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Started B-RAF

Forums General Melanoma Community Started B-RAF

  • Post
    KellieSue
    Participant

    Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

    I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

    I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

    Here's hoping in 6 weeks I have at least stable scans!

    Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

    I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

    I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

    Here's hoping in 6 weeks I have at least stable scans!

    Kellie(from Iowa) Stage IV since June 2008 currently on B-RAF

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  • Replies
      King
      Participant

      Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      King
      Participant

      Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

      Stay Strong

      King

      Stage IV 7/05 Liver mets

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      lhaley
      Participant

      Kellie,

      Great news that you got the B-raf arm!!  This will be what works for you! 

      Linda

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        dawn dion
        Participant

        YEA!!! Kelly,

        I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

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        dawn dion
        Participant

        YEA!!! Kelly,

        I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

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      lhaley
      Participant

      Kellie,

      Great news that you got the B-raf arm!!  This will be what works for you! 

      Linda

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      Suzan AB
      Participant

      Wow Kellie,

      I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

      Good luck to you Braf-sista!

      My best with big hugs,

      Suzan AB

      Stage IV with lung nodes…

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        Vermont_Donna
        Participant

        Kellie,

        YOU GO GIRL!!! Wishing you complete success with this drug!

        Vermont_Donna, stage 3a

        stable after 4 infuions of Ipi

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        Vermont_Donna
        Participant

        Kellie,

        YOU GO GIRL!!! Wishing you complete success with this drug!

        Vermont_Donna, stage 3a

        stable after 4 infuions of Ipi

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      Suzan AB
      Participant

      Wow Kellie,

      I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

      Good luck to you Braf-sista!

      My best with big hugs,

      Suzan AB

      Stage IV with lung nodes…

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      Amy Busby
      Participant

      where are you taking it?  what trial?  if you don't mind my asking

      [email protected]

      I am waiting for my spot.

      Amy

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      Amy Busby
      Participant

      where are you taking it?  what trial?  if you don't mind my asking

      [email protected]

      I am waiting for my spot.

      Amy

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        KellieSue
        Participant

        Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

        Trial. MEK114267

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        KellieSue
        Participant

        Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

        Trial. MEK114267

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      Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

      I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

      Peace and light,

      Shelly in Switzerland stage IV

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      Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

      I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

      Peace and light,

      Shelly in Switzerland stage IV

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      Beastin12345
      Participant

      Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

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      Beastin12345
      Participant

      Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

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      shellebrownies
      Participant

      Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

      Michelle, wife of Don, Stage IV

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      shellebrownies
      Participant

      Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

      Michelle, wife of Don, Stage IV

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      PeterS
      Participant

      Hi,

      Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

      All the best!

      Peter

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      PeterS
      Participant

      Hi,

      Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

      All the best!

      Peter

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