Pet Scan Results
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Pet Scan Results

› Forums › General Melanoma Community › Pet Scan Results

  • Post
    • January 22, 2015 at 3:49 am
    JoshF
    Participant

    What a long day but a good one. Pet/CT came back negative. This is obviously best case scenario. My onc didn't want to say for sure but feels that this could be residual due to immune system possibly not recognizing remaining cells form surgery. I had surgery in mid Spet 2013 and treatment started fairly quick after met was found in lung. I never had the surgery to get clear margins…I do remember the surgical onc saying that it may be necessary to go back in after treatment but it never seemed like a concern after I finished IL-2 last January.

    Seeing that I'm NED again, the doc said watch & wait. Ipi was discussed but advised against because of no measurable disease. Again, they feel it's only a local recurrence.  Do they ever really know? I know there is not a lot out there for adjuvant treatment that is either available or effective. Anyone do ipi as "maintenance"?

    I feel very blessed and fortunate as PET was clear…still gives me hope that I was repsonder to ipi & HD-IL2 combo trial I'm in. Things can always be worse but just having the beast involved in your world at all is stressful; which is why I appreciate each and everyone of you for your support, advice, inspiration and encouragment. Wishing everyone the best!

    Josh

Viewing 44 reply threads
  • Replies
      • January 22, 2015 at 3:58 am
      Brendan
      Participant

      Congrats, Josh.   Best case scenario. 

      Good luck to you!

      Brendan

      • January 22, 2015 at 3:58 am
      Brendan
      Participant

      Congrats, Josh.   Best case scenario. 

      Good luck to you!

      Brendan

      • January 22, 2015 at 3:58 am
      Brendan
      Participant

      Congrats, Josh.   Best case scenario. 

      Good luck to you!

      Brendan

      • January 22, 2015 at 4:01 am
      Momrn5
      Participant

      Yay! Great news Josh!

      • January 22, 2015 at 4:01 am
      Momrn5
      Participant

      Yay! Great news Josh!

      • January 22, 2015 at 4:01 am
      Momrn5
      Participant

      Yay! Great news Josh!

      • January 22, 2015 at 5:03 am
      _Paul_
      Participant

      Awesome news Josh! What a beautiful acronym: NED.

      • January 22, 2015 at 5:03 am
      _Paul_
      Participant

      Awesome news Josh! What a beautiful acronym: NED.

      • January 22, 2015 at 5:03 am
      _Paul_
      Participant

      Awesome news Josh! What a beautiful acronym: NED.

      • January 22, 2015 at 7:44 am
      JustMeInCA
      Participant

      Yay for you — very happy to hear this!

      • January 22, 2015 at 7:44 am
      JustMeInCA
      Participant

      Yay for you — very happy to hear this!

      • January 22, 2015 at 7:44 am
      JustMeInCA
      Participant

      Yay for you — very happy to hear this!

      • January 22, 2015 at 1:02 pm
      jbronicki
      Participant

      That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

      • January 22, 2015 at 1:02 pm
      jbronicki
      Participant

      That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

      • January 22, 2015 at 1:02 pm
      jbronicki
      Participant

      That is great news, very glad to hear it!  Nothing better than hearing good news!  Congrats.

      • January 22, 2015 at 1:58 pm
      Jsneathen21
      Participant

      Yay!!!! I am so happy to hear this!!!!:)

      • January 22, 2015 at 1:58 pm
      Jsneathen21
      Participant

      Yay!!!! I am so happy to hear this!!!!:)

      • January 22, 2015 at 1:58 pm
      Jsneathen21
      Participant

      Yay!!!! I am so happy to hear this!!!!:)

      • January 22, 2015 at 2:40 pm
      kpcollins31
      Participant

      Congratulations, Josh – that is great news.

      Kevin

      • January 22, 2015 at 2:40 pm
      kpcollins31
      Participant

      Congratulations, Josh – that is great news.

      Kevin

      • January 22, 2015 at 2:40 pm
      kpcollins31
      Participant

      Congratulations, Josh – that is great news.

      Kevin

      • January 22, 2015 at 2:47 pm
      Mat
      Participant

      Awesome news!

      • January 22, 2015 at 2:47 pm
      Mat
      Participant

      Awesome news!

      • January 22, 2015 at 2:47 pm
      Mat
      Participant

      Awesome news!

      • January 22, 2015 at 3:28 pm
      Bubbles
      Participant

      Wonderful, Josh!  C

      • January 22, 2015 at 3:28 pm
      Bubbles
      Participant

      Wonderful, Josh!  C

      • January 22, 2015 at 3:28 pm
      Bubbles
      Participant

      Wonderful, Josh!  C

        • January 22, 2015 at 4:48 pm
        Maureen038
        Participant

        That's such awesome news Josh!!

        • January 22, 2015 at 4:48 pm
        Maureen038
        Participant

        That's such awesome news Josh!!

        • January 22, 2015 at 4:48 pm
        Maureen038
        Participant

        That's such awesome news Josh!!

      • January 22, 2015 at 4:49 pm
      jenny22
      Participant

      Josh- such great news…I am SO happy for you!!!! May it continue

       

      j

      • January 22, 2015 at 4:49 pm
      jenny22
      Participant

      Josh- such great news…I am SO happy for you!!!! May it continue

       

      j

      • January 22, 2015 at 4:49 pm
      jenny22
      Participant

      Josh- such great news…I am SO happy for you!!!! May it continue

       

      j

        • January 22, 2015 at 6:43 pm
        Jewel
        Participant

        Awesome!!!!

        • January 22, 2015 at 6:43 pm
        Jewel
        Participant

        Awesome!!!!

        • January 22, 2015 at 6:43 pm
        Jewel
        Participant

        Awesome!!!!

      • January 23, 2015 at 2:06 am
      KMick
      Participant

      Hey Josh,

      When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

      • January 23, 2015 at 2:06 am
      KMick
      Participant

      Hey Josh,

      When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

      • January 23, 2015 at 2:06 am
      KMick
      Participant

      Hey Josh,

      When I saw your post title tonight I found myself saying before I clicked on the post to read it "Please, please let the news be good."  I am so, so happy to read this good news!  Awesome!

      • January 23, 2015 at 2:22 am
      JoshF
      Participant

      Thanks everyone…I really appreciate the support, kind words etc…

      Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

      • January 23, 2015 at 2:22 am
      JoshF
      Participant

      Thanks everyone…I really appreciate the support, kind words etc…

      Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

      • January 23, 2015 at 2:22 am
      JoshF
      Participant

      Thanks everyone…I really appreciate the support, kind words etc…

      Now the trick is to stay NED and get more and more us NED until we have a cure or  more effective treatment options!

      • January 23, 2015 at 6:32 pm
      MattF
      Participant

      NICE!

      • January 23, 2015 at 6:32 pm
      MattF
      Participant

      NICE!

      • January 23, 2015 at 6:32 pm
      MattF
      Participant

      NICE!

      • January 24, 2015 at 11:39 pm
      evieg
      Participant

      Awesome News!!

      • January 24, 2015 at 11:39 pm
      evieg
      Participant

      Awesome News!!

      • January 24, 2015 at 11:39 pm
      evieg
      Participant

      Awesome News!!

      • January 25, 2015 at 6:00 pm
      Jahendry12
      Participant

      So happy for you Josh!

       

      • January 25, 2015 at 6:00 pm
      Jahendry12
      Participant

      So happy for you Josh!

       

      • January 25, 2015 at 6:00 pm
      Jahendry12
      Participant

      So happy for you Josh!

       

Viewing 44 reply threads
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