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Big day tomorrow – need your support
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Big day tomorrow – need your support

› Forums › General Melanoma Community › Big day tomorrow – need your support

  • Post
    • September 16, 2020 at 8:11 pm
    Summer S.
    Participant
      Hi everybody,

      My mom has been stage IV since 2018. We have just unlocked a new melanoma level, brain mets, which happened alongside with drug-induced neuropathy

      Fast forward, radiotherapy, neuropathy treatment (minor improvement), drug vacation and all the weird symptoms that comes and goes due to all the new fuzz happening in the brain. It has been a roller coaster.

      With very very few options left now, we are re-initiating keytruda, as a single agent, tomorrow.

      I am super scared and not knowing what to expect, we are also all super exhausted with everything that happened in the past 2 months.

      Please keep my mom in your thoughts and prayers, it is all much needed.

      Love you all,
      S.

    Viewing 5 reply threads
    • Replies
        • September 16, 2020 at 8:44 pm
        Bubbles
        Participant
          Oh, Summer. So very sorry that you and your mom have been through all that! There are those who do indeed respond with a reboot of anti-PD-1. I will be sending every good vibe her way and holding both of you in my heart. She is blessed to have you in her corner. Much love, les
          • September 16, 2020 at 9:14 pm
          chrispl1974
          Participant
            Dear Summer, very sorry you have to got through this. I will be praying for you both. Dont give up hope. Keep your strength. Take care Christian
            • September 17, 2020 at 12:29 am
            THMoore
            Participant
              Miss Summer,
              Please know I am thinking of you and your mom. My prayers and heart are with you while you go through this next treatment. Sending Hugs and luck your way.

              Trent

              • September 17, 2020 at 2:49 am
              Mark_DC
              Participant
                Dear Summer

                I hope your mum does well tomorrow and that side effects wont re-materialize (they dont have to – I had to come off keytruda once for side effects, then restarted after three months, no side effects)
                I also hope that you are able to look for other trial options as a backup, maybe outside Egypt.

                Good luck and I will try to pray too
                Mark

                • September 17, 2020 at 9:58 pm
                Summer S.
                Participant
                  Thank you so much for all the love, positive vibes and happy thoughts

                  I kept reading your responses every couple of hours today, and it really helped us feel better and less lonely in this.

                  The day is finally finally over, crossing fingers, and hoping keytruda works its magic and be kind to us over the next weeks.

                  Love you all,
                  S.

                    • September 18, 2020 at 12:24 am
                    THMoore
                    Participant
                      I have been thinking about you and your mom. I hope and pray for excellent news. Keep us updated Miss Summer.

                      HUGS,
                      Trent

                      • September 18, 2020 at 5:41 pm
                      mrbill16323
                      Participant
                        Hoping for good outcomes!. My family is praying for your Mom and all fighting cancer. Take care of youself. She needs you well.
                      • September 24, 2020 at 3:27 am
                      MelMel
                      Participant
                        Sending only healing vibes and best wishes for successful treatment. As I always ask for myself to be shown the way and given strength, so I ask the same for your mother and you.
                        Melanie
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