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Started B-RAF
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Started B-RAF

› Forums › General Melanoma Community › Started B-RAF

  • Post
    • February 24, 2011 at 4:11 pm
    KellieSue
    Participant

      Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

      I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

      I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

      Here's hoping in 6 weeks I have at least stable scans!

      Well, thankfully my insurance company approved me starting the B-RAF trial, and even quickly at that.

      I had to have an extensive eye exam, CT scan of body, ECHO and EKG. Yesterday I met with the head of the trial and was excited to hear I was randomized to the B-RAF drug. She was quite happy too!

      I took my first pill last night and am excited to be doing something, instead of just waiting, waiting, waiting for this disease to start growing again in my body!

      Here's hoping in 6 weeks I have at least stable scans!

      Kellie(from Iowa) Stage IV since June 2008 currently on B-RAF

    Viewing 15 reply threads
    • Replies
        • February 24, 2011 at 10:26 pm
        King
        Participant

          Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

          Stay Strong

          King

          Stage IV 7/05 Liver mets

          • February 24, 2011 at 10:26 pm
          King
          Participant

            Great news, Kellie!  Praying this is your magic bullet.  Very happy to read this.

            Stay Strong

            King

            Stage IV 7/05 Liver mets

            • February 25, 2011 at 12:23 am
            lhaley
            Participant

              Kellie,

              Great news that you got the B-raf arm!!  This will be what works for you! 

              Linda

                • February 25, 2011 at 6:30 am
                dawn dion
                Participant

                  YEA!!! Kelly,

                  I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

                  • February 25, 2011 at 6:30 am
                  dawn dion
                  Participant

                    YEA!!! Kelly,

                    I also just did all of my testing yesterday –  They say I will be randomized by Wed. (here's hoping for BRAF) and on to the drug by Thursday.   More power to you girl!   Hoping for a successful journey for both of us.

                  • February 25, 2011 at 12:23 am
                  lhaley
                  Participant

                    Kellie,

                    Great news that you got the B-raf arm!!  This will be what works for you! 

                    Linda

                    • February 25, 2011 at 6:37 am
                    Suzan AB
                    Participant

                      Wow Kellie,

                      I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

                      Good luck to you Braf-sista!

                      My best with big hugs,

                      Suzan AB

                      Stage IV with lung nodes…

                      • February 25, 2011 at 6:37 am
                      Suzan AB
                      Participant

                        Wow Kellie,

                        I am here in S.F. waiting for my appt. tomorrow morning to see the thorasic surgeon who will do a lung biopsy or possible a VAT.  And then on to the Braf/MEK trial.  Waiting is the hardest part…

                        Good luck to you Braf-sista!

                        My best with big hugs,

                        Suzan AB

                        Stage IV with lung nodes…

                          • February 25, 2011 at 3:02 pm
                          Vermont_Donna
                          Participant

                            Kellie,

                            YOU GO GIRL!!! Wishing you complete success with this drug!

                            Vermont_Donna, stage 3a

                            stable after 4 infuions of Ipi

                            • February 25, 2011 at 3:02 pm
                            Vermont_Donna
                            Participant

                              Kellie,

                              YOU GO GIRL!!! Wishing you complete success with this drug!

                              Vermont_Donna, stage 3a

                              stable after 4 infuions of Ipi

                            • February 26, 2011 at 4:12 am
                            Amy Busby
                            Participant

                              where are you taking it?  what trial?  if you don't mind my asking

                              [email protected]

                              I am waiting for my spot.

                              Amy

                                • February 26, 2011 at 3:38 pm
                                KellieSue
                                Participant

                                  Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

                                  Trial. MEK114267

                                  • February 26, 2011 at 3:38 pm
                                  KellieSue
                                  Participant

                                    Amy, I'm at the U of Iowa in Iowa City, IA. My dr. is Mohammed Milhelm.

                                    Trial. MEK114267

                                  • February 26, 2011 at 4:12 am
                                  Amy Busby
                                  Participant

                                    where are you taking it?  what trial?  if you don't mind my asking

                                    [email protected]

                                    I am waiting for my spot.

                                    Amy

                                    • February 28, 2011 at 6:54 am
                                    Shelly in Switzerland
                                    Participant

                                      Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

                                      I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

                                      Peace and light,

                                      Shelly in Switzerland stage IV

                                      • February 28, 2011 at 6:54 am
                                      Shelly in Switzerland
                                      Participant

                                        Congratulations on getting the B-raf arm!  You keep goin' strong Kellie…!  You are in my prayers.  Take care. 

                                        I am anxious to hear what the side effects are for the MEK since I have been on the Roche B-raf for 37 weeks.  My hair has gone completely kinky curly, LOL.

                                        Peace and light,

                                        Shelly in Switzerland stage IV

                                        • May 27, 2011 at 8:32 pm
                                        Beastin12345
                                        Participant

                                          Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

                                          • May 27, 2011 at 8:32 pm
                                          Beastin12345
                                          Participant

                                            Hi Kellie!   How are your results with B-Raf going?  My father also has Dr Milhem and is currently being tested to do the ALT-801 trial.  They are also testing him for B-raf although it's not open right now.  I've read some good things about B-Raf but wondered first hand what the results have been?

                                            • May 28, 2011 at 4:44 am
                                            shellebrownies
                                            Participant

                                              Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

                                              Michelle, wife of Don, Stage IV

                                              • May 28, 2011 at 4:44 am
                                              shellebrownies
                                              Participant

                                                Congrats, Kellie for making it into the trial! Here's hoping this kicks your melanoma in the butt! : )

                                                Michelle, wife of Don, Stage IV

                                                • June 22, 2011 at 8:55 am
                                                PeterS
                                                Participant

                                                  Hi,

                                                  Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

                                                  All the best!

                                                  Peter

                                                  • June 22, 2011 at 8:55 am
                                                  PeterS
                                                  Participant

                                                    Hi,

                                                    Cancer sucks indeed.  I hope you are responding to GSK1120212.  I am on the same trial with the usual side-effects like rash (fortunately relatively mild) and joint pain.

                                                    All the best!

                                                    Peter

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