A bit of good news….
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A bit of good news….

› Forums › General Melanoma Community › A bit of good news….

  • Post
    • January 13, 2017 at 2:35 am
    snow white
    Participant

    Hi everyone, I think its important to share any bit of good news on here to keep spirts up.

    I spoke to Dads doc yesterday and they got Dad CT scan back (full body).  There were no new tumors and it looks like the ones in his spleen are dwindleing.  The Pet scan showed lots of tumors in the spleen, but the ct scan before starting Opdivo showed about 12 tumors.  Well the current CT showed only 5!!!  So it looks like Dad is responding to the drugs.  Dads blood work is a little concerning, his platelets are down to 77, so they couldn't do his treatment on Tuesday.  He will retest agian next week and hopefully the number will be up enough for him to get his infusion. I believe he is getting his spinal puncture done next week as well.  We are still headed to see Dr. Hamid on monday, so will update after that.

    one day at a time……..

    xo Jen

Viewing 32 reply threads
  • Replies
      • January 13, 2017 at 4:24 am
      Casitas1
      Participant
      That’s great news!
      • January 13, 2017 at 4:24 am
      Casitas1
      Participant
      That’s great news!
      • January 13, 2017 at 4:24 am
      Casitas1
      Participant
      That’s great news!
      • January 13, 2017 at 4:32 am
      Buddy0513
      Participant
      Wonderful news!!! I hope things keep going in the right direction. Hang in there!
      • January 13, 2017 at 4:32 am
      Buddy0513
      Participant
      Wonderful news!!! I hope things keep going in the right direction. Hang in there!
        • January 14, 2017 at 4:20 am
        snow white
        Participant

        Thank you!  Me to 🙂

        • January 14, 2017 at 4:20 am
        snow white
        Participant

        Thank you!  Me to 🙂

        • January 14, 2017 at 4:20 am
        snow white
        Participant

        Thank you!  Me to 🙂

      • January 13, 2017 at 4:32 am
      Buddy0513
      Participant
      Wonderful news!!! I hope things keep going in the right direction. Hang in there!
      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

        • January 14, 2017 at 4:16 am
        snow white
        Participant

        Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

        xo Jen

        • January 14, 2017 at 4:16 am
        snow white
        Participant

        Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

        xo Jen

        • January 14, 2017 at 4:16 am
        snow white
        Participant

        Thanks Deb! You are so right we did need some good news, it has definitely boosted our spirits!  Unfotuantely, Dad has a bad head cold, but overall he is doing fairly well :). Hoping that the nivo is doing its thing while he builds platelets.  Hope you are hanging in there and that your numbers are moving in the right direction.

        xo Jen

      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

      • January 13, 2017 at 6:41 am
      debwray
      Participant

      Hi Jen,

      You were due some good news. Thanks for posting.  Sounds like a busy week coming up..but really great to hear that some tumours are gone..and others are shrinking. Hope nivo manages to nuke the rest of them. Its still in his system.. And working quietly behind the scenes..

      Best of wishes

      Deb

      • January 13, 2017 at 2:15 pm
      BrianP
      Participant

      That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

        • January 14, 2017 at 4:17 am
        snow white
        Participant

        Thanks Brian.  I am hoping the same!

        xo Jen

        • January 14, 2017 at 4:17 am
        snow white
        Participant

        Thanks Brian.  I am hoping the same!

        xo Jen

        • January 14, 2017 at 4:17 am
        snow white
        Participant

        Thanks Brian.  I am hoping the same!

        xo Jen

      • January 13, 2017 at 2:15 pm
      BrianP
      Participant

      That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

      • January 13, 2017 at 2:15 pm
      BrianP
      Participant

      That is some great news.  Thanks for posting.  Hopefully this is a sign of more great news to come.

      • January 13, 2017 at 3:37 pm
      Bubbles
      Participant

      That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

      • January 13, 2017 at 3:37 pm
      Bubbles
      Participant

      That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

      • January 13, 2017 at 3:37 pm
      Bubbles
      Participant

      That's great, Jen.  Like Brian said, I hope this is just the start of a very positive trend for your dad!!! c

      • January 13, 2017 at 4:30 pm
      keepthefaith11
      Participant
      Jen, wonderful news! May I ask what the status of the brain mets are?

      Annie

        • January 14, 2017 at 4:13 am
        snow white
        Participant

        Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

        xo Jen

        • January 14, 2017 at 4:13 am
        snow white
        Participant

        Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

        xo Jen

        • January 14, 2017 at 4:13 am
        snow white
        Participant

        Hi Annie. Every thing in the brain right now is dead or dying, except for the teeny tiny spot that was questionable on the latest CT.  Looks like the Gamma Knife and craniotomy did its job.  Next week he will get a spinal tap to check for Lepto and another ct in 6 weeks along with possible 2 more spinal taps to rule out Lepto.  Hope you are well.j

        xo Jen

      • January 13, 2017 at 4:30 pm
      keepthefaith11
      Participant
      Jen, wonderful news! May I ask what the status of the brain mets are?

      Annie

      • January 13, 2017 at 4:30 pm
      keepthefaith11
      Participant
      Jen, wonderful news! May I ask what the status of the brain mets are?

      Annie

      • January 13, 2017 at 8:34 pm
      jbronicki
      Participant

      So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

        • January 14, 2017 at 4:18 am
        snow white
        Participant

        Thank you Jackie, I really appreciate that!  I am trying my best 🙂

        • January 14, 2017 at 4:18 am
        snow white
        Participant

        Thank you Jackie, I really appreciate that!  I am trying my best 🙂

        • January 14, 2017 at 4:18 am
        snow white
        Participant

        Thank you Jackie, I really appreciate that!  I am trying my best 🙂

      • January 13, 2017 at 8:34 pm
      jbronicki
      Participant

      So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

      • January 13, 2017 at 8:34 pm
      jbronicki
      Participant

      So glad to hear and good job to you for being such a good caregiver and information source to your dad 🙂

      • January 13, 2017 at 9:38 pm
      Scooby123
      Participant

      So pleased for your dad treatment working . God bless

      Scooby x

      • January 13, 2017 at 9:38 pm
      Scooby123
      Participant

      So pleased for your dad treatment working . God bless

      Scooby x

      • January 13, 2017 at 9:38 pm
      Scooby123
      Participant

      So pleased for your dad treatment working . God bless

      Scooby x

      • January 14, 2017 at 8:17 pm
      _Paul_
      Participant

      Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

      Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

      – Paul

      • January 14, 2017 at 8:17 pm
      _Paul_
      Participant

      Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

      Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

      – Paul

      • January 14, 2017 at 8:17 pm
      _Paul_
      Participant

      Jen this is fabulous news. Any win against this stupid disease is a great victory. It is winning one mare battle in the war. Take that melanoma!

      Maybe we will see one another in the clinic. I will be wearing a grey Tesla hat. It would be great to say hi!

      – Paul

      • January 14, 2017 at 10:43 pm
      tschmith
      Participant

      Yah Dad!!!!  I hope next week goes well for you and him!

      Terrie

      • January 14, 2017 at 10:43 pm
      tschmith
      Participant

      Yah Dad!!!!  I hope next week goes well for you and him!

      Terrie

      • January 14, 2017 at 10:43 pm
      tschmith
      Participant

      Yah Dad!!!!  I hope next week goes well for you and him!

      Terrie

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