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great news – BRAF after ipi
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great news – BRAF after ipi

› Forums › General Melanoma Community › great news – BRAF after ipi

  • Post
    • August 12, 2011 at 12:17 pm
    TracyLee
    Participant

      Hi y'all,

      I began BRAF this past Monday, after completing 4 rounds of ipi.

      I am having an excellent BRAF response, already!

      Neck nodes are down at least 1/3, if not 1/2.

      Lumps/painful bumps on scalp – much smaller, flattening out.

      Just wanted to post some happy news to encourage everyone out there.

      Always keep trying, never give up.

      God is SO good!

      Woo hoo, posse up, we are kicking it to the curb!

      TracyLee

      Hi y'all,

      I began BRAF this past Monday, after completing 4 rounds of ipi.

      I am having an excellent BRAF response, already!

      Neck nodes are down at least 1/3, if not 1/2.

      Lumps/painful bumps on scalp – much smaller, flattening out.

      Just wanted to post some happy news to encourage everyone out there.

      Always keep trying, never give up.

      God is SO good!

      Woo hoo, posse up, we are kicking it to the curb!

      TracyLee

    Viewing 15 reply threads
    • Replies
        • August 12, 2011 at 12:20 pm
        lhaley
        Participant

          Wow!  So glad you are having such a quick response! Didn't you just start the drug on Monday or Tuesday? 

          Thanks for posting!

          Linda

            • August 12, 2011 at 12:33 pm
            Lisa13
            Participant

              This is fabulous news and I'm so happy for you. At this point, I'm starting to think this ipi has kicked in at long last and the BRAF drugs are going to speed things up. 

              Thank you so much for your positive news – we all need it!

              Wishing you continued success with this beast!

              Lisa

              • August 12, 2011 at 12:33 pm
              Lisa13
              Participant

                This is fabulous news and I'm so happy for you. At this point, I'm starting to think this ipi has kicked in at long last and the BRAF drugs are going to speed things up. 

                Thank you so much for your positive news – we all need it!

                Wishing you continued success with this beast!

                Lisa

              • August 12, 2011 at 12:20 pm
              lhaley
              Participant

                Wow!  So glad you are having such a quick response! Didn't you just start the drug on Monday or Tuesday? 

                Thanks for posting!

                Linda

                • August 12, 2011 at 1:35 pm
                nicoli
                Participant

                  I'm so happy for you and your family. And it worked soooo fast. May the Lord continue to bless you. Live a long life, TracyLee. Get old and fat and cranky. Be a grandmother and a mother in law but not like my mother in law!

                  Nicki, Stage 3b

                  • August 12, 2011 at 1:35 pm
                  nicoli
                  Participant

                    I'm so happy for you and your family. And it worked soooo fast. May the Lord continue to bless you. Live a long life, TracyLee. Get old and fat and cranky. Be a grandmother and a mother in law but not like my mother in law!

                    Nicki, Stage 3b

                      • August 12, 2011 at 1:38 pm
                      NYKaren
                      Participant

                        TracyLee,

                        I am SO happy for you!  Being less than thrilled with my own response to Ipi so far (which could still happen) I was so depressed this morning.  Your post made my day.

                        May you continue to kick mel's ass and thanks for the inspiration!!

                        karen

                        • August 12, 2011 at 1:38 pm
                        NYKaren
                        Participant

                          TracyLee,

                          I am SO happy for you!  Being less than thrilled with my own response to Ipi so far (which could still happen) I was so depressed this morning.  Your post made my day.

                          May you continue to kick mel's ass and thanks for the inspiration!!

                          karen

                          • August 12, 2011 at 1:40 pm
                          TracyLee
                          Participant

                            Karen,

                            Don't give up on ipi yet. I specifically asked Dr. Schuchter on Monday, how "late" of a response has she seen with ipi.

                            Her reply was SIX months. Now, we all want a quicker response, but just wanted you to know it could still kick in, long after you are done!

                            TracyLee

                            • August 12, 2011 at 1:40 pm
                            TracyLee
                            Participant

                              Karen,

                              Don't give up on ipi yet. I specifically asked Dr. Schuchter on Monday, how "late" of a response has she seen with ipi.

                              Her reply was SIX months. Now, we all want a quicker response, but just wanted you to know it could still kick in, long after you are done!

                              TracyLee

                            • August 12, 2011 at 2:48 pm
                            MichaelFL
                            Participant

                              That is great news. Glad it was quick, and that you are responding.

                              Keep it up! Keep it up! Keep it up!

                              Michael

                              • August 12, 2011 at 2:48 pm
                              MichaelFL
                              Participant

                                That is great news. Glad it was quick, and that you are responding.

                                Keep it up! Keep it up! Keep it up!

                                Michael

                                • August 12, 2011 at 8:19 pm
                                JerryfromFauq
                                Participant

                                  Tracey, yours is the first case of Ipi followed by BRAF (V600E ? ) that I have noticed.  This should be an iteresting case to follow.  Il-2, and so far Ipi, seems to have a good chance of enhancing other treatments, possibly for speed, intensity and longeivity. 

                                  Sounds great.  Go, gal, go.

                                  • August 12, 2011 at 8:19 pm
                                  JerryfromFauq
                                  Participant

                                    Tracey, yours is the first case of Ipi followed by BRAF (V600E ? ) that I have noticed.  This should be an iteresting case to follow.  Il-2, and so far Ipi, seems to have a good chance of enhancing other treatments, possibly for speed, intensity and longeivity. 

                                    Sounds great.  Go, gal, go.

                                    • August 12, 2011 at 9:19 pm
                                    Carol Taylor
                                    Participant

                                      Wasn't that the plan Tracy, to kick it to the curb?!  You're due a hallelujah moment and I hope you're enjoying the mess out of this! Congratulations Fearless Leader and

                                      Thank You Lord! Amen!!!!

                                      Grace and peace (and a party),

                                      Carol

                                      • August 12, 2011 at 9:19 pm
                                      Carol Taylor
                                      Participant

                                        Wasn't that the plan Tracy, to kick it to the curb?!  You're due a hallelujah moment and I hope you're enjoying the mess out of this! Congratulations Fearless Leader and

                                        Thank You Lord! Amen!!!!

                                        Grace and peace (and a party),

                                        Carol

                                        • August 12, 2011 at 9:56 pm
                                        triciad
                                        Participant

                                          TracyLee,

                                          Keep the momentum going!  Best wishes for success!

                                          Tricia

                                          • August 12, 2011 at 9:56 pm
                                          triciad
                                          Participant

                                            TracyLee,

                                            Keep the momentum going!  Best wishes for success!

                                            Tricia

                                            • August 12, 2011 at 10:48 pm
                                            ValinMtl
                                            Participant

                                              Such wonderful news!  Congratulations…you're kicking mel's big fat butt!!!   Val

                                              • August 12, 2011 at 10:48 pm
                                              ValinMtl
                                              Participant

                                                Such wonderful news!  Congratulations…you're kicking mel's big fat butt!!!   Val

                                                • August 13, 2011 at 12:01 pm
                                                Bruce in NH
                                                Participant

                                                  Way toi go, TracyLee! Keep fighting hard! You can do it!!!  Bruce

                                                  • August 13, 2011 at 12:01 pm
                                                  Bruce in NH
                                                  Participant

                                                    Way toi go, TracyLee! Keep fighting hard! You can do it!!!  Bruce

                                                Viewing 15 reply threads
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