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- This topic has 66 replies, 30 voices, and was last updated 13 years, 3 months ago by JerryfromFauq.
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- August 22, 2011 at 2:14 am
Nothing ceases to amaze me. I've had more scans than many have had birthdays during all my seemingly perpetual skank prom dates with melanoma over my years.
More often than not, my doc has had to drag me in for scans (usually after calling my mother !) because I more often than not would always blow them off. under the guise that I was busy living.. Scans were, and always have been a nuisance to me for many reasons.
Nothing ceases to amaze me. I've had more scans than many have had birthdays during all my seemingly perpetual skank prom dates with melanoma over my years.
More often than not, my doc has had to drag me in for scans (usually after calling my mother !) because I more often than not would always blow them off. under the guise that I was busy living.. Scans were, and always have been a nuisance to me for many reasons.
I have this game of chance that I play with my doc prior to scans: I always write down what I expect the results to be, put it in an envelope, lick it shut and when he tells me the results, I whip out my envelope to "score" how I did. . Probably in most medical circles, that type of behavior would be considered as the ultimate smartass; but my doc is a nice guy and knows me well, so he puts up with me..
Tonight, after again blowing off scans for some time, I sat here and stuffed my envelope in advance of my ct, pet and brain MRI tomorrow.
NEVER have I had scaniety, but this time is different after stuffing my envelope. I'm not looking for sympathy, good wishes or any of that., but know that there are times when we all doubt ourselves and when that happens is the time to step into your strength.
See, I'm not so tough after all !
Cheers,
Charlie S
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- August 22, 2011 at 2:28 am
My fingers are crossed that your scans are clear!
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- August 22, 2011 at 2:56 am
The question is how often has your envelope been right? The last several months have been hard for many around you, it's normal for you to sit back and wonder about your own existence. I'm surprised you haven't felt the full effect of scan anxiety many times, after all you are human!
Deep breaths my friend. When I'm in he middle of my scan anxieties I keep telling myself that it doesn't really change anything, the scan just tells me what is going on. For me the worst is when I know the tech has had a chance to see the scan and I don't know the result.
Do they really call your mom????
You have many pulling for you.
Linda
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- August 22, 2011 at 2:56 am
The question is how often has your envelope been right? The last several months have been hard for many around you, it's normal for you to sit back and wonder about your own existence. I'm surprised you haven't felt the full effect of scan anxiety many times, after all you are human!
Deep breaths my friend. When I'm in he middle of my scan anxieties I keep telling myself that it doesn't really change anything, the scan just tells me what is going on. For me the worst is when I know the tech has had a chance to see the scan and I don't know the result.
Do they really call your mom????
You have many pulling for you.
Linda
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- August 22, 2011 at 3:19 am
Charlie,
I have all the faith in the world that things will turn out just fine for you tomorrow. It's natural for anyone to have doubts from time to time. There has also been a fair bit of sad news on the board in the last couple months, and that's enough to get even a seasoned vet a bit nervous.
I do hope you'll let us know (once you have gotten the results) when you learn everything is fine. : )
Michelle, wife of Don
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- August 22, 2011 at 3:19 am
Charlie,
I have all the faith in the world that things will turn out just fine for you tomorrow. It's natural for anyone to have doubts from time to time. There has also been a fair bit of sad news on the board in the last couple months, and that's enough to get even a seasoned vet a bit nervous.
I do hope you'll let us know (once you have gotten the results) when you learn everything is fine. : )
Michelle, wife of Don
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- August 22, 2011 at 4:15 am
Hey toughie……….. I'd LOVE to think the scans will show you are dancing with NED, but will settle for "stable", even though the word in itself reminds me of horse-shit! =)
Looking forward to an update! (oh…. and a reply to my email about the in-situ they found in my WLE would be awesome!)
Love ya bunches, Charlie! (So much you're in my profile pix, ya know! haha!)
*hugz* ~Lisa~
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- August 22, 2011 at 4:15 am
Hey toughie……….. I'd LOVE to think the scans will show you are dancing with NED, but will settle for "stable", even though the word in itself reminds me of horse-shit! =)
Looking forward to an update! (oh…. and a reply to my email about the in-situ they found in my WLE would be awesome!)
Love ya bunches, Charlie! (So much you're in my profile pix, ya know! haha!)
*hugz* ~Lisa~
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- August 22, 2011 at 4:55 am
HI Charlie —
You once told me that after a while, a long-timer knows his body pretty well. YOu didn't mention how often the body (or the mind, working through the body) plays tricks on you…
and, by the way, it isn't "tough" until you know you have something to be tough about.
Best wishes tomorrow. More people than you can count are sending good karma and wishes.
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- August 22, 2011 at 4:55 am
HI Charlie —
You once told me that after a while, a long-timer knows his body pretty well. YOu didn't mention how often the body (or the mind, working through the body) plays tricks on you…
and, by the way, it isn't "tough" until you know you have something to be tough about.
Best wishes tomorrow. More people than you can count are sending good karma and wishes.
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- August 22, 2011 at 10:37 am
Charlie,
Wishing you all the best tomorrow.
Amy S. in Michigan
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- August 22, 2011 at 11:08 am
Dear Charlie,
I think its great that you shared with us your feelings. This fear of the unknown that the scans will now show, is fear we all feel. We hope for the best, prepare for the worst and struggle through the day holding our breath. So breathe, and then breathe again. I get scanned every three months at this point and I feel that I do want to know ASAP if something is going on, so for me, I feel comforted in a way.
Thinking the best for you, and for all of us!
Vermont_Donna, stage 3a, NED
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- August 22, 2011 at 11:08 am
Dear Charlie,
I think its great that you shared with us your feelings. This fear of the unknown that the scans will now show, is fear we all feel. We hope for the best, prepare for the worst and struggle through the day holding our breath. So breathe, and then breathe again. I get scanned every three months at this point and I feel that I do want to know ASAP if something is going on, so for me, I feel comforted in a way.
Thinking the best for you, and for all of us!
Vermont_Donna, stage 3a, NED
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- August 22, 2011 at 11:47 am
Charlie,
I know your not looking for them but we are sending them anyway. Lots of good thoughts and prayers that you get good news! You sound like my husband, if he's told 2 months he stretches it to 3. Then he's told 3 months and he stretches it to 4. Now with 4 months what will he try to do. I always have to call for him and drag him in.
It's good your mother is there to shake her head, we always need someone. Good luck.
Rebecca
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- August 22, 2011 at 11:47 am
Charlie,
I know your not looking for them but we are sending them anyway. Lots of good thoughts and prayers that you get good news! You sound like my husband, if he's told 2 months he stretches it to 3. Then he's told 3 months and he stretches it to 4. Now with 4 months what will he try to do. I always have to call for him and drag him in.
It's good your mother is there to shake her head, we always need someone. Good luck.
Rebecca
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- August 22, 2011 at 12:24 pm
Thinking of you Bud.
Jerry from Cape Cod
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- August 22, 2011 at 12:24 pm
Thinking of you Bud.
Jerry from Cape Cod
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- August 22, 2011 at 1:14 pm
So, you're not so tough, you say? I knew underneath that crustiness there was a gushy human (wasn't so hard to see that). I'm sure you'll have on your armor heading out today and you will be tapping into your own strength. Even though you aren't seeking the good wishes, I'm in line with the others thinking and sending them. And, as the others, I will be waiting to see your next post.
(Hey, whatever happened to that porch cat you had hanging around? I can't remember the end of that cat story?)
CarolA ~ Stage III
Amherst, NY
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- August 22, 2011 at 1:14 pm
So, you're not so tough, you say? I knew underneath that crustiness there was a gushy human (wasn't so hard to see that). I'm sure you'll have on your armor heading out today and you will be tapping into your own strength. Even though you aren't seeking the good wishes, I'm in line with the others thinking and sending them. And, as the others, I will be waiting to see your next post.
(Hey, whatever happened to that porch cat you had hanging around? I can't remember the end of that cat story?)
CarolA ~ Stage III
Amherst, NY
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- August 22, 2011 at 4:37 pm
ya the cat that lived in the pumpkin and then you bought him a cat house (no not that kind) I really wish the outcome of these scans is GOOD and not always what you may say in your envelope, unless of course your envelope is always 100% good positive.
Luff Bonnie Lea
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- August 22, 2011 at 4:37 pm
ya the cat that lived in the pumpkin and then you bought him a cat house (no not that kind) I really wish the outcome of these scans is GOOD and not always what you may say in your envelope, unless of course your envelope is always 100% good positive.
Luff Bonnie Lea
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- August 22, 2011 at 2:56 pm
Charlie,
I just wanna tell you that i love you. And you are a smartass, but that is part of the reason i love you! I hope and pray that your scan results are stable, ned, anything but bad news. And thank you for sharing with us. Especially when you are showing us that the man whos seen and done it all when it comes to melanoma, needs us as much as we need you.
And please give your mom a hug from me… anyone who can get you to do something you dont wanna do… is a superhero in my book!!
Dawna
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- August 22, 2011 at 2:56 pm
Charlie,
I just wanna tell you that i love you. And you are a smartass, but that is part of the reason i love you! I hope and pray that your scan results are stable, ned, anything but bad news. And thank you for sharing with us. Especially when you are showing us that the man whos seen and done it all when it comes to melanoma, needs us as much as we need you.
And please give your mom a hug from me… anyone who can get you to do something you dont wanna do… is a superhero in my book!!
Dawna
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- August 22, 2011 at 3:33 pm
Hi Charlie
I have been reading posts from people since having a reoccurrence in Jan2011. There seems to be alot of scary things on here, also alot of info. So I have seen posts from you and you are pretty strong! Your most recent post shows me we all fall down and then we get back up and brush ourselves off and keep on going. This is my first post and I wanted to wish you the best !!!
Dee 🙂
Stage III
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- August 22, 2011 at 3:33 pm
Hi Charlie
I have been reading posts from people since having a reoccurrence in Jan2011. There seems to be alot of scary things on here, also alot of info. So I have seen posts from you and you are pretty strong! Your most recent post shows me we all fall down and then we get back up and brush ourselves off and keep on going. This is my first post and I wanted to wish you the best !!!
Dee 🙂
Stage III
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- August 22, 2011 at 11:27 pm
Scanxiety. I like that name!
My husband had his PET scan yesterday, and we will find out the results on Wed. We hope the 2 doses of Ipi did something good. The waiting is hard, and I find I have a knot in my stomach off and on, and have awakened with a start in the middle of the night, only to have my mind go off into the most unpleasant of places.
I have to steer my little mind back on a positive track.
Good luck with your scans.
CJ, wife of Ron, Stage IV metastatic melanoma with NO primary
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- August 22, 2011 at 11:27 pm
Scanxiety. I like that name!
My husband had his PET scan yesterday, and we will find out the results on Wed. We hope the 2 doses of Ipi did something good. The waiting is hard, and I find I have a knot in my stomach off and on, and have awakened with a start in the middle of the night, only to have my mind go off into the most unpleasant of places.
I have to steer my little mind back on a positive track.
Good luck with your scans.
CJ, wife of Ron, Stage IV metastatic melanoma with NO primary
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- August 22, 2011 at 11:28 pm
Scanxiety. I like that name!
My husband had his PET scan yesterday, and we will find out the results on Wed. We hope the 2 doses of Ipi did something good. The waiting is hard, and I find I have a knot in my stomach off and on, and have awakened with a start in the middle of the night, only to have my mind go off into the most unpleasant of places.
I have to steer my little mind back on a positive track.
Good luck with your scans.
CJ, wife of Ron, Stage IV metastatic melanoma with NO primary
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- August 22, 2011 at 11:28 pm
Scanxiety. I like that name!
My husband had his PET scan yesterday, and we will find out the results on Wed. We hope the 2 doses of Ipi did something good. The waiting is hard, and I find I have a knot in my stomach off and on, and have awakened with a start in the middle of the night, only to have my mind go off into the most unpleasant of places.
I have to steer my little mind back on a positive track.
Good luck with your scans.
CJ, wife of Ron, Stage IV metastatic melanoma with NO primary
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- August 23, 2011 at 1:54 am
Did someone think you were tough??????? Certainly not your mommy, now how will you ever live that one down? Charlie, if anyone can scare the he&& out of the MEL Devil it is you, no one like's their scans and whether you admitted it or not there has always been anxiety otherwise you wouldn't have postponed them all the time. (Dr Freud is my new screen name). So smile pretty for your pics and we'll be sending all the vibs and prayers and everything else the universe has to offer your way. Then go have a Pizza and Beer.
Mary
Stage 3
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- August 23, 2011 at 1:54 am
Did someone think you were tough??????? Certainly not your mommy, now how will you ever live that one down? Charlie, if anyone can scare the he&& out of the MEL Devil it is you, no one like's their scans and whether you admitted it or not there has always been anxiety otherwise you wouldn't have postponed them all the time. (Dr Freud is my new screen name). So smile pretty for your pics and we'll be sending all the vibs and prayers and everything else the universe has to offer your way. Then go have a Pizza and Beer.
Mary
Stage 3
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- August 23, 2011 at 10:12 am
Hey Charlie,
It's official…you are human. Scaniety hits us all at one time or another. Sounds like it took it's sweet time hitting you. So time to square up, look mel in the face yet again and stick your tongue out at it despite what you may be feeling on the inside.
PS – Right there with you as I just had my quarterly scans on Saturday and will get the results this morning. Experiencing butterfiles the size of eagles this AM…
Hang in there!
Rocco, IV since 2005
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- August 23, 2011 at 10:12 am
Hey Charlie,
It's official…you are human. Scaniety hits us all at one time or another. Sounds like it took it's sweet time hitting you. So time to square up, look mel in the face yet again and stick your tongue out at it despite what you may be feeling on the inside.
PS – Right there with you as I just had my quarterly scans on Saturday and will get the results this morning. Experiencing butterfiles the size of eagles this AM…
Hang in there!
Rocco, IV since 2005
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- August 23, 2011 at 2:22 pm
Charlie, you know I am usually right about my scans too! I hope you are WRONG this time, and that all is well with you. I see you wrote this a couple days ago..I've been off in vegas with kind of intermittant web access..I hope every thing went well yesterday, and that you'll let us know what the results are.
Dian in spokane
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- August 23, 2011 at 2:22 pm
Charlie, you know I am usually right about my scans too! I hope you are WRONG this time, and that all is well with you. I see you wrote this a couple days ago..I've been off in vegas with kind of intermittant web access..I hope every thing went well yesterday, and that you'll let us know what the results are.
Dian in spokane
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- August 23, 2011 at 8:00 pm
Sure hope you are WRONG!! Hoping for the best for you, Charlie!
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- August 23, 2011 at 8:00 pm
Sure hope you are WRONG!! Hoping for the best for you, Charlie!
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- August 24, 2011 at 3:19 am
Scaniety,
What can i say! Man, you know what I think and hope. I have had problems getting on line while traveling and just got this post.Hope you come into chat while I'm hanging. I want to know the results. Please don't make me wait.
People, don't pick on Charlie too much. He's not all bad.
Love y ou amd respect you ,man.
Semper Fi
Jerry
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- August 24, 2011 at 3:19 am
Scaniety,
What can i say! Man, you know what I think and hope. I have had problems getting on line while traveling and just got this post.Hope you come into chat while I'm hanging. I want to know the results. Please don't make me wait.
People, don't pick on Charlie too much. He's not all bad.
Love y ou amd respect you ,man.
Semper Fi
Jerry
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