MRF-Logo2019-Horizontal-RGB
Hoping to celebrate 1 year NED today
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Hoping to celebrate 1 year NED today

› Forums › General Melanoma Community › Hoping to celebrate 1 year NED today

  • Post
    • February 12, 2014 at 1:21 pm
    Jahendry12
    Participant

      I'm sitting at Rush Univ Med Center while my husband is having a 3 month follow up CT.  If results are good, he will be 1 year NED with stage IV melanoma.  Hoping to report good news!

      Saying my prayers and keeping the faith. 

      Julie

    Viewing 26 reply threads
    • Replies
        • February 12, 2014 at 1:28 pm
        JC
        Participant

          Hope it goes well.  Which Dr do you see now that Kaufman left?

            • February 13, 2014 at 8:46 pm
            Jahendry12
            Participant

              Yesterday we saw Dr. Bines.  He performed the LND on my husband in 2011 and we have been following up with he & Kaufman since.  We have not switched over to another Melanoma specialist.  Fortunately, my husband has not had to have anything other than surgery to remove the melonoma. 

              We still keep in touch with Dr. Kaufman and if something comes up, we will consult with him.

              • February 13, 2014 at 8:46 pm
              Jahendry12
              Participant

                Yesterday we saw Dr. Bines.  He performed the LND on my husband in 2011 and we have been following up with he & Kaufman since.  We have not switched over to another Melanoma specialist.  Fortunately, my husband has not had to have anything other than surgery to remove the melonoma. 

                We still keep in touch with Dr. Kaufman and if something comes up, we will consult with him.

                • February 13, 2014 at 8:46 pm
                Jahendry12
                Participant

                  Yesterday we saw Dr. Bines.  He performed the LND on my husband in 2011 and we have been following up with he & Kaufman since.  We have not switched over to another Melanoma specialist.  Fortunately, my husband has not had to have anything other than surgery to remove the melonoma. 

                  We still keep in touch with Dr. Kaufman and if something comes up, we will consult with him.

                • February 12, 2014 at 1:28 pm
                JC
                Participant

                  Hope it goes well.  Which Dr do you see now that Kaufman left?

                  • February 12, 2014 at 1:28 pm
                  JC
                  Participant

                    Hope it goes well.  Which Dr do you see now that Kaufman left?

                    • February 12, 2014 at 1:29 pm
                    JoshF
                    Participant

                      I've sat there many times waiting on my CT results….they were always good until Kaufman was leaving and he directed me to Richards. Who has been great as well as Dr. Hallmeyer. Anyway my point being…I'm praying for clear scans for your husband. I know the anxiety…I have mine next week and it consumes your every thought. Wishing you the best!!!

                      Josh

                        • February 13, 2014 at 8:48 pm
                        Jahendry12
                        Participant

                          Josh – keeping you in my prayers for good results next week.  As you know, the days of the scans are emotionally draining and we always go home exhausted! 

                          Hoping to hear good news from you next week.

                          • February 13, 2014 at 8:48 pm
                          Jahendry12
                          Participant

                            Josh – keeping you in my prayers for good results next week.  As you know, the days of the scans are emotionally draining and we always go home exhausted! 

                            Hoping to hear good news from you next week.

                            • February 13, 2014 at 8:48 pm
                            Jahendry12
                            Participant

                              Josh – keeping you in my prayers for good results next week.  As you know, the days of the scans are emotionally draining and we always go home exhausted! 

                              Hoping to hear good news from you next week.

                            • February 12, 2014 at 1:29 pm
                            JoshF
                            Participant

                              I've sat there many times waiting on my CT results….they were always good until Kaufman was leaving and he directed me to Richards. Who has been great as well as Dr. Hallmeyer. Anyway my point being…I'm praying for clear scans for your husband. I know the anxiety…I have mine next week and it consumes your every thought. Wishing you the best!!!

                              Josh

                              • February 12, 2014 at 1:29 pm
                              JoshF
                              Participant

                                I've sat there many times waiting on my CT results….they were always good until Kaufman was leaving and he directed me to Richards. Who has been great as well as Dr. Hallmeyer. Anyway my point being…I'm praying for clear scans for your husband. I know the anxiety…I have mine next week and it consumes your every thought. Wishing you the best!!!

                                Josh

                                • February 12, 2014 at 1:43 pm
                                POW
                                Participant

                                  I'll be praying for you and your husband today. Hang on to your PMA!!

                                  • February 12, 2014 at 1:43 pm
                                  POW
                                  Participant

                                    I'll be praying for you and your husband today. Hang on to your PMA!!

                                    • February 12, 2014 at 1:43 pm
                                    POW
                                    Participant

                                      I'll be praying for you and your husband today. Hang on to your PMA!!

                                      • February 12, 2014 at 1:46 pm
                                      JerryfromFauq
                                      Participant

                                        COME ON, COME ON, COME ON!!!  DO IT, DO IT, DO IT!!!

                                         

                                        • February 12, 2014 at 1:46 pm
                                        JerryfromFauq
                                        Participant

                                          COME ON, COME ON, COME ON!!!  DO IT, DO IT, DO IT!!!

                                           

                                            • February 14, 2014 at 10:46 am
                                            Jahendry12
                                            Participant

                                              Did it Jerry 🙂

                                              • February 14, 2014 at 10:46 am
                                              Jahendry12
                                              Participant

                                                Did it Jerry 🙂

                                                • February 14, 2014 at 10:46 am
                                                Jahendry12
                                                Participant

                                                  Did it Jerry 🙂

                                                • February 12, 2014 at 1:46 pm
                                                JerryfromFauq
                                                Participant

                                                  COME ON, COME ON, COME ON!!!  DO IT, DO IT, DO IT!!!

                                                   

                                                  • February 12, 2014 at 2:18 pm
                                                  kpcollins31
                                                  Participant

                                                    Good luck – I'm pulling for those clear scans.

                                                    Kevin

                                                     

                                                    • February 12, 2014 at 2:18 pm
                                                    kpcollins31
                                                    Participant

                                                      Good luck – I'm pulling for those clear scans.

                                                      Kevin

                                                       

                                                      • February 12, 2014 at 2:18 pm
                                                      kpcollins31
                                                      Participant

                                                        Good luck – I'm pulling for those clear scans.

                                                        Kevin

                                                         

                                                          • February 12, 2014 at 2:42 pm
                                                          Brendan
                                                          Participant

                                                            Good luck to you and your husband!

                                                            Brendan

                                                            • February 12, 2014 at 2:42 pm
                                                            Brendan
                                                            Participant

                                                              Good luck to you and your husband!

                                                              Brendan

                                                              • February 12, 2014 at 2:42 pm
                                                              Brendan
                                                              Participant

                                                                Good luck to you and your husband!

                                                                Brendan

                                                              • February 12, 2014 at 3:36 pm
                                                              mwcollins
                                                              Participant
                                                                Many prayers and positive thoughts for you and your husband!
                                                                • February 12, 2014 at 3:36 pm
                                                                mwcollins
                                                                Participant
                                                                  Many prayers and positive thoughts for you and your husband!
                                                                  • February 12, 2014 at 3:36 pm
                                                                  mwcollins
                                                                  Participant
                                                                    Many prayers and positive thoughts for you and your husband!
                                                                    • February 12, 2014 at 5:01 pm
                                                                    aldakota22
                                                                    Participant

                                                                      Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

                                                                      • February 12, 2014 at 5:01 pm
                                                                      aldakota22
                                                                      Participant

                                                                        Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

                                                                          • February 13, 2014 at 8:42 pm
                                                                          Jahendry12
                                                                          Participant

                                                                            Thank you everyone for your support and prayers.  The people on this site are the best!

                                                                            We are now 1 year NED!!!  Scans came back with 'nothing of great concern.'  We are relieved to say the least.  Emotionally exausted by the time we got home….but I'm preaching to the choir here 🙂

                                                                            We will have another CT in May and we are having an MRI within the next week since it's been 6 months.

                                                                            I have a question I was hoping someone could help out with.  I read the CT report last night and at the end of the report, there is an ATTENDING IMPRESSION entry which states the following:  "There is some degree of nodularity along the new staple line and close attention on follow up examinations is recommended."  I'm not exactly sure what that means.  By 'new staple line' I'm assuming it's were he had the most recent dissection of the non-cancerous nodules. 

                                                                            Does anyone know what this means?  Let me know if more information from the CT is needed.

                                                                            Thanks!  Julie

                                                                            • February 13, 2014 at 8:42 pm
                                                                            Jahendry12
                                                                            Participant

                                                                              Thank you everyone for your support and prayers.  The people on this site are the best!

                                                                              We are now 1 year NED!!!  Scans came back with 'nothing of great concern.'  We are relieved to say the least.  Emotionally exausted by the time we got home….but I'm preaching to the choir here 🙂

                                                                              We will have another CT in May and we are having an MRI within the next week since it's been 6 months.

                                                                              I have a question I was hoping someone could help out with.  I read the CT report last night and at the end of the report, there is an ATTENDING IMPRESSION entry which states the following:  "There is some degree of nodularity along the new staple line and close attention on follow up examinations is recommended."  I'm not exactly sure what that means.  By 'new staple line' I'm assuming it's were he had the most recent dissection of the non-cancerous nodules. 

                                                                              Does anyone know what this means?  Let me know if more information from the CT is needed.

                                                                              Thanks!  Julie

                                                                              • February 13, 2014 at 8:42 pm
                                                                              Jahendry12
                                                                              Participant

                                                                                Thank you everyone for your support and prayers.  The people on this site are the best!

                                                                                We are now 1 year NED!!!  Scans came back with 'nothing of great concern.'  We are relieved to say the least.  Emotionally exausted by the time we got home….but I'm preaching to the choir here 🙂

                                                                                We will have another CT in May and we are having an MRI within the next week since it's been 6 months.

                                                                                I have a question I was hoping someone could help out with.  I read the CT report last night and at the end of the report, there is an ATTENDING IMPRESSION entry which states the following:  "There is some degree of nodularity along the new staple line and close attention on follow up examinations is recommended."  I'm not exactly sure what that means.  By 'new staple line' I'm assuming it's were he had the most recent dissection of the non-cancerous nodules. 

                                                                                Does anyone know what this means?  Let me know if more information from the CT is needed.

                                                                                Thanks!  Julie

                                                                                • February 14, 2014 at 3:44 am
                                                                                Janner
                                                                                Participant

                                                                                  Radiologists mention EVERYTHING.  Your doc has to interpret what is significant and if he doesn't say anything, it means it doesn't seem significant to him.  This could be something as simple as scar tissue. Confirm with your doc, but don't worry too much.

                                                                                  • February 14, 2014 at 3:44 am
                                                                                  Janner
                                                                                  Participant

                                                                                    Radiologists mention EVERYTHING.  Your doc has to interpret what is significant and if he doesn't say anything, it means it doesn't seem significant to him.  This could be something as simple as scar tissue. Confirm with your doc, but don't worry too much.

                                                                                    • February 14, 2014 at 3:44 am
                                                                                    Janner
                                                                                    Participant

                                                                                      Radiologists mention EVERYTHING.  Your doc has to interpret what is significant and if he doesn't say anything, it means it doesn't seem significant to him.  This could be something as simple as scar tissue. Confirm with your doc, but don't worry too much.

                                                                                      • February 14, 2014 at 7:09 am
                                                                                      JerryfromFauq
                                                                                      Participant

                                                                                        Don't you bet the Doc will say that the staples pinch the flesh?

                                                                                         

                                                                                        • February 14, 2014 at 7:09 am
                                                                                        JerryfromFauq
                                                                                        Participant

                                                                                          Don't you bet the Doc will say that the staples pinch the flesh?

                                                                                           

                                                                                          • February 14, 2014 at 7:09 am
                                                                                          JerryfromFauq
                                                                                          Participant

                                                                                            Don't you bet the Doc will say that the staples pinch the flesh?

                                                                                             

                                                                                          • February 12, 2014 at 5:01 pm
                                                                                          aldakota22
                                                                                          Participant

                                                                                            Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

                                                                                            • February 14, 2014 at 11:16 am
                                                                                            JoshF
                                                                                            Participant

                                                                                              So happy to hear….been wondering!!!! Now stay that way for years to come!!!!

                                                                                               

                                                                                              Josh

                                                                                                • February 16, 2014 at 7:03 am
                                                                                                Jahendry12
                                                                                                Participant

                                                                                                  Thanks everyone!

                                                                                                  josh – hope you saw my reply to you above. Hope you get good results next week. Keeping you in my prayers. Keep us posted 

                                                                                                  • February 16, 2014 at 7:03 am
                                                                                                  Jahendry12
                                                                                                  Participant

                                                                                                    Thanks everyone!

                                                                                                    josh – hope you saw my reply to you above. Hope you get good results next week. Keeping you in my prayers. Keep us posted 

                                                                                                    • February 16, 2014 at 7:03 am
                                                                                                    Jahendry12
                                                                                                    Participant

                                                                                                      Thanks everyone!

                                                                                                      josh – hope you saw my reply to you above. Hope you get good results next week. Keeping you in my prayers. Keep us posted 

                                                                                                    • February 14, 2014 at 11:16 am
                                                                                                    JoshF
                                                                                                    Participant

                                                                                                      So happy to hear….been wondering!!!! Now stay that way for years to come!!!!

                                                                                                       

                                                                                                      Josh

                                                                                                      • February 14, 2014 at 11:16 am
                                                                                                      JoshF
                                                                                                      Participant

                                                                                                        So happy to hear….been wondering!!!! Now stay that way for years to come!!!!

                                                                                                         

                                                                                                        Josh

                                                                                                        • February 14, 2014 at 1:54 pm
                                                                                                        BrianP
                                                                                                        Participant

                                                                                                          So happy to hear your great news Julie.  1 year of many more to come!

                                                                                                          Brian

                                                                                                          • February 14, 2014 at 1:54 pm
                                                                                                          BrianP
                                                                                                          Participant

                                                                                                            So happy to hear your great news Julie.  1 year of many more to come!

                                                                                                            Brian

                                                                                                            • February 14, 2014 at 1:54 pm
                                                                                                            BrianP
                                                                                                            Participant

                                                                                                              So happy to hear your great news Julie.  1 year of many more to come!

                                                                                                              Brian

                                                                                                          Viewing 26 reply threads
                                                                                                          • You must be logged in to reply to this topic.
                                                                                                          About the MRF Patient Forum

                                                                                                          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                                          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                                                          Popular Topics