Went today to get my stitches out from the crainectomy along with the pathology and suggestions.
Found out that the pathology said that the tumor was already 70% gone before the surgery!!!! The issue was all edema. While originally it was to be more radiation ect they have decided that the tumor bed is gone. They have started weaning the steroids tonight and am now at 3mgs. Will take about 3 weeks with hopefully no issues.
Went today to get my stitches out from the crainectomy along with the pathology and suggestions.
Found out that the pathology said that the tumor was already 70% gone before the surgery!!!! The issue was all edema. While originally it was to be more radiation ect they have decided that the tumor bed is gone. They have started weaning the steroids tonight and am now at 3mgs. Will take about 3 weeks with hopefully no issues.
My body is destroyed and will take quite a while to get back strength. I have both an occupational therapist and a physical therapist. I know it will take time but how excited I am with their news! My next appointment with the nuerosurgeon in 3 weeks, as of today he felt that I had no nuerological damage. Last Pet was Jan 3rd and at that time was NED.
The next few weeks I will be working so hard to get my strength back.
I think we flew home from Charlotte instead of the car driving. Dance with us tonight.
Linda
Originally stage 1A in 1979
Stage IV 2006 – 7 recurrances
Brain Met – Oct 2011 been dealing with steroids since then
Now Feb 15th NED!!!!
There is hope
.
