My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.
My husband and I got down to Albuquerque this morning expecting to do the whole round of pre-surgical exams, tests and interviews. Instead, we got my medical and surgical oncs coming in to do the doctor version of the Good News Happy Dance!!! The brain MRI and PET/CT scans done on the 13th say,.."No evidence of metastatic disease." !!! Everything is completely clear on both the brain MRI and the full body scans…even the little oddball things they were watching are gone.
I am a complete responder to the clinical trial I did combining carboplatin, paclitaxel and temodar. The adrenal tumor has completely disappeared and the oncs agreed that the risks of a complicated and difficult surgery to remove a tiny bit of inactive tissue were not worth the possible benefits. Instead they are suggesting a round of radiation at the adrenal site to improve my recurrance odds as well as a reduced dose of profilactic whole brain radiation. My medical onc is setting up a consulation for me with an oncology radiologist to discuss this and also with a neurologist when I expressed concern about adding another layer to the brain trauma I already deal with so that I can make a completely informed choice.
But for tonight, my husband and I are CELEBRATING! Thank you all so much for prayers and words of support – what an incredible group to share the entire curve of this disease with – Carmon in NM (worn out from dancing!)
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