You can relax. Just because you have melanoma doesn't mean your body stops going through its normal paces. Odds are very good that it's the stress you're currently under that's giving you sweats.

                                                You sound so much like I did over 5 years ago. Except for one main difference: you were brave enough to seek out a forum and ask questions. I could not even do that. That's how freaked out I was about my diagnosis. I was hypersensitive about every single litte twinge I felt in my body. 

                                                The best thing a friend of mine told me was that this diagnosis represented a change to my regular routine. Learning a new routine can be scary as an adult. Once the new routine set in and I adapted, I was fine. Piece of cake!

                                                Right now what you need is feeling like you've regained some control. In another post you stated how upset you were after the doctor visit. Get a second opinion. Get a third one if the second one doesn't pan out. Make sure you are seeing a melanoma specialist and not a general oncologist. This means going to facility with a department and doctors dedicated to melanoma. These folks deal with melanoma every day and will be the most up to speed on treatments and treatment developments. They also will be more likely to have a decent clinical trial. I provided you with a list of facilities in Canada, one of which was in Quebec. I don't know much about these places. I've read notes on forums where folks have gone to Princess Margaret in Toronto and seem to be pleased with how they were treated over there.

                                                Finding a doctor and facility with whom you will feel comfortable is a first step to getting some control back in your life.

                                                 

                                                 

                                                Linny
                                                Participant

                                                  Sweats can happen for any reason. You can relax. Just because you have melanoma doesn't mean your body stops going through its normal paces. Odds are very good that it's the stress you're currently under that's giving you sweats.

                                                  You sound so much like I did over 5 years ago. Except for one main difference: you were brave enough to seek out a forum and ask questions. I could not even do that. That's how freaked out I was about my diagnosis. I was hypersensitive about every single litte twinge I felt in my body. 

                                                  The best thing a friend of mine told me was that this diagnosis represented a change to my regular routine. Learning a new routine can be scary as an adult. Once the new routine set in and I adapted, I was fine. Piece of cake!

                                                  Right now what you need is feeling like you've regained some control. In another post you stated how upset you were after the doctor visit. Get a second opinion. Get a third one if the second one doesn't pan out. Make sure you are seeing a melanoma specialist and not a general oncologist. This means going to facility with a department and doctors dedicated to melanoma. These folks deal with melanoma every day and will be the most up to speed on treatments and treatment developments. They also will be more likely to have a decent clinical trial. I provided you with a list of facilities in Canada, one of which was in Quebec. I don't know much about these places. I've read notes on forums where folks have gone to Princess Margaret in Toronto and seem to be pleased with how they were treated over there.

                                                  Finding a doctor and facility with whom you will feel comfortable is a first step to getting some control back in your life.

                                                   

                                                   

                                                  Hukill
                                                  Participant

                                                    I am on ipi/nivo combo and ran fever for 6 weeks which would cycle through the following, fever with the worse chiils ever followed by horrible sweats and a short (1 hour or so) period of no fever and then it would cycle again, The sweats were so bad that I slept on a cot with a plastic pad and a stack of sheets next to the cot. When one sheet was soaked I would toss it aside and put a new sheet on. The chills were so bad that I would sit in my truck during lunch and run the heater in S. Texas in July or sit in my hot tub shivering. No fever or sweats for about 5 weeks and no sweats before starting treatment.

                                                    Hukill
                                                    Participant

                                                      I am on ipi/nivo combo and ran fever for 6 weeks which would cycle through the following, fever with the worse chiils ever followed by horrible sweats and a short (1 hour or so) period of no fever and then it would cycle again, The sweats were so bad that I slept on a cot with a plastic pad and a stack of sheets next to the cot. When one sheet was soaked I would toss it aside and put a new sheet on. The chills were so bad that I would sit in my truck during lunch and run the heater in S. Texas in July or sit in my hot tub shivering. No fever or sweats for about 5 weeks and no sweats before starting treatment.

                                                      Hukill
                                                      Participant

                                                        I am on ipi/nivo combo and ran fever for 6 weeks which would cycle through the following, fever with the worse chiils ever followed by horrible sweats and a short (1 hour or so) period of no fever and then it would cycle again, The sweats were so bad that I slept on a cot with a plastic pad and a stack of sheets next to the cot. When one sheet was soaked I would toss it aside and put a new sheet on. The chills were so bad that I would sit in my truck during lunch and run the heater in S. Texas in July or sit in my hot tub shivering. No fever or sweats for about 5 weeks and no sweats before starting treatment.

                                                        Mat
                                                        Participant

                                                          I hate to be a contranian here, but I did have (somewhat drenching) night sweats at the time of my Stage IV diagnosis and until I started my initial treatment (BRAF-MEK).  I had a heavy tumor burden generally and specifically in my liver.  I recall my onc opining that the night sweats were related to my liver tumors.  On treatment (nivo, following ipi-nivo) I still get occasional mild night sweats, but nothing like the ones I had at diagnosis.

                                                          Mat
                                                          Participant

                                                            I hate to be a contranian here, but I did have (somewhat drenching) night sweats at the time of my Stage IV diagnosis and until I started my initial treatment (BRAF-MEK).  I had a heavy tumor burden generally and specifically in my liver.  I recall my onc opining that the night sweats were related to my liver tumors.  On treatment (nivo, following ipi-nivo) I still get occasional mild night sweats, but nothing like the ones I had at diagnosis.

                                                            Mat
                                                            Participant

                                                              I hate to be a contranian here, but I did have (somewhat drenching) night sweats at the time of my Stage IV diagnosis and until I started my initial treatment (BRAF-MEK).  I had a heavy tumor burden generally and specifically in my liver.  I recall my onc opining that the night sweats were related to my liver tumors.  On treatment (nivo, following ipi-nivo) I still get occasional mild night sweats, but nothing like the ones I had at diagnosis.

                                                                Nanners10
                                                                Participant
                                                                  I am also from Canada. Dr. Hogg is the top melanoma expert in the area. He works out of Toronto. But that being said there aren’t many choices for you at your stage.

                                                                  Not to worry you unecessarily, but I did experience night sweats before each of my recurrences. In fact I had made several appts with my family Dr. About these sweats prior to my first recurrence (which was 12 years after my WLE) to determine if it was an early change of life. I didn’t know at the time if it was a correlation to the recurrence but then when I recurred again 20 months later, I had experienced those same night sweats again. They went away both times once I was again cancer free.

                                                                  No, we can’t blame everything on melanoma but being diligent isn’t a bad idea.

                                                                  Wishing you well!
                                                                  Nancy

                                                                  Nanners10
                                                                  Participant
                                                                    I am also from Canada. Dr. Hogg is the top melanoma expert in the area. He works out of Toronto. But that being said there aren’t many choices for you at your stage.

                                                                    Not to worry you unecessarily, but I did experience night sweats before each of my recurrences. In fact I had made several appts with my family Dr. About these sweats prior to my first recurrence (which was 12 years after my WLE) to determine if it was an early change of life. I didn’t know at the time if it was a correlation to the recurrence but then when I recurred again 20 months later, I had experienced those same night sweats again. They went away both times once I was again cancer free.

                                                                    No, we can’t blame everything on melanoma but being diligent isn’t a bad idea.

                                                                    Wishing you well!
                                                                    Nancy

                                                                    Nanners10
                                                                    Participant
                                                                      I am also from Canada. Dr. Hogg is the top melanoma expert in the area. He works out of Toronto. But that being said there aren’t many choices for you at your stage.

                                                                      Not to worry you unecessarily, but I did experience night sweats before each of my recurrences. In fact I had made several appts with my family Dr. About these sweats prior to my first recurrence (which was 12 years after my WLE) to determine if it was an early change of life. I didn’t know at the time if it was a correlation to the recurrence but then when I recurred again 20 months later, I had experienced those same night sweats again. They went away both times once I was again cancer free.

                                                                      No, we can’t blame everything on melanoma but being diligent isn’t a bad idea.

                                                                      Wishing you well!
                                                                      Nancy

                                                                      SOLE
                                                                      Participant

                                                                        Thank you Nancy.

                                                                        That is what I read elsewhere too about sweats and recurrences.

                                                                        Can you be more specific about the level of sweating? Mild, moderate, severe (lymphoma like)? Did you experience chills after? Did you have to change clothing or sheets after? Did you have them only at night or during daytime also?

                                                                        For clarity, were your recurrences local or in transit and not distant mets?

                                                                        Also, did you experience them every night? How many consecutive nights? Days, weeks, months? 

                                                                        I realize that sweats happen for many different reasons including medication but if there are warning signs out there to look for, I think it is only fair to be warned.

                                                                        Waiting for more precisions from you

                                                                        SOLE
                                                                        Participant

                                                                          Thank you Nancy.

                                                                          That is what I read elsewhere too about sweats and recurrences.

                                                                          Can you be more specific about the level of sweating? Mild, moderate, severe (lymphoma like)? Did you experience chills after? Did you have to change clothing or sheets after? Did you have them only at night or during daytime also?

                                                                          For clarity, were your recurrences local or in transit and not distant mets?

                                                                          Also, did you experience them every night? How many consecutive nights? Days, weeks, months? 

                                                                          I realize that sweats happen for many different reasons including medication but if there are warning signs out there to look for, I think it is only fair to be warned.

                                                                          Waiting for more precisions from you

                                                                          SOLE
                                                                          Participant

                                                                            Thank you Nancy.

                                                                            That is what I read elsewhere too about sweats and recurrences.

                                                                            Can you be more specific about the level of sweating? Mild, moderate, severe (lymphoma like)? Did you experience chills after? Did you have to change clothing or sheets after? Did you have them only at night or during daytime also?

                                                                            For clarity, were your recurrences local or in transit and not distant mets?

                                                                            Also, did you experience them every night? How many consecutive nights? Days, weeks, months? 

                                                                            I realize that sweats happen for many different reasons including medication but if there are warning signs out there to look for, I think it is only fair to be warned.

                                                                            Waiting for more precisions from you

                                                                            Nanners10
                                                                            Participant
                                                                              The sweating was pretty intense, night shirt soaked through. Always around my neck and chest. I did have chills after and needed to change the pillowcase. They were only ever at night. Both recurrences were to regional lymph nodes. I experienced them most nights but not every night. Maybe 3-5 times a week. I am currently over half way done interferon (no judgement please) and am experiencing day and night “hot flashes”. These are quite different than what I experienced before and know that they are related to the medication.

                                                                              Nancy

                                                                              Nanners10
                                                                              Participant
                                                                                The sweating was pretty intense, night shirt soaked through. Always around my neck and chest. I did have chills after and needed to change the pillowcase. They were only ever at night. Both recurrences were to regional lymph nodes. I experienced them most nights but not every night. Maybe 3-5 times a week. I am currently over half way done interferon (no judgement please) and am experiencing day and night “hot flashes”. These are quite different than what I experienced before and know that they are related to the medication.

                                                                                Nancy

                                                                                Nanners10
                                                                                Participant
                                                                                  The sweating was pretty intense, night shirt soaked through. Always around my neck and chest. I did have chills after and needed to change the pillowcase. They were only ever at night. Both recurrences were to regional lymph nodes. I experienced them most nights but not every night. Maybe 3-5 times a week. I am currently over half way done interferon (no judgement please) and am experiencing day and night “hot flashes”. These are quite different than what I experienced before and know that they are related to the medication.

                                                                                  Nancy

                                                                                  SOLE
                                                                                  Participant

                                                                                    Thanks a lot Nancy

                                                                                    If I may again; so you had those night sweats for how long before you were able to find your recurrences?

                                                                                    No judgment on what you feel is best for you! Best of luck!

                                                                                    SOLE
                                                                                    Participant

                                                                                      Thanks a lot Nancy

                                                                                      If I may again; so you had those night sweats for how long before you were able to find your recurrences?

                                                                                      No judgment on what you feel is best for you! Best of luck!

                                                                                      SOLE
                                                                                      Participant

                                                                                        Thanks a lot Nancy

                                                                                        If I may again; so you had those night sweats for how long before you were able to find your recurrences?

                                                                                        No judgment on what you feel is best for you! Best of luck!

                                                                                        Nanners10
                                                                                        Participant
                                                                                          I couldn’t say for sure the first time around because melanoma was so far out of my mind that I didn’t correlate the two. The second time it wasn’t long but I was being scanned frequently with the trial that I was on so it was noticed very quickly.
                                                                                          Nanners10
                                                                                          Participant
                                                                                            I couldn’t say for sure the first time around because melanoma was so far out of my mind that I didn’t correlate the two. The second time it wasn’t long but I was being scanned frequently with the trial that I was on so it was noticed very quickly.
                                                                                            Nanners10
                                                                                            Participant
                                                                                              I couldn’t say for sure the first time around because melanoma was so far out of my mind that I didn’t correlate the two. The second time it wasn’t long but I was being scanned frequently with the trial that I was on so it was noticed very quickly.
                                                                                              SOLE
                                                                                              Participant

                                                                                                So it's probably fair to say that the second time around for you, you noticed your recurrence weeks after having those night sweats; maybe a few months like one to three maybe?

                                                                                                SOLE
                                                                                                Participant

                                                                                                  So it's probably fair to say that the second time around for you, you noticed your recurrence weeks after having those night sweats; maybe a few months like one to three maybe?

                                                                                                  SOLE
                                                                                                  Participant

                                                                                                    So it's probably fair to say that the second time around for you, you noticed your recurrence weeks after having those night sweats; maybe a few months like one to three maybe?

                                                                                                  cancersnewnormal
                                                                                                  Participant

                                                                                                    Hate to toss another monkey wrench onto the pile, but I'm kind of in Mat's boat. I did have severe night sweats, beginning at 38 years old. Unlike Mat… I'm female… soooooo… doc's pinned it on "pre-menopausal". Really? At 38? In their defense, they did only occur for the few days leading up to my very regular monthly cycle. I had them for years and years… stage IV diagnosis came at 44. Sweats continued until I started Pembro. It could be entirely coincidental that the Pembro knocked something back inline with my hormonal balance. It could also be that I was put on thyroid meds due to the damage that 4 rounds of Ipi did. Perhaps the synthroid meds put the hormones back in balance? I can't say for sure. I only know that since I've gone NED, the "pre-menopausal" **eye roll** night sweats have disappeared. And even dealing with stage IV melanoma, my body reminds me every 26 days… to the day… that I am still quite fertile. Ugh. It is nice not to be soaking the sheets and my jammies anymore. 

                                                                                                    cancersnewnormal
                                                                                                    Participant

                                                                                                      Hate to toss another monkey wrench onto the pile, but I'm kind of in Mat's boat. I did have severe night sweats, beginning at 38 years old. Unlike Mat… I'm female… soooooo… doc's pinned it on "pre-menopausal". Really? At 38? In their defense, they did only occur for the few days leading up to my very regular monthly cycle. I had them for years and years… stage IV diagnosis came at 44. Sweats continued until I started Pembro. It could be entirely coincidental that the Pembro knocked something back inline with my hormonal balance. It could also be that I was put on thyroid meds due to the damage that 4 rounds of Ipi did. Perhaps the synthroid meds put the hormones back in balance? I can't say for sure. I only know that since I've gone NED, the "pre-menopausal" **eye roll** night sweats have disappeared. And even dealing with stage IV melanoma, my body reminds me every 26 days… to the day… that I am still quite fertile. Ugh. It is nice not to be soaking the sheets and my jammies anymore. 

                                                                                                      cancersnewnormal
                                                                                                      Participant

                                                                                                        Hate to toss another monkey wrench onto the pile, but I'm kind of in Mat's boat. I did have severe night sweats, beginning at 38 years old. Unlike Mat… I'm female… soooooo… doc's pinned it on "pre-menopausal". Really? At 38? In their defense, they did only occur for the few days leading up to my very regular monthly cycle. I had them for years and years… stage IV diagnosis came at 44. Sweats continued until I started Pembro. It could be entirely coincidental that the Pembro knocked something back inline with my hormonal balance. It could also be that I was put on thyroid meds due to the damage that 4 rounds of Ipi did. Perhaps the synthroid meds put the hormones back in balance? I can't say for sure. I only know that since I've gone NED, the "pre-menopausal" **eye roll** night sweats have disappeared. And even dealing with stage IV melanoma, my body reminds me every 26 days… to the day… that I am still quite fertile. Ugh. It is nice not to be soaking the sheets and my jammies anymore. 

                                                                                                        Mamapegela
                                                                                                        Participant

                                                                                                          It seems like night sweats are indeed a sign of progression of melanoma in some people.  I am a little reluctant honestly to come here to this forum with some of my fears and concerns due to the kind of "talking to" that this person got when she was asking a sincere and valid question.  If you can't come here and get understanding and a kind listening ear where can you go?

                                                                                                          Mamapegela
                                                                                                          Participant

                                                                                                            It seems like night sweats are indeed a sign of progression of melanoma in some people.  I am a little reluctant honestly to come here to this forum with some of my fears and concerns due to the kind of "talking to" that this person got when she was asking a sincere and valid question.  If you can't come here and get understanding and a kind listening ear where can you go?

                                                                                                              Rosegargala
                                                                                                              Participant

                                                                                                                I had them too!! I do think they are connected with melanoma and lymph node involvement!! 

                                                                                                                Rosegargala
                                                                                                                Participant

                                                                                                                  I had them too!! I do think they are connected with melanoma and lymph node involvement!! 

                                                                                                                  Rosegargala
                                                                                                                  Participant

                                                                                                                    I had them too!! I do think they are connected with melanoma and lymph node involvement!! 

                                                                                                                    SOLE
                                                                                                                    Participant

                                                                                                                      Thank you Rose.

                                                                                                                      Drenched and severe?

                                                                                                                      SOLE
                                                                                                                      Participant

                                                                                                                        Thank you Rose.

                                                                                                                        Drenched and severe?

                                                                                                                        SOLE
                                                                                                                        Participant

                                                                                                                          Thank you Rose.

                                                                                                                          Drenched and severe?

                                                                                                                        Mamapegela
                                                                                                                        Participant

                                                                                                                          It seems like night sweats are indeed a sign of progression of melanoma in some people.  I am a little reluctant honestly to come here to this forum with some of my fears and concerns due to the kind of "talking to" that this person got when she was asking a sincere and valid question.  If you can't come here and get understanding and a kind listening ear where can you go?

                                                                                                                          SOLE
                                                                                                                          Participant

                                                                                                                            I think I can safely report back on my case so far. I have stopped having my mild night sweats two weeks ago. It somehow coincides in my case with me stopping my antidepressant meds.

                                                                                                                            I do experience sudden waking episodes during the night where a nightmare will wake me up a little sweaty. But no real night sweats thus far.

                                                                                                                            I too think that there is evidence of night sweats and recurrence of melanoma.

                                                                                                                            Let us be on the vigilant side and report these things when appropriate.

                                                                                                                            SOLE
                                                                                                                            Participant

                                                                                                                              I think I can safely report back on my case so far. I have stopped having my mild night sweats two weeks ago. It somehow coincides in my case with me stopping my antidepressant meds.

                                                                                                                              I do experience sudden waking episodes during the night where a nightmare will wake me up a little sweaty. But no real night sweats thus far.

                                                                                                                              I too think that there is evidence of night sweats and recurrence of melanoma.

                                                                                                                              Let us be on the vigilant side and report these things when appropriate.

                                                                                                                              SOLE
                                                                                                                              Participant

                                                                                                                                I think I can safely report back on my case so far. I have stopped having my mild night sweats two weeks ago. It somehow coincides in my case with me stopping my antidepressant meds.

                                                                                                                                I do experience sudden waking episodes during the night where a nightmare will wake me up a little sweaty. But no real night sweats thus far.

                                                                                                                                I too think that there is evidence of night sweats and recurrence of melanoma.

                                                                                                                                Let us be on the vigilant side and report these things when appropriate.

                                                                                                                                  cancersnewnormal
                                                                                                                                  Participant

                                                                                                                                    Glad to hear your night sweats have stopped… and that you have discovered a possible causitive factor. : ) Vigilance always! Better to be aware than caught off guard. Been there… done that. #thehardway

                                                                                                                                    cancersnewnormal
                                                                                                                                    Participant

                                                                                                                                      Glad to hear your night sweats have stopped… and that you have discovered a possible causitive factor. : ) Vigilance always! Better to be aware than caught off guard. Been there… done that. #thehardway

                                                                                                                                      cancersnewnormal
                                                                                                                                      Participant

                                                                                                                                        Glad to hear your night sweats have stopped… and that you have discovered a possible causitive factor. : ) Vigilance always! Better to be aware than caught off guard. Been there… done that. #thehardway

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