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Pet Scan Results
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Pet Scan Results

› Forums › General Melanoma Community › Pet Scan Results

  • Post
    • January 22, 2015 at 3:49 am
    JoshF
    Participant

      What a long day but a good one. Pet/CT came back negative. This is obviously best case scenario. My onc didn't want to say for sure but feels that this could be residual due to immune system possibly not recognizing remaining cells form surgery. I had surgery in mid Spet 2013 and treatment started fairly quick after met was found in lung. I never had the surgery to get clear margins…I do remember the surgical onc saying that it may be necessary to go back in after treatment but it never seemed like a concern after I finished IL-2 last January.

      Seeing that I'm NED again, the doc said watch & wait. Ipi was discussed but advised against because of no measurable disease. Again, they feel it's only a local recurrence.  Do they ever really know? I know there is not a lot out there for adjuvant treatment that is either available or effective. Anyone do ipi as "maintenance"?

      I feel very blessed and fortunate as PET was clear…still gives me hope that I was repsonder to ipi & HD-IL2 combo trial I'm in. Things can always be worse but just having the beast involved in your world at all is stressful; which is why I appreciate each and everyone of you for your support, advice, inspiration and encouragment. Wishing everyone the best!

      Josh

    Viewing 44 reply threads
    • Replies
        • January 22, 2015 at 3:58 am
        Brendan
        Participant

          Congrats, Josh.   Best case scenario. 

          Good luck to you!

          Brendan

          • January 22, 2015 at 3:58 am
          Brendan
          Participant

            Congrats, Josh.   Best case scenario. 

            Good luck to you!

            Brendan

            • January 22, 2015 at 3:58 am
            Brendan
            Participant

              Congrats, Josh.   Best case scenario. 

              Good luck to you!

              Brendan

              • January 22, 2015 at 4:01 am
              Momrn5
              Participant

                Yay! Great news Josh!

                • January 22, 2015 at 4:01 am
                Momrn5
                Participant

                  Yay! Great news Josh!

                  • January 22, 2015 at 4:01 am
                  Momrn5
                  Participant

                    Yay! Great news Josh!

                    • January 22, 2015 at 5:03 am
                    _Paul_
                    Participant

                      Awesome news Josh! What a beautiful acronym: NED.

                      • January 22, 2015 at 5:03 am
                      _Paul_
                      Participant

                        Awesome news Josh! What a beautiful acronym: NED.

                        • January 22, 2015 at 5:03 am
                        _Paul_
                        Participant

                          Awesome news Josh! What a beautiful acronym: NED.

                          • January 22, 2015 at 7:44 am
                          JustMeInCA
                          Participant

                            Yay for you — very happy to hear this!

                            • January 22, 2015 at 7:44 am
                            JustMeInCA
                            Participant

                              Yay for you — very happy to hear this!

                              • January 22, 2015 at 7:44 am
                              JustMeInCA
                              Participant

                                Yay for you — very happy to hear this!

                                • January 22, 2015 at 1:02 pm
                                jbronicki
                                Participant

                                  That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

                                  • January 22, 2015 at 1:02 pm
                                  jbronicki
                                  Participant

                                    That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

                                    • January 22, 2015 at 1:02 pm
                                    jbronicki
                                    Participant

                                      That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

                                      • January 22, 2015 at 1:58 pm
                                      Jsneathen21
                                      Participant

                                        Yay!!!! I am so happy to hear this!!!!:)

                                        • January 22, 2015 at 1:58 pm
                                        Jsneathen21
                                        Participant

                                          Yay!!!! I am so happy to hear this!!!!:)

                                          • January 22, 2015 at 1:58 pm
                                          Jsneathen21
                                          Participant

                                            Yay!!!! I am so happy to hear this!!!!:)

                                            • January 22, 2015 at 2:40 pm
                                            kpcollins31
                                            Participant

                                              Congratulations, Josh – that is great news.

                                              Kevin

                                              • January 22, 2015 at 2:40 pm
                                              kpcollins31
                                              Participant

                                                Congratulations, Josh – that is great news.

                                                Kevin

                                                • January 22, 2015 at 2:40 pm
                                                kpcollins31
                                                Participant

                                                  Congratulations, Josh – that is great news.

                                                  Kevin

                                                  • January 22, 2015 at 2:47 pm
                                                  Mat
                                                  Participant

                                                    Awesome news!

                                                    • January 22, 2015 at 2:47 pm
                                                    Mat
                                                    Participant

                                                      Awesome news!

                                                      • January 22, 2015 at 2:47 pm
                                                      Mat
                                                      Participant

                                                        Awesome news!

                                                        • January 22, 2015 at 3:28 pm
                                                        Bubbles
                                                        Participant

                                                          Wonderful, Josh!  C

                                                          • January 22, 2015 at 3:28 pm
                                                          Bubbles
                                                          Participant

                                                            Wonderful, Josh!  C

                                                            • January 22, 2015 at 3:28 pm
                                                            Bubbles
                                                            Participant

                                                              Wonderful, Josh!  C

                                                                • January 22, 2015 at 4:48 pm
                                                                Maureen038
                                                                Participant

                                                                  That's such awesome news Josh!!

                                                                  • January 22, 2015 at 4:48 pm
                                                                  Maureen038
                                                                  Participant

                                                                    That's such awesome news Josh!!

                                                                    • January 22, 2015 at 4:48 pm
                                                                    Maureen038
                                                                    Participant

                                                                      That's such awesome news Josh!!

                                                                    • January 22, 2015 at 4:49 pm
                                                                    jenny22
                                                                    Participant

                                                                      Josh- such great news…I am SO happy for you!!!! May it continue

                                                                       

                                                                      j

                                                                      • January 22, 2015 at 4:49 pm
                                                                      jenny22
                                                                      Participant

                                                                        Josh- such great news…I am SO happy for you!!!! May it continue

                                                                         

                                                                        j

                                                                        • January 22, 2015 at 4:49 pm
                                                                        jenny22
                                                                        Participant

                                                                          Josh- such great news…I am SO happy for you!!!! May it continue

                                                                           

                                                                          j

                                                                            • January 22, 2015 at 6:43 pm
                                                                            Jewel
                                                                            Participant

                                                                              Awesome!!!!

                                                                              • January 22, 2015 at 6:43 pm
                                                                              Jewel
                                                                              Participant

                                                                                Awesome!!!!

                                                                                • January 22, 2015 at 6:43 pm
                                                                                Jewel
                                                                                Participant

                                                                                  Awesome!!!!

                                                                                • January 23, 2015 at 2:06 am
                                                                                KMick
                                                                                Participant

                                                                                  Hey Josh,

                                                                                  When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

                                                                                  • January 23, 2015 at 2:06 am
                                                                                  KMick
                                                                                  Participant

                                                                                    Hey Josh,

                                                                                    When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

                                                                                    • January 23, 2015 at 2:06 am
                                                                                    KMick
                                                                                    Participant

                                                                                      Hey Josh,

                                                                                      When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

                                                                                      • January 23, 2015 at 2:22 am
                                                                                      JoshF
                                                                                      Participant

                                                                                        Thanks everyone…I really appreciate the support, kind words etc…

                                                                                        Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

                                                                                        • January 23, 2015 at 2:22 am
                                                                                        JoshF
                                                                                        Participant

                                                                                          Thanks everyone…I really appreciate the support, kind words etc…

                                                                                          Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

                                                                                          • January 23, 2015 at 2:22 am
                                                                                          JoshF
                                                                                          Participant

                                                                                            Thanks everyone…I really appreciate the support, kind words etc…

                                                                                            Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

                                                                                            • January 23, 2015 at 6:32 pm
                                                                                            MattF
                                                                                            Participant

                                                                                              NICE!

                                                                                              • January 23, 2015 at 6:32 pm
                                                                                              MattF
                                                                                              Participant

                                                                                                NICE!

                                                                                                • January 23, 2015 at 6:32 pm
                                                                                                MattF
                                                                                                Participant

                                                                                                  NICE!

                                                                                                  • January 24, 2015 at 11:39 pm
                                                                                                  evieg
                                                                                                  Participant

                                                                                                    Awesome News!!

                                                                                                    • January 24, 2015 at 11:39 pm
                                                                                                    evieg
                                                                                                    Participant

                                                                                                      Awesome News!!

                                                                                                      • January 24, 2015 at 11:39 pm
                                                                                                      evieg
                                                                                                      Participant

                                                                                                        Awesome News!!

                                                                                                        • January 25, 2015 at 6:00 pm
                                                                                                        Jahendry12
                                                                                                        Participant

                                                                                                          So happy for you Josh!

                                                                                                           

                                                                                                          • January 25, 2015 at 6:00 pm
                                                                                                          Jahendry12
                                                                                                          Participant

                                                                                                            So happy for you Josh!

                                                                                                             

                                                                                                            • January 25, 2015 at 6:00 pm
                                                                                                            Jahendry12
                                                                                                            Participant

                                                                                                              So happy for you Josh!

                                                                                                               

                                                                                                          Viewing 44 reply threads
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