great news – BRAF after ipi
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great news – BRAF after ipi

› Forums › General Melanoma Community › great news – BRAF after ipi

  • Post
    • August 12, 2011 at 12:17 pm
    TracyLee
    Participant

    Hi y'all,

    I began BRAF this past Monday, after completing 4 rounds of ipi.

    I am having an excellent BRAF response, already!

    Neck nodes are down at least 1/3, if not 1/2.

    Lumps/painful bumps on scalp – much smaller, flattening out.

    Just wanted to post some happy news to encourage everyone out there.

    Always keep trying, never give up.

    God is SO good!

    Woo hoo, posse up, we are kicking it to the curb!

    TracyLee

    Hi y'all,

    I began BRAF this past Monday, after completing 4 rounds of ipi.

    I am having an excellent BRAF response, already!

    Neck nodes are down at least 1/3, if not 1/2.

    Lumps/painful bumps on scalp – much smaller, flattening out.

    Just wanted to post some happy news to encourage everyone out there.

    Always keep trying, never give up.

    God is SO good!

    Woo hoo, posse up, we are kicking it to the curb!

    TracyLee

Viewing 15 reply threads
  • Replies
      • August 12, 2011 at 12:20 pm
      lhaley
      Participant

      Wow!  So glad you are having such a quick response! Didn't you just start the drug on Monday or Tuesday? 

      Thanks for posting!

      Linda

      • August 12, 2011 at 12:20 pm
      lhaley
      Participant

      Wow!  So glad you are having such a quick response! Didn't you just start the drug on Monday or Tuesday? 

      Thanks for posting!

      Linda

        • August 12, 2011 at 12:33 pm
        Lisa13
        Participant

        This is fabulous news and I'm so happy for you. At this point, I'm starting to think this ipi has kicked in at long last and the BRAF drugs are going to speed things up. 

        Thank you so much for your positive news – we all need it!

        Wishing you continued success with this beast!

        Lisa

        • August 12, 2011 at 12:33 pm
        Lisa13
        Participant

        This is fabulous news and I'm so happy for you. At this point, I'm starting to think this ipi has kicked in at long last and the BRAF drugs are going to speed things up. 

        Thank you so much for your positive news – we all need it!

        Wishing you continued success with this beast!

        Lisa

      • August 12, 2011 at 1:35 pm
      nicoli
      Participant

      I'm so happy for you and your family. And it worked soooo fast. May the Lord continue to bless you. Live a long life, TracyLee. Get old and fat and cranky. Be a grandmother and a mother in law but not like my mother in law!

      Nicki, Stage 3b

      • August 12, 2011 at 1:35 pm
      nicoli
      Participant

      I'm so happy for you and your family. And it worked soooo fast. May the Lord continue to bless you. Live a long life, TracyLee. Get old and fat and cranky. Be a grandmother and a mother in law but not like my mother in law!

      Nicki, Stage 3b

        • August 12, 2011 at 1:38 pm
        NYKaren
        Participant

        TracyLee,

        I am SO happy for you!  Being less than thrilled with my own response to Ipi so far (which could still happen) I was so depressed this morning.  Your post made my day.

        May you continue to kick mel's ass and thanks for the inspiration!!

        karen

        • August 12, 2011 at 1:38 pm
        NYKaren
        Participant

        TracyLee,

        I am SO happy for you!  Being less than thrilled with my own response to Ipi so far (which could still happen) I was so depressed this morning.  Your post made my day.

        May you continue to kick mel's ass and thanks for the inspiration!!

        karen

        • August 12, 2011 at 1:40 pm
        TracyLee
        Participant

        Karen,

        Don't give up on ipi yet. I specifically asked Dr. Schuchter on Monday, how "late" of a response has she seen with ipi.

        Her reply was SIX months. Now, we all want a quicker response, but just wanted you to know it could still kick in, long after you are done!

        TracyLee

        • August 12, 2011 at 1:40 pm
        TracyLee
        Participant

        Karen,

        Don't give up on ipi yet. I specifically asked Dr. Schuchter on Monday, how "late" of a response has she seen with ipi.

        Her reply was SIX months. Now, we all want a quicker response, but just wanted you to know it could still kick in, long after you are done!

        TracyLee

      • August 12, 2011 at 2:48 pm
      MichaelFL
      Participant

      That is great news. Glad it was quick, and that you are responding.

      Keep it up! Keep it up! Keep it up!

      Michael

      • August 12, 2011 at 2:48 pm
      MichaelFL
      Participant

      That is great news. Glad it was quick, and that you are responding.

      Keep it up! Keep it up! Keep it up!

      Michael

      • August 12, 2011 at 8:19 pm
      JerryfromFauq
      Participant

      Tracey, yours is the first case of Ipi followed by BRAF (V600E ? ) that I have noticed.  This should be an iteresting case to follow.  Il-2, and so far Ipi, seems to have a good chance of enhancing other treatments, possibly for speed, intensity and longeivity. 

      Sounds great.  Go, gal, go.

      • August 12, 2011 at 8:19 pm
      JerryfromFauq
      Participant

      Tracey, yours is the first case of Ipi followed by BRAF (V600E ? ) that I have noticed.  This should be an iteresting case to follow.  Il-2, and so far Ipi, seems to have a good chance of enhancing other treatments, possibly for speed, intensity and longeivity. 

      Sounds great.  Go, gal, go.

      • August 12, 2011 at 9:19 pm
      Carol Taylor
      Participant

      Wasn't that the plan Tracy, to kick it to the curb?!  You're due a hallelujah moment and I hope you're enjoying the mess out of this! Congratulations Fearless Leader and

      Thank You Lord! Amen!!!!

      Grace and peace (and a party),

      Carol

      • August 12, 2011 at 9:19 pm
      Carol Taylor
      Participant

      Wasn't that the plan Tracy, to kick it to the curb?!  You're due a hallelujah moment and I hope you're enjoying the mess out of this! Congratulations Fearless Leader and

      Thank You Lord! Amen!!!!

      Grace and peace (and a party),

      Carol

      • August 12, 2011 at 9:56 pm
      triciad
      Participant

      TracyLee,

      Keep the momentum going!  Best wishes for success!

      Tricia

      • August 12, 2011 at 9:56 pm
      triciad
      Participant

      TracyLee,

      Keep the momentum going!  Best wishes for success!

      Tricia

      • August 12, 2011 at 10:48 pm
      ValinMtl
      Participant

      Such wonderful news!  Congratulations…you're kicking mel's big fat butt!!!   Val

      • August 12, 2011 at 10:48 pm
      ValinMtl
      Participant

      Such wonderful news!  Congratulations…you're kicking mel's big fat butt!!!   Val

      • August 13, 2011 at 12:01 pm
      Bruce in NH
      Participant

      Way toi go, TracyLee! Keep fighting hard! You can do it!!!  Bruce

      • August 13, 2011 at 12:01 pm
      Bruce in NH
      Participant

      Way toi go, TracyLee! Keep fighting hard! You can do it!!!  Bruce

Viewing 15 reply threads
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