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Complete responder!!! No surgery!!!

Forums General Melanoma Community Complete responder!!! No surgery!!!

  • Post
    Carmon in NM
    Participant

      My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.

      My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.

      I am a complete responder to the clinical trial I did combining carboplatin, paclitaxel and temodar. The adrenal tumor has completely disappeared and the oncs agreed that the risks of a complicated and difficult surgery to remove a tiny bit of inactive tissue were not worth the possible benefits. Instead they are suggesting a round of radiation at the adrenal site to improve my recurrance odds as well as a reduced dose of profilactic whole brain radiation. My medical onc is setting up a consulation for me with an oncology radiologist to discuss this and also with a neurologist when I expressed concern about adding another layer to the brain trauma I already deal with so that I can make a completely informed choice.

      But for tonight, my husband and I are CELEBRATING! Thank you all so much for prayers and words of support – what an incredible group to share the entire curve of this disease with – Carmon in NM (worn out from dancing!)

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    • Replies
        AS123
        Participant

          Phenomenal news! Doing the happy dance for you in NC! :)

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          AS123
          Participant

            Phenomenal news! Doing the happy dance for you in NC! :)

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            ValinMtl
            Participant

              Carmon…I'm just so H A P P Y for you.  Wow, such good news!  Val xx

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              ValinMtl
              Participant

                Carmon…I'm just so H A P P Y for you.  Wow, such good news!  Val xx

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                Janis B.
                Participant

                  I'my about to enter my very first clinical trial, so news like this is so wonderful to read.  So happy for you both!!  Keep up the good work and dance every day :-)

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                  Janis B.
                  Participant

                    I'my about to enter my very first clinical trial, so news like this is so wonderful to read.  So happy for you both!!  Keep up the good work and dance every day :-)

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                    jimjoeb
                    Participant

                      Happy dancing for you in Canada!!

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                      jimjoeb
                      Participant

                        Happy dancing for you in Canada!!

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                        NancyGM
                        Participant

                          Congrats on your wonderful news!!

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                          NancyGM
                          Participant

                            Congrats on your wonderful news!!

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                            Carol Taylor
                            Participant

                              Hallelujah Carmon!!!!  And Carmon's husband!!!!  Can't forget him!

                              Lots of happy dancing going on tonight!  Thank you, God!

                              Prayers for guidance as you make future choices and all the best to you.

                              Grace and peace,

                              Carol

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                              Carol Taylor
                              Participant

                                Hallelujah Carmon!!!!  And Carmon's husband!!!!  Can't forget him!

                                Lots of happy dancing going on tonight!  Thank you, God!

                                Prayers for guidance as you make future choices and all the best to you.

                                Grace and peace,

                                Carol

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                                washoegal
                                Participant

                                  Happy, Happy news for sure.  I would certainly take a few days to celebrate before I worried about the next decision.

                                   

                                  But can we ask a favor of you, most of us know your story.  But it would be oh so helpful if you fill out your profile especially now with this news!!!!!!!!

                                   

                                  Thanks!

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                                  washoegal
                                  Participant

                                    Happy, Happy news for sure.  I would certainly take a few days to celebrate before I worried about the next decision.

                                     

                                    But can we ask a favor of you, most of us know your story.  But it would be oh so helpful if you fill out your profile especially now with this news!!!!!!!!

                                     

                                    Thanks!

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                                    SusanE
                                    Participant

                                      Fantastic news!! So happy for you both!

                                       

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                                      SusanE
                                      Participant

                                        Fantastic news!! So happy for you both!

                                         

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                                        SusanE
                                        Participant

                                          Fantastic news!! So happy for you both!

                                           

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                                          SusanE
                                          Participant

                                            Fantastic news!! So happy for you both!

                                             

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                                            lhaley
                                            Participant

                                              That is such great news!  I am so happy for you! Happy dancing with you.

                                              Linda

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                                              lhaley
                                              Participant

                                                That is such great news!  I am so happy for you! Happy dancing with you.

                                                Linda

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                                                Rebecca and Bob
                                                Participant

                                                  Carmon,

                                                   

                                                  Great news, so happy you are doing well. Good luck with the radiation. Keep the good news coming.

                                                  Rebecca

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                                                  Rebecca and Bob
                                                  Participant

                                                    Carmon,

                                                     

                                                    Great news, so happy you are doing well. Good luck with the radiation. Keep the good news coming.

                                                    Rebecca

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                                                    MichaelFL
                                                    Participant

                                                      WOW! That's what I call kickin' it to the curb with a capital K.

                                                      Michael

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                                                      MichaelFL
                                                      Participant

                                                        WOW! That's what I call kickin' it to the curb with a capital K.

                                                        Michael

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                                                        Fen
                                                        Participant

                                                          Wonderful, wonderful news!  Here's to years and years of NED.

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                                                          Fen
                                                          Participant

                                                            Wonderful, wonderful news!  Here's to years and years of NED.

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                                                              dawn dion
                                                              Participant

                                                                Oh Carmon – What wonderful news – I am so happy for you – I am looking forward to the day I can say I am NED. – Here's hoping for a very long lifetime of NED!

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                                                                dawn dion
                                                                Participant

                                                                  Oh Carmon – What wonderful news – I am so happy for you – I am looking forward to the day I can say I am NED. – Here's hoping for a very long lifetime of NED!

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                                                                Sharyn
                                                                Participant

                                                                  Although this is the 19th, you got your wonderful news on the 18th — my birthday! I can't think of a better way to celebrate  than to hear a fellow warrior has slayed the beast. It's like the munchkins singing "Ding dong, the wicked witch is dead". Congratulations!!! I hope you celebrated BIG TIME!!!

                                                                  Hugs

                                                                  Sharyn, Stage IV

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                                                                  Sharyn
                                                                  Participant

                                                                    Although this is the 19th, you got your wonderful news on the 18th — my birthday! I can't think of a better way to celebrate  than to hear a fellow warrior has slayed the beast. It's like the munchkins singing "Ding dong, the wicked witch is dead". Congratulations!!! I hope you celebrated BIG TIME!!!

                                                                    Hugs

                                                                    Sharyn, Stage IV

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                                                                    MaryD
                                                                    Participant

                                                                      That is fantastic news Carmen – big time happy dances!!!!    A celebration is definatley in order – go out and enjoy!!!

                                                                      Wishing you continued success!

                                                                       

                                                                      Mary

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                                                                        Carmon in NM
                                                                        Participant

                                                                          Thank you all so much and one of the most exciting parts of all of this was knowing I would come home and be able to share positive and happy news here to lighten everyone's day just a bit! I hope that the good news just keeps spreading and spreading! Carmon

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                                                                          NicOz
                                                                          Participant
                                                                            Carmon that is fantastic news!!! So happy for you & wearing a huge smile on my dial :D
                                                                            Nic
                                                                            xxx

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                                                                            NicOz
                                                                            Participant
                                                                              Carmon that is fantastic news!!! So happy for you & wearing a huge smile on my dial :D
                                                                              Nic
                                                                              xxx

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                                                                              Carmon in NM
                                                                              Participant

                                                                                Thank you all so much and one of the most exciting parts of all of this was knowing I would come home and be able to share positive and happy news here to lighten everyone's day just a bit! I hope that the good news just keeps spreading and spreading! Carmon

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                                                                              MaryD
                                                                              Participant

                                                                                That is fantastic news Carmen – big time happy dances!!!!    A celebration is definatley in order – go out and enjoy!!!

                                                                                Wishing you continued success!

                                                                                 

                                                                                Mary

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                                                                                CKasper
                                                                                Participant

                                                                                  Great News!!!

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                                                                                  CKasper
                                                                                  Participant

                                                                                    Great News!!!

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                                                                                    JMart
                                                                                    Participant

                                                                                      Carmon,

                                                                                      Congratulations on this wonderful news.  good luck with your decision-making regarding furthur prophylactic radiation.

                                                                                       

                                                                                      Janet

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                                                                                      JMart
                                                                                      Participant

                                                                                        Carmon,

                                                                                        Congratulations on this wonderful news.  good luck with your decision-making regarding furthur prophylactic radiation.

                                                                                         

                                                                                        Janet

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                                                                                        dian in spokane
                                                                                        Participant

                                                                                          wow, wonderful news Carmen! Congratulations!

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                                                                                          dian in spokane
                                                                                          Participant

                                                                                            wow, wonderful news Carmen! Congratulations!

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                                                                                            debbieVA
                                                                                            Participant

                                                                                              Cameron…..

                                                                                               

                                                                                              I am doing the HAPPY DANCE for you!!  You are the SURVIVOR OF THE DAY!!  

                                                                                               

                                                                                              Debbie Stage 4 NED

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                                                                                              debbieVA
                                                                                              Participant

                                                                                                Cameron…..

                                                                                                 

                                                                                                I am doing the HAPPY DANCE for you!!  You are the SURVIVOR OF THE DAY!!  

                                                                                                 

                                                                                                Debbie Stage 4 NED

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                                                                                                himynameiskevin
                                                                                                Participant

                                                                                                  This is phenominal. I'm so so so so so so so so so so so happy for you. I hope to some day be blessed with the same news as you. Congratulations. -Kevin

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                                                                                                  himynameiskevin
                                                                                                  Participant

                                                                                                    This is phenominal. I'm so so so so so so so so so so so happy for you. I hope to some day be blessed with the same news as you. Congratulations. -Kevin

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                                                                                                    rbruce
                                                                                                    Participant

                                                                                                      Thank you sooooo much for your post.  I know you know how much such good news does for everyone onthis board dealing with this nasty disease.  I'm close to beginning treatment for stage IV just trying to make the right decision on where to start.  My doc is suggesting carboplatin, and paclitaxel like you had but he added Axitinib rather than temodar.  I'm also looking into the new TIL adoptive cell therapy by Dr. Rosenberg's team at the National Cancer Institute.  I wish you  many years NED. 

                                                                                                      God Bless!

                                                                                                      Robert

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                                                                                                      rbruce
                                                                                                      Participant

                                                                                                        Thank you sooooo much for your post.  I know you know how much such good news does for everyone onthis board dealing with this nasty disease.  I'm close to beginning treatment for stage IV just trying to make the right decision on where to start.  My doc is suggesting carboplatin, and paclitaxel like you had but he added Axitinib rather than temodar.  I'm also looking into the new TIL adoptive cell therapy by Dr. Rosenberg's team at the National Cancer Institute.  I wish you  many years NED. 

                                                                                                        God Bless!

                                                                                                        Robert

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