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Complete responder!!! No surgery!!!

Forums General Melanoma Community Complete responder!!! No surgery!!!

  • Post
    Carmon in NM
    Participant

    My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.

    My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.

    I am a complete responder to the clinical trial I did combining carboplatin, paclitaxel and temodar. The adrenal tumor has completely disappeared and the oncs agreed that the risks of a complicated and difficult surgery to remove a tiny bit of inactive tissue were not worth the possible benefits. Instead they are suggesting a round of radiation at the adrenal site to improve my recurrance odds as well as a reduced dose of profilactic whole brain radiation. My medical onc is setting up a consulation for me with an oncology radiologist to discuss this and also with a neurologist when I expressed concern about adding another layer to the brain trauma I already deal with so that I can make a completely informed choice.

    But for tonight, my husband and I are CELEBRATING! Thank you all so much for prayers and words of support – what an incredible group to share the entire curve of this disease with – Carmon in NM (worn out from dancing!)

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  • Replies
      AS123
      Participant

      Phenomenal news! Doing the happy dance for you in NC! :)

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      AS123
      Participant

      Phenomenal news! Doing the happy dance for you in NC! :)

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      ValinMtl
      Participant

      Carmon…I'm just so H A P P Y for you.  Wow, such good news!  Val xx

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      ValinMtl
      Participant

      Carmon…I'm just so H A P P Y for you.  Wow, such good news!  Val xx

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      Janis B.
      Participant

      I'my about to enter my very first clinical trial, so news like this is so wonderful to read.  So happy for you both!!  Keep up the good work and dance every day :-)

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      Janis B.
      Participant

      I'my about to enter my very first clinical trial, so news like this is so wonderful to read.  So happy for you both!!  Keep up the good work and dance every day :-)

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      jimjoeb
      Participant

      Happy dancing for you in Canada!!

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      jimjoeb
      Participant

      Happy dancing for you in Canada!!

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      NancyGM
      Participant

      Congrats on your wonderful news!!

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      NancyGM
      Participant

      Congrats on your wonderful news!!

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      Carol Taylor
      Participant

      Hallelujah Carmon!!!!  And Carmon's husband!!!!  Can't forget him!

      Lots of happy dancing going on tonight!  Thank you, God!

      Prayers for guidance as you make future choices and all the best to you.

      Grace and peace,

      Carol

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      Carol Taylor
      Participant

      Hallelujah Carmon!!!!  And Carmon's husband!!!!  Can't forget him!

      Lots of happy dancing going on tonight!  Thank you, God!

      Prayers for guidance as you make future choices and all the best to you.

      Grace and peace,

      Carol

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      washoegal
      Participant

      Happy, Happy news for sure.  I would certainly take a few days to celebrate before I worried about the next decision.

       

      But can we ask a favor of you, most of us know your story.  But it would be oh so helpful if you fill out your profile especially now with this news!!!!!!!!

       

      Thanks!

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      washoegal
      Participant

      Happy, Happy news for sure.  I would certainly take a few days to celebrate before I worried about the next decision.

       

      But can we ask a favor of you, most of us know your story.  But it would be oh so helpful if you fill out your profile especially now with this news!!!!!!!!

       

      Thanks!

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      SusanE
      Participant

      Fantastic news!! So happy for you both!

       

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      SusanE
      Participant

      Fantastic news!! So happy for you both!

       

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      SusanE
      Participant

      Fantastic news!! So happy for you both!

       

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      SusanE
      Participant

      Fantastic news!! So happy for you both!

       

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      lhaley
      Participant

      That is such great news!  I am so happy for you! Happy dancing with you.

      Linda

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      lhaley
      Participant

      That is such great news!  I am so happy for you! Happy dancing with you.

      Linda

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      Rebecca and Bob
      Participant

      Carmon,

       

      Great news, so happy you are doing well. Good luck with the radiation. Keep the good news coming.

      Rebecca

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      Rebecca and Bob
      Participant

      Carmon,

       

      Great news, so happy you are doing well. Good luck with the radiation. Keep the good news coming.

      Rebecca

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      MichaelFL
      Participant

      WOW! That's what I call kickin' it to the curb with a capital K.

      Michael

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      MichaelFL
      Participant

      WOW! That's what I call kickin' it to the curb with a capital K.

      Michael

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      Fen
      Participant

      Wonderful, wonderful news!  Here's to years and years of NED.

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      Fen
      Participant

      Wonderful, wonderful news!  Here's to years and years of NED.

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        dawn dion
        Participant

        Oh Carmon – What wonderful news – I am so happy for you – I am looking forward to the day I can say I am NED. – Here's hoping for a very long lifetime of NED!

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        dawn dion
        Participant

        Oh Carmon – What wonderful news – I am so happy for you – I am looking forward to the day I can say I am NED. – Here's hoping for a very long lifetime of NED!

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      Sharyn
      Participant

      Although this is the 19th, you got your wonderful news on the 18th — my birthday! I can't think of a better way to celebrate  than to hear a fellow warrior has slayed the beast. It's like the munchkins singing "Ding dong, the wicked witch is dead". Congratulations!!! I hope you celebrated BIG TIME!!!

      Hugs

      Sharyn, Stage IV

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      Sharyn
      Participant

      Although this is the 19th, you got your wonderful news on the 18th — my birthday! I can't think of a better way to celebrate  than to hear a fellow warrior has slayed the beast. It's like the munchkins singing "Ding dong, the wicked witch is dead". Congratulations!!! I hope you celebrated BIG TIME!!!

      Hugs

      Sharyn, Stage IV

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      MaryD
      Participant

      That is fantastic news Carmen – big time happy dances!!!!    A celebration is definatley in order – go out and enjoy!!!

      Wishing you continued success!

       

      Mary

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        Carmon in NM
        Participant

        Thank you all so much and one of the most exciting parts of all of this was knowing I would come home and be able to share positive and happy news here to lighten everyone's day just a bit! I hope that the good news just keeps spreading and spreading! Carmon

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        NicOz
        Participant
        Carmon that is fantastic news!!! So happy for you & wearing a huge smile on my dial :D
        Nic
        xxx

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        NicOz
        Participant
        Carmon that is fantastic news!!! So happy for you & wearing a huge smile on my dial :D
        Nic
        xxx

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        Carmon in NM
        Participant

        Thank you all so much and one of the most exciting parts of all of this was knowing I would come home and be able to share positive and happy news here to lighten everyone's day just a bit! I hope that the good news just keeps spreading and spreading! Carmon

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      MaryD
      Participant

      That is fantastic news Carmen – big time happy dances!!!!    A celebration is definatley in order – go out and enjoy!!!

      Wishing you continued success!

       

      Mary

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      CKasper
      Participant

      Great News!!!

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      CKasper
      Participant

      Great News!!!

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      JMart
      Participant

      Carmon,

      Congratulations on this wonderful news.  good luck with your decision-making regarding furthur prophylactic radiation.

       

      Janet

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      JMart
      Participant

      Carmon,

      Congratulations on this wonderful news.  good luck with your decision-making regarding furthur prophylactic radiation.

       

      Janet

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      dian in spokane
      Participant

      wow, wonderful news Carmen! Congratulations!

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      dian in spokane
      Participant

      wow, wonderful news Carmen! Congratulations!

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      debbieVA
      Participant

      Cameron…..

       

      I am doing the HAPPY DANCE for you!!  You are the SURVIVOR OF THE DAY!!  

       

      Debbie Stage 4 NED

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      debbieVA
      Participant

      Cameron…..

       

      I am doing the HAPPY DANCE for you!!  You are the SURVIVOR OF THE DAY!!  

       

      Debbie Stage 4 NED

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      himynameiskevin
      Participant

      This is phenominal. I'm so so so so so so so so so so so happy for you. I hope to some day be blessed with the same news as you. Congratulations. -Kevin

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      himynameiskevin
      Participant

      This is phenominal. I'm so so so so so so so so so so so happy for you. I hope to some day be blessed with the same news as you. Congratulations. -Kevin

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      rbruce
      Participant

      Thank you sooooo much for your post.  I know you know how much such good news does for everyone onthis board dealing with this nasty disease.  I'm close to beginning treatment for stage IV just trying to make the right decision on where to start.  My doc is suggesting carboplatin, and paclitaxel like you had but he added Axitinib rather than temodar.  I'm also looking into the new TIL adoptive cell therapy by Dr. Rosenberg's team at the National Cancer Institute.  I wish you  many years NED. 

      God Bless!

      Robert

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      rbruce
      Participant

      Thank you sooooo much for your post.  I know you know how much such good news does for everyone onthis board dealing with this nasty disease.  I'm close to beginning treatment for stage IV just trying to make the right decision on where to start.  My doc is suggesting carboplatin, and paclitaxel like you had but he added Axitinib rather than temodar.  I'm also looking into the new TIL adoptive cell therapy by Dr. Rosenberg's team at the National Cancer Institute.  I wish you  many years NED. 

      God Bless!

      Robert

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