Still NED after nearly 3 years
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Still NED after nearly 3 years

› Forums › General Melanoma Community › Still NED after nearly 3 years

  • Post
    • September 12, 2019 at 10:06 pm
    Jubes
    Participant
    Hi All

    I’ve been neglecting you all as I have been juggling all my doctors appointments with work and FUN!! Just had CT and still NED. Hope this gives some hope to those struggling as I was given 6 months in 2014. My joint problems are improving after using humira for 12 months and we are even going to try going off it and see what happens. You will always be my family and I will never forget all the help and support I got from this site! Anne-Louise

Viewing 11 reply threads
  • Replies
      • September 13, 2019 at 12:17 am
      Casitas1
      Participant
      Yes! That’s what we like to hear! Congratulations on NED and less joint pain

      Best, Paul

      • September 13, 2019 at 1:44 am
      Bubbles
      Participant
      YAY!!!!!!!!!!!!!!!!!!!!!!!! That is all such wonderful news – NED, joints improving, work and PLAY!!! YAY indeed!!! Good luck going off Humira! I’ll be keeping my fingers crossed for you!! Big hugs!! love, les
      • September 13, 2019 at 2:20 am
      lkb
      Participant
      Inspiring and encouraging–thanks for posting!
      • September 13, 2019 at 12:13 pm
      marta010
      Participant
      So uplifting and encouraging! Glad you’re living life and that the pain is diminishing. Enjoy!
      Ann
      • September 13, 2019 at 12:40 pm
      SOLE
      Participant
      From a composer/conductor to a viola player (me to you!) beating melanoma is like being able to play (or conduct) the Rite of Spring by heart witout EVER missing a beat or a meter change, isn’t it? Anne-Louise, your 3 year NED aligns with mine although not from the same stage (4 for you and 2 for me) and although we’re heading towards fall here in Canada, you are headed towards spring in Australia and I woke up with a Clément Janequin SATB a capella piece I used to sing in my early years of learning called “Le chant des oiseaux “. You are that song! “Reveillez-vous, coeurs endormis, le Dieu d’amour vous sonne!” I wish I culd have meet with you back in 2017 when I was down under. Toutes mes félicitations!
      • September 13, 2019 at 3:05 pm
      Scooby123
      Participant
      Hi Jubes , so nice of you to drop in. So pleased you are still NED. I find working helps me live a normal life as can be. Taking one day at a time. Keep updating and enjoy your life.
      Scooby
      • September 14, 2019 at 2:06 am
      BillB
      Participant
      CONGRATS!!!!!!! Hope the joint pain also disappears.
      Bill
      • September 14, 2019 at 6:11 am
      MelMel
      Participant
      Congratulations and continued best wishes! Thank you for sharing such wonderful news.
      Melanie
      • September 14, 2019 at 2:13 pm
      Affected
      Participant
      Hi Jubes,

      Thank you so much for your post. It’s almost 3 months since my husband was diagnosed with melanoma, and it’s finally sunk in that there is hope. I have this forum to thank for this and all the people like you who take the time and trouble to post both the bad and the good. Thank you. Thank you. Thank you.

      May you continue to be busy with work and FUN for many more decades…
      Affected

      • September 16, 2019 at 3:24 pm
      MMH
      Participant
      Congratulations! I am so happy for you.

      MMH

      • September 17, 2019 at 9:00 pm
      ourvan
      Participant
      thank you for taking the time to report this great news, and may all good things continue. When I was first diagnosed and stumbled upon this forum, I was heartened to see hopeful posts and new possibilities. I know how much peace it brought me, and I’m sure that your news will bring peace to others finding their way here. Cheers!
      laurie
      • September 21, 2019 at 9:23 pm
      Jubes
      Participant
      Thank you all and much love!!
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