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OMG! I’m NED!!!!!

Forums General Melanoma Community OMG! I’m NED!!!!!

  • Post
    lhaley
    Participant

      Went today to get my stitches out from the crainectomy along with the pathology and suggestions.

      Found out that the pathology said that the tumor was already 70% gone before the surgery!!!!  The issue was all edema.  While originally it was to be more radiation ect they have decided that the tumor bed is gone.  They have started weaning the steroids tonight and am now at 3mgs. Will take about 3 weeks with hopefully no issues.

      Went today to get my stitches out from the crainectomy along with the pathology and suggestions.

      Found out that the pathology said that the tumor was already 70% gone before the surgery!!!!  The issue was all edema.  While originally it was to be more radiation ect they have decided that the tumor bed is gone.  They have started weaning the steroids tonight and am now at 3mgs. Will take about 3 weeks with hopefully no issues.

      My body is destroyed and will take quite a while to get back strength. I have both an occupational therapist and a physical therapist. I know it will take time but how excited I am with their news!   My next appointment with the nuerosurgeon in 3 weeks, as of today he felt that I had no nuerological damage.  Last Pet was Jan 3rd and at that time was NED. 

      The next few weeks I will be working so hard to get my strength back.

      I think we flew home from Charlotte instead of the car driving.  Dance with us tonight.

      Linda

      Originally stage 1A in 1979

      Stage IV 2006 – 7 recurrances

      Brain Met – Oct 2011 been dealing with steroids since then

      Now Feb 15th  NED!!!!

      There is hope

    Viewing 56 reply threads
    • Replies
        Karin L
        Participant

          I am SOOOOOOOOOO happy for you Linda!!!  *claps hands and jumps around*

          Karin

          Karin L
          Participant

            I am SOOOOOOOOOO happy for you Linda!!!  *claps hands and jumps around*

            Karin

            Karin L
            Participant

              I am SOOOOOOOOOO happy for you Linda!!!  *claps hands and jumps around*

              Karin

              vivian
              Participant

                Oh my gosh, this is the best news I have read in a long time!  Yay, Linda!!!  I wish I could give you a real hug, but meantime, please know that virtual hugs and cheers are coming to you from Delaware.  You continue to give all of us hope and happiness.

                Lear

                vivian
                Participant

                  Oh my gosh, this is the best news I have read in a long time!  Yay, Linda!!!  I wish I could give you a real hug, but meantime, please know that virtual hugs and cheers are coming to you from Delaware.  You continue to give all of us hope and happiness.

                  Lear

                  vivian
                  Participant

                    Oh my gosh, this is the best news I have read in a long time!  Yay, Linda!!!  I wish I could give you a real hug, but meantime, please know that virtual hugs and cheers are coming to you from Delaware.  You continue to give all of us hope and happiness.

                    Lear

                    CLPrice31
                    Participant

                      What wonderful news! Now you can focus on healing. Best wishes.

                      CLPrice31
                      Participant

                        What wonderful news! Now you can focus on healing. Best wishes.

                        CLPrice31
                        Participant

                          What wonderful news! Now you can focus on healing. Best wishes.

                          aldakota22
                          Participant

                            Great News.We all share in your happiness and joy.Always super to get positve stoies on this site.All the best from now on.God bless.

                            aldakota22
                            Participant

                              Great News.We all share in your happiness and joy.Always super to get positve stoies on this site.All the best from now on.God bless.

                              aldakota22
                              Participant

                                Great News.We all share in your happiness and joy.Always super to get positve stoies on this site.All the best from now on.God bless.

                                shellebrownies
                                Participant

                                  Linda,

                                  Just had to pop in and celebrate with you! So glad to hear you got good news! So glad you got your miracle and I will continue to pray for lots more for you….or better yet, that you won't need any more miracles!

                                  Lots of love,

                                  Michelle, wife of Don

                                  shellebrownies
                                  Participant

                                    Linda,

                                    Just had to pop in and celebrate with you! So glad to hear you got good news! So glad you got your miracle and I will continue to pray for lots more for you….or better yet, that you won't need any more miracles!

                                    Lots of love,

                                    Michelle, wife of Don

                                      yoopergirl
                                      Participant

                                        That is such wonderful news gives all such hope here. 

                                        yoopergirl
                                        Participant

                                          That is such wonderful news gives all such hope here. 

                                          yoopergirl
                                          Participant

                                            That is such wonderful news gives all such hope here. 

                                          shellebrownies
                                          Participant

                                            Linda,

                                            Just had to pop in and celebrate with you! So glad to hear you got good news! So glad you got your miracle and I will continue to pray for lots more for you….or better yet, that you won't need any more miracles!

                                            Lots of love,

                                            Michelle, wife of Don

                                            washoegal
                                            Participant

                                              What wonderful news! 

                                              washoegal
                                              Participant

                                                What wonderful news! 

                                                washoegal
                                                Participant

                                                  What wonderful news! 

                                                  hope4cure1
                                                  Participant

                                                    You made me choke on Valentines candy!!!!  Way to go, Linda!!!  That is just the best news ever.

                                                    I think a bunch of people are dancing with you tonight :)

                                                    Hope

                                                    hope4cure1
                                                    Participant

                                                      You made me choke on Valentines candy!!!!  Way to go, Linda!!!  That is just the best news ever.

                                                      I think a bunch of people are dancing with you tonight :)

                                                      Hope

                                                      hope4cure1
                                                      Participant

                                                        You made me choke on Valentines candy!!!!  Way to go, Linda!!!  That is just the best news ever.

                                                        I think a bunch of people are dancing with you tonight :)

                                                        Hope

                                                        natasha
                                                        Participant

                                                          CONGRADULATIONS !!!!

                                                          I am waiting for my tests done and hoping to be Ned aswell!!!

                                                          natasha
                                                          Participant

                                                            CONGRADULATIONS !!!!

                                                            I am waiting for my tests done and hoping to be Ned aswell!!!

                                                            natasha
                                                            Participant

                                                              CONGRADULATIONS !!!!

                                                              I am waiting for my tests done and hoping to be Ned aswell!!!

                                                              triciad
                                                              Participant

                                                                Linda,

                                                                The best Valentine I have ever received!  I pray that your body gets stronger, and with that physical strength, you can enjoy all that life has to offer.  We already know you have the emotional and pyschological strength!  You are quite a fighter…General Linda!  Keep the momentum going, and here's to many more decades of NED!!!!

                                                                Tricia

                                                                triciad
                                                                Participant

                                                                  Linda,

                                                                  The best Valentine I have ever received!  I pray that your body gets stronger, and with that physical strength, you can enjoy all that life has to offer.  We already know you have the emotional and pyschological strength!  You are quite a fighter…General Linda!  Keep the momentum going, and here's to many more decades of NED!!!!

                                                                  Tricia

                                                                  triciad
                                                                  Participant

                                                                    Linda,

                                                                    The best Valentine I have ever received!  I pray that your body gets stronger, and with that physical strength, you can enjoy all that life has to offer.  We already know you have the emotional and pyschological strength!  You are quite a fighter…General Linda!  Keep the momentum going, and here's to many more decades of NED!!!!

                                                                    Tricia

                                                                    MeNDave
                                                                    Participant

                                                                      Way to go Linda!!  We're smiling with you!  Woohoo!

                                                                      MeNDave
                                                                      Participant

                                                                        Way to go Linda!!  We're smiling with you!  Woohoo!

                                                                        MeNDave
                                                                        Participant

                                                                          Way to go Linda!!  We're smiling with you!  Woohoo!

                                                                          Rebecca and Bob
                                                                          Participant

                                                                            Linda,

                                                                             

                                                                            Your such a great inspiration to others. Your post is wonderful news, so happy for you. Praying for you that this is it, no more dealing with melanoma.  We go in next week and seeing your positive news makes it a lot easier.

                                                                            Celebrate!

                                                                            Rebecca

                                                                            Rebecca and Bob
                                                                            Participant

                                                                              Linda,

                                                                               

                                                                              Your such a great inspiration to others. Your post is wonderful news, so happy for you. Praying for you that this is it, no more dealing with melanoma.  We go in next week and seeing your positive news makes it a lot easier.

                                                                              Celebrate!

                                                                              Rebecca

                                                                              Rebecca and Bob
                                                                              Participant

                                                                                Linda,

                                                                                 

                                                                                Your such a great inspiration to others. Your post is wonderful news, so happy for you. Praying for you that this is it, no more dealing with melanoma.  We go in next week and seeing your positive news makes it a lot easier.

                                                                                Celebrate!

                                                                                Rebecca

                                                                                Fen
                                                                                Participant

                                                                                  Best news ever!  I'm thrilled and so happy for you. Celebrate every day.

                                                                                  Fen
                                                                                  Participant

                                                                                    Best news ever!  I'm thrilled and so happy for you. Celebrate every day.

                                                                                    Fen
                                                                                    Participant

                                                                                      Best news ever!  I'm thrilled and so happy for you. Celebrate every day.

                                                                                      justlittleoleme
                                                                                      Participant

                                                                                        What fantastic news Linda!!!!

                                                                                        Here's hoping for a lifetime NED!!!!

                                                                                        justlittleoleme
                                                                                        Participant

                                                                                          What fantastic news Linda!!!!

                                                                                          Here's hoping for a lifetime NED!!!!

                                                                                          justlittleoleme
                                                                                          Participant

                                                                                            What fantastic news Linda!!!!

                                                                                            Here's hoping for a lifetime NED!!!!

                                                                                            Richard_K
                                                                                            Participant

                                                                                              Linda

                                                                                              What can I say? Way to go. Congratulations.

                                                                                              Dick

                                                                                              Richard_K
                                                                                              Participant

                                                                                                Linda

                                                                                                What can I say? Way to go. Congratulations.

                                                                                                Dick

                                                                                                Richard_K
                                                                                                Participant

                                                                                                  Linda

                                                                                                  What can I say? Way to go. Congratulations.

                                                                                                  Dick

                                                                                                  scots
                                                                                                  Participant

                                                                                                    Great news.     NED     

                                                                                                    scot

                                                                                                    scots
                                                                                                    Participant

                                                                                                      Great news.     NED     

                                                                                                      scot

                                                                                                      scots
                                                                                                      Participant

                                                                                                        Great news.     NED     

                                                                                                        scot

                                                                                                        Gene_S
                                                                                                        Participant

                                                                                                          Wow Linda that is terrific news.  Congratulations and here is hoping for many years of NED.

                                                                                                          Judy and Gene

                                                                                                          Gene_S
                                                                                                          Participant

                                                                                                            Wow Linda that is terrific news.  Congratulations and here is hoping for many years of NED.

                                                                                                            Judy and Gene

                                                                                                              NYKaren
                                                                                                              Participant
                                                                                                                Linda,
                                                                                                                That’s fantastic news. I’m SO happy for you!
                                                                                                                Big hugs,
                                                                                                                karen
                                                                                                                NYKaren
                                                                                                                Participant
                                                                                                                  Linda,
                                                                                                                  That’s fantastic news. I’m SO happy for you!
                                                                                                                  Big hugs,
                                                                                                                  karen
                                                                                                                  NYKaren
                                                                                                                  Participant
                                                                                                                    Linda,
                                                                                                                    That’s fantastic news. I’m SO happy for you!
                                                                                                                    Big hugs,
                                                                                                                    karen
                                                                                                                  Gene_S
                                                                                                                  Participant

                                                                                                                    Wow Linda that is terrific news.  Congratulations and here is hoping for many years of NED.

                                                                                                                    Judy and Gene

                                                                                                                    KRob
                                                                                                                    Participant

                                                                                                                      Celebrating with you! The very best to you as you work off those steroidal effects- I, too, was on decadron 4+ mos and thought I would never get back, but I did as you will too!

                                                                                                                      KRob
                                                                                                                      Participant

                                                                                                                        Celebrating with you! The very best to you as you work off those steroidal effects- I, too, was on decadron 4+ mos and thought I would never get back, but I did as you will too!

                                                                                                                          boot2aboot
                                                                                                                          Participant

                                                                                                                            Yahooo! you go girl!

                                                                                                                            boots

                                                                                                                            boot2aboot
                                                                                                                            Participant

                                                                                                                              Yahooo! you go girl!

                                                                                                                              boots

                                                                                                                              boot2aboot
                                                                                                                              Participant

                                                                                                                                Yahooo! you go girl!

                                                                                                                                boots

                                                                                                                              KRob
                                                                                                                              Participant

                                                                                                                                Celebrating with you! The very best to you as you work off those steroidal effects- I, too, was on decadron 4+ mos and thought I would never get back, but I did as you will too!

                                                                                                                                FormerCaregiver
                                                                                                                                Participant

                                                                                                                                  Linda, this is truly excellent news!! You give hope and inspiration to so many people!

                                                                                                                                  Take care

                                                                                                                                  Frank from Australia

                                                                                                                                  FormerCaregiver
                                                                                                                                  Participant

                                                                                                                                    Linda, this is truly excellent news!! You give hope and inspiration to so many people!

                                                                                                                                    Take care

                                                                                                                                    Frank from Australia

                                                                                                                                    FormerCaregiver
                                                                                                                                    Participant

                                                                                                                                      Linda, this is truly excellent news!! You give hope and inspiration to so many people!

                                                                                                                                      Take care

                                                                                                                                      Frank from Australia

                                                                                                                                        Vermont_Donna
                                                                                                                                        Participant

                                                                                                                                          Dear Linda,

                                                                                                                                            I am so super happy for you!!! What wonderful welcoming news!!!!! You have done so well and we appreciate your updates and I am sure what treatments you have done will help and inspire others. NEVER give up!!!!

                                                                                                                                          Hugs,

                                                                                                                                          Vermont_Donna, stage 3a, NED ( we are finally NED together!)

                                                                                                                                          Vermont_Donna
                                                                                                                                          Participant

                                                                                                                                            Dear Linda,

                                                                                                                                              I am so super happy for you!!! What wonderful welcoming news!!!!! You have done so well and we appreciate your updates and I am sure what treatments you have done will help and inspire others. NEVER give up!!!!

                                                                                                                                            Hugs,

                                                                                                                                            Vermont_Donna, stage 3a, NED ( we are finally NED together!)

                                                                                                                                            Vermont_Donna
                                                                                                                                            Participant

                                                                                                                                              Dear Linda,

                                                                                                                                                I am so super happy for you!!! What wonderful welcoming news!!!!! You have done so well and we appreciate your updates and I am sure what treatments you have done will help and inspire others. NEVER give up!!!!

                                                                                                                                              Hugs,

                                                                                                                                              Vermont_Donna, stage 3a, NED ( we are finally NED together!)

                                                                                                                                            gabsound
                                                                                                                                            Participant
                                                                                                                                              Linda,

                                                                                                                                              I’m so happy for you! Here’s hoping your recovery goes well and you will be back to your strong self soon.

                                                                                                                                              Delighted for you,

                                                                                                                                              Julie in Las Vegas

                                                                                                                                              gabsound
                                                                                                                                              Participant
                                                                                                                                                Linda,

                                                                                                                                                I’m so happy for you! Here’s hoping your recovery goes well and you will be back to your strong self soon.

                                                                                                                                                Delighted for you,

                                                                                                                                                Julie in Las Vegas

                                                                                                                                                gabsound
                                                                                                                                                Participant
                                                                                                                                                  Linda,

                                                                                                                                                  I’m so happy for you! Here’s hoping your recovery goes well and you will be back to your strong self soon.

                                                                                                                                                  Delighted for you,

                                                                                                                                                  Julie in Las Vegas

                                                                                                                                              Viewing 56 reply threads
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