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Stage IB, 21 years NED today!

Forums General Melanoma Community Stage IB, 21 years NED today!

  • Post
    Janner
    Participant

      Since this site is a little skewed towards those actively fighting disease and the newly diagnosed, I think it's a good idea to post anniversaries like this to help give a bit of perspective.  21 years ago, I had a stage IA lesion removed.  .58mm/Clark II/ 1 mitosis.  In today's staging, that is now stage IB.  Since then, it's been determined that I have a genetic defect that gave me a 76% lifetime risk of melanoma.  I've also had two other primaries (in situ, .88mm/Clark III/ 1 mitosis) removed 12 and 11 years ago respectively.  But I'm sti

      Since this site is a little skewed towards those actively fighting disease and the newly diagnosed, I think it's a good idea to post anniversaries like this to help give a bit of perspective.  21 years ago, I had a stage IA lesion removed.  .58mm/Clark II/ 1 mitosis.  In today's staging, that is now stage IB.  Since then, it's been determined that I have a genetic defect that gave me a 76% lifetime risk of melanoma.  I've also had two other primaries (in situ, .88mm/Clark III/ 1 mitosis) removed 12 and 11 years ago respectively.  But I'm still here, still NED 21 years later.  I was 29 when originally diagnosed and you can do the math but I'm a little older now.  It's hard to remember life prior to melanoma – melanoma is a part of who I am and what I do now.  But I refuse to let melanoma define me and conquer me!

      Best wishes to all with this disease!

      Janner

    Viewing 38 reply threads
    • Replies
        washoegal
        Participant

          Thanks for all you do! 

          Mary

          Stage 3

          washoegal
          Participant

            Thanks for all you do! 

            Mary

            Stage 3

            washoegal
            Participant

              Thanks for all you do! 

              Mary

              Stage 3

              Mazeltov Janner, this is a big one. I read any post where you have commented. You have a clear eye, and a warm heart, but that big brain of yours is like a steel jawed trap when it comes to melanoma facts and hunches. Your hearts shines through in every post.

              After about 5 years NED you could have left us and gone on with the rest of your life, but you stayed and stayed, and made yourself an example for us. I want to thank you and say how easy it is to think of you and your bright smile. I am getting ready for my 36th trip to Boston. I am like a Prius that has but one charging spot, but it is the one I need at MGH. I hope you know how many of us send our love on this grand day in your life.

              Mazeltov Janner, this is a big one. I read any post where you have commented. You have a clear eye, and a warm heart, but that big brain of yours is like a steel jawed trap when it comes to melanoma facts and hunches. Your hearts shines through in every post.

              After about 5 years NED you could have left us and gone on with the rest of your life, but you stayed and stayed, and made yourself an example for us. I want to thank you and say how easy it is to think of you and your bright smile. I am getting ready for my 36th trip to Boston. I am like a Prius that has but one charging spot, but it is the one I need at MGH. I hope you know how many of us send our love on this grand day in your life.

              Mazeltov Janner, this is a big one. I read any post where you have commented. You have a clear eye, and a warm heart, but that big brain of yours is like a steel jawed trap when it comes to melanoma facts and hunches. Your hearts shines through in every post.

              After about 5 years NED you could have left us and gone on with the rest of your life, but you stayed and stayed, and made yourself an example for us. I want to thank you and say how easy it is to think of you and your bright smile. I am getting ready for my 36th trip to Boston. I am like a Prius that has but one charging spot, but it is the one I need at MGH. I hope you know how many of us send our love on this grand day in your life.

                randallgford
                Participant

                  I agree with this description of Janner, she is a gift to the world and the board.

                  Congrats, lady!! Keep up the good work. God bless, Vicki

                  randallgford
                  Participant

                    I agree with this description of Janner, she is a gift to the world and the board.

                    Congrats, lady!! Keep up the good work. God bless, Vicki

                    randallgford
                    Participant

                      I agree with this description of Janner, she is a gift to the world and the board.

                      Congrats, lady!! Keep up the good work. God bless, Vicki

                    triciad
                    Participant

                      Janner,

                      Congratulations!  We are all so grateful that you have stuck around all these years to help educate us on this disease.  I know that I feel a lot better when you answer my questions!  Thank you!  Now, get out and celebrate…21 NED…cheers to many more decades of NED!

                      Tricia 

                      triciad
                      Participant

                        Janner,

                        Congratulations!  We are all so grateful that you have stuck around all these years to help educate us on this disease.  I know that I feel a lot better when you answer my questions!  Thank you!  Now, get out and celebrate…21 NED…cheers to many more decades of NED!

                        Tricia 

                        triciad
                        Participant

                          Janner,

                          Congratulations!  We are all so grateful that you have stuck around all these years to help educate us on this disease.  I know that I feel a lot better when you answer my questions!  Thank you!  Now, get out and celebrate…21 NED…cheers to many more decades of NED!

                          Tricia 

                          hbecker
                          Participant

                            Happy NEDday! 

                            hbecker
                            Participant

                              Happy NEDday! 

                              hbecker
                              Participant

                                Happy NEDday! 

                                DebbieH
                                Participant

                                  Congratulations Jan – this is a huge milestone! 

                                  This board has been the richer all these years with you here giving great advice – you have a great way of informing without scaring people which is not easy to do! 

                                  Now take care of that knee – talk to you later

                                  Deb

                                  DebbieH
                                  Participant

                                    Congratulations Jan – this is a huge milestone! 

                                    This board has been the richer all these years with you here giving great advice – you have a great way of informing without scaring people which is not easy to do! 

                                    Now take care of that knee – talk to you later

                                    Deb

                                    DebbieH
                                    Participant

                                      Congratulations Jan – this is a huge milestone! 

                                      This board has been the richer all these years with you here giving great advice – you have a great way of informing without scaring people which is not easy to do! 

                                      Now take care of that knee – talk to you later

                                      Deb

                                      King
                                      Participant

                                        Janner,

                                        Happy Nediversary!  A great, big, huge thank you for all that you do for all of us.  You are amazing.  Hmmm…the big 5-0 this year…has it happened?  πŸ™‚

                                        Keep on living life!

                                        Stay Strong

                                        Kathie

                                        Stage IV  7/05  Liver mets

                                        King
                                        Participant

                                          Janner,

                                          Happy Nediversary!  A great, big, huge thank you for all that you do for all of us.  You are amazing.  Hmmm…the big 5-0 this year…has it happened?  πŸ™‚

                                          Keep on living life!

                                          Stay Strong

                                          Kathie

                                          Stage IV  7/05  Liver mets

                                          King
                                          Participant

                                            Janner,

                                            Happy Nediversary!  A great, big, huge thank you for all that you do for all of us.  You are amazing.  Hmmm…the big 5-0 this year…has it happened?  πŸ™‚

                                            Keep on living life!

                                            Stay Strong

                                            Kathie

                                            Stage IV  7/05  Liver mets

                                            natasha
                                            Participant

                                              Congradulations ,Janner and thanks for all your help !!!

                                              natasha
                                              Participant

                                                Congradulations ,Janner and thanks for all your help !!!

                                                natasha
                                                Participant

                                                  Congradulations ,Janner and thanks for all your help !!!

                                                  Harry in Fair Oaks
                                                  Participant

                                                    Congrats Janner!  You always do a great job educating worried newbies diagnosed with in situ or Stage I.

                                                    I hope you continue to do this for at least 21 more years!

                                                    Best wishes,

                                                    Harry

                                                      deardad
                                                      Participant
                                                        Happy anniversary….and thanks for all you give on this board.
                                                        To a llifetime without melanoma.
                                                        Nahmi from Melbourne
                                                        deardad
                                                        Participant
                                                          Happy anniversary….and thanks for all you give on this board.
                                                          To a llifetime without melanoma.
                                                          Nahmi from Melbourne
                                                          deardad
                                                          Participant
                                                            Happy anniversary….and thanks for all you give on this board.
                                                            To a llifetime without melanoma.
                                                            Nahmi from Melbourne
                                                          Harry in Fair Oaks
                                                          Participant

                                                            Congrats Janner!  You always do a great job educating worried newbies diagnosed with in situ or Stage I.

                                                            I hope you continue to do this for at least 21 more years!

                                                            Best wishes,

                                                            Harry

                                                            Harry in Fair Oaks
                                                            Participant

                                                              Congrats Janner!  You always do a great job educating worried newbies diagnosed with in situ or Stage I.

                                                              I hope you continue to do this for at least 21 more years!

                                                              Best wishes,

                                                              Harry

                                                              Janner
                                                              Participant

                                                                Thanks, everyone, and JPMM – you waxed poetic!  I've tried to leave here many times to "move on" but I've never successfully pulled it off.  King, yes, unfortunately, I've passed that mark in December.  surprise

                                                                Thanks again, everyone!

                                                                Janner

                                                                Janner
                                                                Participant

                                                                  Thanks, everyone, and JPMM – you waxed poetic!  I've tried to leave here many times to "move on" but I've never successfully pulled it off.  King, yes, unfortunately, I've passed that mark in December.  surprise

                                                                  Thanks again, everyone!

                                                                  Janner

                                                                    NYKaren
                                                                    Participant
                                                                      Sorry I’m late to the party… Congratulations, Janner, and thank you for all you do here. I just peeked at your profile–I had forgotten that we share a special “bond”–we’re both allergic to Benzoin and Mastisol and sensitive to adhesives. BTW, Steri-strips work very well without that stuff.
                                                                      All the best,
                                                                      Karen
                                                                      NYKaren
                                                                      Participant
                                                                        Sorry I’m late to the party… Congratulations, Janner, and thank you for all you do here. I just peeked at your profile–I had forgotten that we share a special “bond”–we’re both allergic to Benzoin and Mastisol and sensitive to adhesives. BTW, Steri-strips work very well without that stuff.
                                                                        All the best,
                                                                        Karen
                                                                        Janner
                                                                        Participant

                                                                          Karen, I've since discovered "Skin-Prep".  It's a barrier wipe.  Swipe the skin and then put on the bandaid or tape and….. it works!  For the most part, I still avoid any adhesives – just easier.  But these wipes make a huge difference in conquering adhesives!  There are other brands, that's just the one I found at my medical supply store.  Also a little pricey, but it sure beats dealing with welts!  (I take my own supply with me to any possible medical procedure – just in case). 

                                                                          Cheers,

                                                                          Janner

                                                                          Janner
                                                                          Participant

                                                                            Karen, I've since discovered "Skin-Prep".  It's a barrier wipe.  Swipe the skin and then put on the bandaid or tape and….. it works!  For the most part, I still avoid any adhesives – just easier.  But these wipes make a huge difference in conquering adhesives!  There are other brands, that's just the one I found at my medical supply store.  Also a little pricey, but it sure beats dealing with welts!  (I take my own supply with me to any possible medical procedure – just in case). 

                                                                            Cheers,

                                                                            Janner

                                                                            NYKaren
                                                                            Participant
                                                                              That’s very good to know; thanks. Now that you mention it, I think they used Skin-Prep on me during IL-2 to keep the IV site from getting too irritated. Yep, there’s nothing like those welts! (I can’t believe I remember anything from an IL-2 week!
                                                                              I know exactly what you mean about age; I’m nearing 53 and so grateful to get there!

                                                                              Janner, for all your great, calming advice to newcomers, I just thought of a new acronym: WWJS; What would Janner say?
                                                                              Even though I’m IIIC unresectable, I continue to learn from you all the time. Your depth of knowledge is incredible.
                                                                              Again, mazel Tov and thank you!
                                                                              Karen

                                                                              NYKaren
                                                                              Participant
                                                                                That’s very good to know; thanks. Now that you mention it, I think they used Skin-Prep on me during IL-2 to keep the IV site from getting too irritated. Yep, there’s nothing like those welts! (I can’t believe I remember anything from an IL-2 week!
                                                                                I know exactly what you mean about age; I’m nearing 53 and so grateful to get there!

                                                                                Janner, for all your great, calming advice to newcomers, I just thought of a new acronym: WWJS; What would Janner say?
                                                                                Even though I’m IIIC unresectable, I continue to learn from you all the time. Your depth of knowledge is incredible.
                                                                                Again, mazel Tov and thank you!
                                                                                Karen

                                                                                Janner
                                                                                Participant

                                                                                  I LOVE "WWJS"!!!  coolyes  since I usually have an opinion on most everything! 

                                                                                  Janner
                                                                                  Participant

                                                                                    I LOVE "WWJS"!!!  coolyes  since I usually have an opinion on most everything! 

                                                                                    Janner
                                                                                    Participant

                                                                                      I LOVE "WWJS"!!!  coolyes  since I usually have an opinion on most everything! 

                                                                                      NYKaren
                                                                                      Participant
                                                                                        That’s very good to know; thanks. Now that you mention it, I think they used Skin-Prep on me during IL-2 to keep the IV site from getting too irritated. Yep, there’s nothing like those welts! (I can’t believe I remember anything from an IL-2 week!
                                                                                        I know exactly what you mean about age; I’m nearing 53 and so grateful to get there!

                                                                                        Janner, for all your great, calming advice to newcomers, I just thought of a new acronym: WWJS; What would Janner say?
                                                                                        Even though I’m IIIC unresectable, I continue to learn from you all the time. Your depth of knowledge is incredible.
                                                                                        Again, mazel Tov and thank you!
                                                                                        Karen

                                                                                        Janner
                                                                                        Participant

                                                                                          Karen, I've since discovered "Skin-Prep".  It's a barrier wipe.  Swipe the skin and then put on the bandaid or tape and….. it works!  For the most part, I still avoid any adhesives – just easier.  But these wipes make a huge difference in conquering adhesives!  There are other brands, that's just the one I found at my medical supply store.  Also a little pricey, but it sure beats dealing with welts!  (I take my own supply with me to any possible medical procedure – just in case). 

                                                                                          Cheers,

                                                                                          Janner

                                                                                          NYKaren
                                                                                          Participant
                                                                                            Sorry I’m late to the party… Congratulations, Janner, and thank you for all you do here. I just peeked at your profile–I had forgotten that we share a special “bond”–we’re both allergic to Benzoin and Mastisol and sensitive to adhesives. BTW, Steri-strips work very well without that stuff.
                                                                                            All the best,
                                                                                            Karen
                                                                                          Janner
                                                                                          Participant

                                                                                            Thanks, everyone, and JPMM – you waxed poetic!  I've tried to leave here many times to "move on" but I've never successfully pulled it off.  King, yes, unfortunately, I've passed that mark in December.  surprise

                                                                                            Thanks again, everyone!

                                                                                            Janner

                                                                                            Tina D
                                                                                            Participant

                                                                                              Congratulations on this great milestone! Our perspective on getting older changes when we realize how much of a gift this life really is. I know I am welcoming 49 this year with wide open arms πŸ™‚  . You contribute so much to this forum, and I know when I see certain questions come up, I always hope to see you respond — you have a boatlaod of knowledge and have been so generous to share always. Thank you for all you contribute and have a great day celebrating!!

                                                                                              Tina

                                                                                              Tina D
                                                                                              Participant

                                                                                                Congratulations on this great milestone! Our perspective on getting older changes when we realize how much of a gift this life really is. I know I am welcoming 49 this year with wide open arms πŸ™‚  . You contribute so much to this forum, and I know when I see certain questions come up, I always hope to see you respond — you have a boatlaod of knowledge and have been so generous to share always. Thank you for all you contribute and have a great day celebrating!!

                                                                                                Tina

                                                                                                Tina D
                                                                                                Participant

                                                                                                  Congratulations on this great milestone! Our perspective on getting older changes when we realize how much of a gift this life really is. I know I am welcoming 49 this year with wide open arms πŸ™‚  . You contribute so much to this forum, and I know when I see certain questions come up, I always hope to see you respond — you have a boatlaod of knowledge and have been so generous to share always. Thank you for all you contribute and have a great day celebrating!!

                                                                                                  Tina

                                                                                                  jim Breitfeller
                                                                                                  Participant

                                                                                                    Congratulations on this milestone!  Thaks

                                                                                                    Thank for your continious caring!! You are truly in a league of your own.

                                                                                                     

                                                                                                    Jimmy b

                                                                                                    jim Breitfeller
                                                                                                    Participant

                                                                                                      Congratulations on this milestone!  Thaks

                                                                                                      Thank for your continious caring!! You are truly in a league of your own.

                                                                                                       

                                                                                                      Jimmy b

                                                                                                      jim Breitfeller
                                                                                                      Participant

                                                                                                        Congratulations on this milestone!  Thaks

                                                                                                        Thank for your continious caring!! You are truly in a league of your own.

                                                                                                         

                                                                                                        Jimmy b

                                                                                                        Kim K
                                                                                                        Participant

                                                                                                          Happy Happy Happy.

                                                                                                          So does this mean your non-existant mel can drink?  If not, then knock one back for kicking its rear….  Thanks again for all that you do for the posters here and on your stage I site.

                                                                                                          Aloha,

                                                                                                          Kim

                                                                                                          Kim K
                                                                                                          Participant

                                                                                                            Happy Happy Happy.

                                                                                                            So does this mean your non-existant mel can drink?  If not, then knock one back for kicking its rear….  Thanks again for all that you do for the posters here and on your stage I site.

                                                                                                            Aloha,

                                                                                                            Kim

                                                                                                            Kim K
                                                                                                            Participant

                                                                                                              Happy Happy Happy.

                                                                                                              So does this mean your non-existant mel can drink?  If not, then knock one back for kicking its rear….  Thanks again for all that you do for the posters here and on your stage I site.

                                                                                                              Aloha,

                                                                                                              Kim

                                                                                                              _Paul_
                                                                                                              Participant
                                                                                                                Congrats on another year, and thank you so much for sharing your considerable knowledge with us!
                                                                                                                _Paul_
                                                                                                                Participant
                                                                                                                  Congrats on another year, and thank you so much for sharing your considerable knowledge with us!
                                                                                                                  _Paul_
                                                                                                                  Participant
                                                                                                                    Congrats on another year, and thank you so much for sharing your considerable knowledge with us!
                                                                                                                Viewing 38 reply threads
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