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Started B-RAF

Forums General Melanoma Community Started B-RAF

  • Post
    KellieSue
    Participant

      Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

      I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

      I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

      Here's hoping in 6 weeks I have at least stable scans!

      Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

      I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

      I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

      Here's hoping in 6 weeks I have at least stable scans!

      Kellie(from Iowa) Stage IV since June 2008 currently on B-RAF

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    • Replies
        King
        Participant

          Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

          Stay Strong

          King

          Stage IV 7/05 Liver mets

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          King
          Participant

            Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

            Stay Strong

            King

            Stage IV 7/05 Liver mets

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            lhaley
            Participant

              Kellie,

              Great news that you got the B-raf arm!!  This will be what works for you! 

              Linda

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                dawn dion
                Participant

                  YEA!!! Kelly,

                  I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

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                  dawn dion
                  Participant

                    YEA!!! Kelly,

                    I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

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                  lhaley
                  Participant

                    Kellie,

                    Great news that you got the B-raf arm!!  This will be what works for you! 

                    Linda

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                    Suzan AB
                    Participant

                      Wow Kellie,

                      I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

                      Good luck to you Braf-sista!

                      My best with big hugs,

                      Suzan AB

                      Stage IV with lung nodes…

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                        Vermont_Donna
                        Participant

                          Kellie,

                          YOU GO GIRL!!! Wishing you complete success with this drug!

                          Vermont_Donna, stage 3a

                          stable after 4 infuions of Ipi

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                          Vermont_Donna
                          Participant

                            Kellie,

                            YOU GO GIRL!!! Wishing you complete success with this drug!

                            Vermont_Donna, stage 3a

                            stable after 4 infuions of Ipi

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                          Suzan AB
                          Participant

                            Wow Kellie,

                            I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

                            Good luck to you Braf-sista!

                            My best with big hugs,

                            Suzan AB

                            Stage IV with lung nodes…

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                            Amy Busby
                            Participant

                              where are you taking it?  what trial?  if you don't mind my asking

                              [email protected]

                              I am waiting for my spot.

                              Amy

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                              Amy Busby
                              Participant

                                where are you taking it?  what trial?  if you don't mind my asking

                                [email protected]

                                I am waiting for my spot.

                                Amy

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                                  KellieSue
                                  Participant

                                    Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

                                    Trial. MEK114267

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                                    KellieSue
                                    Participant

                                      Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

                                      Trial. MEK114267

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                                    Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

                                    I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

                                    Peace and light,

                                    Shelly in Switzerland stage IV

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                                    Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

                                    I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

                                    Peace and light,

                                    Shelly in Switzerland stage IV

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                                    Beastin12345
                                    Participant

                                      Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

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                                      Beastin12345
                                      Participant

                                        Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

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                                        shellebrownies
                                        Participant

                                          Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

                                          Michelle, wife of Don, Stage IV

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                                          shellebrownies
                                          Participant

                                            Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

                                            Michelle, wife of Don, Stage IV

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                                            PeterS
                                            Participant

                                              Hi,

                                              Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

                                              All the best!

                                              Peter

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                                              PeterS
                                              Participant

                                                Hi,

                                                Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

                                                All the best!

                                                Peter

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