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Finally NED

This topic has 12 replies, 12 voices, and was last updated 8 years, 4 months ago by AliCat61.

Post

- July 25, 2017 at 7:40 am
- Quote
dawn dion
Participant

Hello all. I have been part of this community for nearly 7 yrs. I was diagnosed in June 2010..seems like a lifetime ago. Several months back I came here looking for advise as to what my next step with Keytruda should be. Had been on it for a yr and a half, same spot, the entire 7 yrs, next to my aorta just wouldn’t go away. Some of you suggested radiation with the Keytruda. I went back to my Dr. and fought for it. 5 days a week for 6 weeks I drove 2 hours to Moffitt for a 3 min procedure. In April it as smaller but still there. July 6th I went back for more scans and the words I have been waiting for years to hear where finally said..No Evidence of diesease. I have imagined that conversation so many times over the yrs, never once did I think it would be so emotional. Even mow I am tearing up. It has been such a crazy journey but I want people to know that while I know not everyone’s outcome is the same as mine, never give up the fight. They have done so many amazing things with this diesease and continue to do more every day. I can’t believe I am finally NED, I will be doing a happy dance for a very along time.

Viewing 11 reply threads

Replies

- - July 25, 2017 at 8:45 am
  - Quote
  sgreenberg
  Participant
  
  Congratulations! Enjoy the moment!
- - July 25, 2017 at 11:10 am
  - Quote
  Fen
  Participant
  
  Wonderful news! Celebrate.
- - July 25, 2017 at 12:28 pm
  - Quote
  marta010
  Participant
  
  Congratulations on the wonderful news!
- - July 25, 2017 at 2:11 pm
  - Quote
  jennunicorn
  Participant
  
  Congrats! Keep on happy dancing 🙂
- - July 25, 2017 at 2:28 pm
  - Quote
  jenny22
  Participant
  
  Doesnt get any better than that….congratulations. Enjoy such wonderful news.
- - July 25, 2017 at 2:42 pm
  - Quote
  Scooby123
  Participant
  
  Congratulations too you so pleased and lovely to here that with pushing for treatment it does pay off . Enjoy many years free.
  
  Scooby❤️
- - July 25, 2017 at 2:48 pm
  - Quote
  Patrisa
  Participant
  
  Your singnature rocks and so do you!! Hope you stay NED forever!
  
  Patrisa
- - July 25, 2017 at 3:09 pm
  - Quote
  Casitas1
  Participant
  
  Way to go!
- - July 25, 2017 at 3:41 pm
  - Quote
  sister of patient
  Participant
  
  Such great news – the best!!! Congratulations!! 🙂
  
  Barb
- - July 26, 2017 at 10:49 am
  - Quote
  Mat
  Participant
  
  Awesome!
- - July 26, 2017 at 2:02 pm
  - Quote
  dodgedh2
  Participant
  
  Congratulation! Welcome to the club.
- - July 26, 2017 at 4:10 pm
  - Quote
  AliCat61
  Participant
  
  So happy for you! Congratulations! Go out and celebrate big!

Viewing 11 reply threads

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