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A bit of good news….
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A bit of good news….

› Forums › General Melanoma Community › A bit of good news….

  • Post
    • January 13, 2017 at 2:35 am
    snow white
    Participant

      Hi everyone, I think its important to share any bit of good news on here to keep spirts up.

      I spoke to Dads doc yesterday and they got Dad CT scan back (full body).  There were no new tumors and it looks like the ones in his spleen are dwindleing.  The Pet scan showed lots of tumors in the spleen, but the ct scan before starting Opdivo showed about 12 tumors.  Well the current CT showed only 5!!!  So it looks like Dad is responding to the drugs.  Dads blood work is a little concerning, his platelets are down to 77, so they couldn't do his treatment on Tuesday.  He will retest agian next week and hopefully the number will be up enough for him to get his infusion. I believe he is getting his spinal puncture done next week as well.  We are still headed to see Dr. Hamid on monday, so will update after that.

      one day at a time……..

      xo Jen

    Viewing 32 reply threads
    • Replies
        • January 13, 2017 at 4:24 am
        Casitas1
        Participant
          That’s great news!
          • January 13, 2017 at 4:24 am
          Casitas1
          Participant
            That’s great news!
            • January 13, 2017 at 4:24 am
            Casitas1
            Participant
              That’s great news!
              • January 13, 2017 at 4:32 am
              Buddy0513
              Participant
                Wonderful news!!! I hope things keep going in the right direction. Hang in there!
                  • January 14, 2017 at 4:20 am
                  snow white
                  Participant

                    Thank you!  Me to 🙂

                    • January 14, 2017 at 4:20 am
                    snow white
                    Participant

                      Thank you!  Me to 🙂

                      • January 14, 2017 at 4:20 am
                      snow white
                      Participant

                        Thank you!  Me to 🙂

                      • January 13, 2017 at 4:32 am
                      Buddy0513
                      Participant
                        Wonderful news!!! I hope things keep going in the right direction. Hang in there!
                        • January 13, 2017 at 4:32 am
                        Buddy0513
                        Participant
                          Wonderful news!!! I hope things keep going in the right direction. Hang in there!
                          • January 13, 2017 at 6:41 am
                          debwray
                          Participant

                            Hi Jen,

                            You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                            Best of wishes

                            Deb

                            • January 13, 2017 at 6:41 am
                            debwray
                            Participant

                              Hi Jen,

                              You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                              Best of wishes

                              Deb

                                • January 14, 2017 at 4:16 am
                                snow white
                                Participant

                                  Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

                                  xo Jen

                                  • January 14, 2017 at 4:16 am
                                  snow white
                                  Participant

                                    Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

                                    xo Jen

                                    • January 14, 2017 at 4:16 am
                                    snow white
                                    Participant

                                      Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

                                      xo Jen

                                    • January 13, 2017 at 6:41 am
                                    debwray
                                    Participant

                                      Hi Jen,

                                      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                                      Best of wishes

                                      Deb

                                      • January 13, 2017 at 6:41 am
                                      debwray
                                      Participant

                                        Hi Jen,

                                        You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                                        Best of wishes

                                        Deb

                                        • January 13, 2017 at 6:41 am
                                        debwray
                                        Participant

                                          Hi Jen,

                                          You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                                          Best of wishes

                                          Deb

                                          • January 13, 2017 at 6:41 am
                                          debwray
                                          Participant

                                            Hi Jen,

                                            You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

                                            Best of wishes

                                            Deb

                                            • January 13, 2017 at 2:15 pm
                                            BrianP
                                            Participant

                                              That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

                                              • January 13, 2017 at 2:15 pm
                                              BrianP
                                              Participant

                                                That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

                                                  • January 14, 2017 at 4:17 am
                                                  snow white
                                                  Participant

                                                    Thanks Brian.  I am hoping the same!

                                                    xo Jen

                                                    • January 14, 2017 at 4:17 am
                                                    snow white
                                                    Participant

                                                      Thanks Brian.  I am hoping the same!

                                                      xo Jen

                                                      • January 14, 2017 at 4:17 am
                                                      snow white
                                                      Participant

                                                        Thanks Brian.  I am hoping the same!

                                                        xo Jen

                                                      • January 13, 2017 at 2:15 pm
                                                      BrianP
                                                      Participant

                                                        That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

                                                        • January 13, 2017 at 3:37 pm
                                                        Bubbles
                                                        Participant

                                                          That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

                                                          • January 13, 2017 at 3:37 pm
                                                          Bubbles
                                                          Participant

                                                            That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

                                                            • January 13, 2017 at 3:37 pm
                                                            Bubbles
                                                            Participant

                                                              That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

                                                              • January 13, 2017 at 4:30 pm
                                                              keepthefaith11
                                                              Participant
                                                                Jen, wonderful news! May I ask what the status of the brain mets are?

                                                                Annie

                                                                • January 13, 2017 at 4:30 pm
                                                                keepthefaith11
                                                                Participant
                                                                  Jen, wonderful news! May I ask what the status of the brain mets are?

                                                                  Annie

                                                                  • January 13, 2017 at 4:30 pm
                                                                  keepthefaith11
                                                                  Participant
                                                                    Jen, wonderful news! May I ask what the status of the brain mets are?

                                                                    Annie

                                                                      • January 14, 2017 at 4:13 am
                                                                      snow white
                                                                      Participant

                                                                        Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

                                                                        xo Jen

                                                                        • January 14, 2017 at 4:13 am
                                                                        snow white
                                                                        Participant

                                                                          Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

                                                                          xo Jen

                                                                          • January 14, 2017 at 4:13 am
                                                                          snow white
                                                                          Participant

                                                                            Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

                                                                            xo Jen

                                                                          • January 13, 2017 at 8:34 pm
                                                                          jbronicki
                                                                          Participant

                                                                            So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

                                                                              • January 14, 2017 at 4:18 am
                                                                              snow white
                                                                              Participant

                                                                                Thank you Jackie, I really appreciate that!  I am trying my best 🙂

                                                                                • January 14, 2017 at 4:18 am
                                                                                snow white
                                                                                Participant

                                                                                  Thank you Jackie, I really appreciate that!  I am trying my best 🙂

                                                                                  • January 14, 2017 at 4:18 am
                                                                                  snow white
                                                                                  Participant

                                                                                    Thank you Jackie, I really appreciate that!  I am trying my best 🙂

                                                                                  • January 13, 2017 at 8:34 pm
                                                                                  jbronicki
                                                                                  Participant

                                                                                    So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

                                                                                    • January 13, 2017 at 8:34 pm
                                                                                    jbronicki
                                                                                    Participant

                                                                                      So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

                                                                                      • January 13, 2017 at 9:38 pm
                                                                                      Scooby123
                                                                                      Participant

                                                                                        So pleased for your dad treatment working . God bless

                                                                                        Scooby x

                                                                                        • January 13, 2017 at 9:38 pm
                                                                                        Scooby123
                                                                                        Participant

                                                                                          So pleased for your dad treatment working . God bless

                                                                                          Scooby x

                                                                                          • January 13, 2017 at 9:38 pm
                                                                                          Scooby123
                                                                                          Participant

                                                                                            So pleased for your dad treatment working . God bless

                                                                                            Scooby x

                                                                                            • January 14, 2017 at 8:17 pm
                                                                                            _Paul_
                                                                                            Participant

                                                                                              Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

                                                                                              Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

                                                                                              – Paul

                                                                                              • January 14, 2017 at 8:17 pm
                                                                                              _Paul_
                                                                                              Participant

                                                                                                Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

                                                                                                Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

                                                                                                – Paul

                                                                                                • January 14, 2017 at 8:17 pm
                                                                                                _Paul_
                                                                                                Participant

                                                                                                  Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

                                                                                                  Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

                                                                                                  – Paul

                                                                                                  • January 14, 2017 at 10:43 pm
                                                                                                  tschmith
                                                                                                  Participant

                                                                                                    Yah Dad!!!!  I hope next week goes well for you and him!

                                                                                                    Terrie

                                                                                                    • January 14, 2017 at 10:43 pm
                                                                                                    tschmith
                                                                                                    Participant

                                                                                                      Yah Dad!!!!  I hope next week goes well for you and him!

                                                                                                      Terrie

                                                                                                      • January 14, 2017 at 10:43 pm
                                                                                                      tschmith
                                                                                                      Participant

                                                                                                        Yah Dad!!!!  I hope next week goes well for you and him!

                                                                                                        Terrie

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