On the way to LA
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On the way to LA

› Forums › General Melanoma Community › On the way to LA

  • Post
    • January 15, 2017 at 5:34 am
    _Paul_
    Participant

    Hey everybody,

    Just checking in. My daughter and I and are en-route to LA and should be there tomorrow.  My appointment is for Monday at noon. My daughter is happy about driving the Tesla.

    I finaΔΊy got the relief bracelet that Linny suggested and while it is not 100%, I can feel it working when I use it. I am nauseous every day and the amount of spewing has been greatly reduced by the bracelet. Thanks for the great tip Linny.

    I am just making it by with 37.5mcg of fentanyl and 12mg of dilaudid every 4 hours. There is a hard limit at 72mg/day of dilaudid but it's OK if I bank it when I am able to go longer than 4 hours. Right now I have 40 minutes banked which means if I wake up in pain I can take a dose up to 40 minutes early. 

    There was no time to obtain all my medical records in advance and in electronic format, so I am showing up with a big Tupper ware tub with all my records for the last 4 years,  discs and all.

    Hopefully we will run into Jen and her dad there on Monday.

    So far it's been a pretty good road trip.

    – Paul

Viewing 50 reply threads
  • Replies
      • January 15, 2017 at 5:45 am
      jennunicorn
      Participant

      Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

      Hope you have a good appointment on Monday.

      • January 15, 2017 at 5:45 am
      jennunicorn
      Participant

      Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

      Hope you have a good appointment on Monday.

      • January 15, 2017 at 5:45 am
      jennunicorn
      Participant

      Enjoy the ride Paul, driving a Tesla is pretty fun πŸ™‚

      Hope you have a good appointment on Monday.

      • January 15, 2017 at 6:04 am
      Cindyco
      Participant

      Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

      • January 15, 2017 at 6:04 am
      Cindyco
      Participant

      Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

      • January 15, 2017 at 6:04 am
      Cindyco
      Participant

      Good luck on Monday Paul– everyone will be thinking of you! Keep us posted!

        • January 15, 2017 at 7:32 am
        Casitas1
        Participant
        Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
        • January 15, 2017 at 7:32 am
        Casitas1
        Participant
        Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
        • January 15, 2017 at 7:32 am
        Casitas1
        Participant
        Hey Paul, you will be in my neck of the woods! I get treatment in Santa Monica and if you guys need anything let me know. We would be happy to help. Best, the other Paul
      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 8:03 am
      Scooby123
      Participant

      Good luck with your appointment Paul , hope all goes well for you . Take care

      scooby

      • January 15, 2017 at 11:52 am
      Patrisa
      Participant

      Good luck Paul!!!!

      Love,

      Patrisa

      • January 15, 2017 at 11:52 am
      Patrisa
      Participant

      Good luck Paul!!!!

      Love,

      Patrisa

      • January 15, 2017 at 11:52 am
      Patrisa
      Participant

      Good luck Paul!!!!

      Love,

      Patrisa

      • January 15, 2017 at 3:25 pm
      vickiaa0529
      Participant

      Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

      cheers 

      Vicki 

      • January 15, 2017 at 3:25 pm
      vickiaa0529
      Participant

      Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

      cheers 

      Vicki 

      • January 15, 2017 at 3:25 pm
      vickiaa0529
      Participant

      Good Luck Paul if Dr Ribas contacts me soon, I may see you there 

      cheers 

      Vicki 

      • January 15, 2017 at 3:48 pm
      keepthefaith11
      Participant
      Good luck Paul. Cheering for you!

      Annie

      • January 15, 2017 at 3:48 pm
      keepthefaith11
      Participant
      Good luck Paul. Cheering for you!

      Annie

      • January 15, 2017 at 3:48 pm
      keepthefaith11
      Participant
      Good luck Paul. Cheering for you!

      Annie

      • January 15, 2017 at 4:15 pm
      debwray
      Participant

      Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

      Deb

      • January 15, 2017 at 4:15 pm
      debwray
      Participant

      Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

      Deb

      • January 15, 2017 at 4:15 pm
      debwray
      Participant

      Good luck and hope all the mechanics of the trip run smoothly and may you be forever in credit balance on those painkiller…

      Deb

      • January 15, 2017 at 5:32 pm
      JoshF
      Participant

      All my best Paul! Hope you're feeling well.

      • January 15, 2017 at 5:32 pm
      JoshF
      Participant

      All my best Paul! Hope you're feeling well.

      • January 15, 2017 at 5:32 pm
      JoshF
      Participant

      All my best Paul! Hope you're feeling well.

      • January 15, 2017 at 6:51 pm
      Bubbles
      Participant

      Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

      • January 15, 2017 at 6:51 pm
      Bubbles
      Participant

      Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

      • January 15, 2017 at 6:51 pm
      Bubbles
      Participant

      Tesla, huh?  Well, if you need another driver, just let me know!!!  Wishing you good things on your visit!!!  Hang in there.  Love, c

      • January 15, 2017 at 7:28 pm
      snow white
      Participant

      Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

      xo Jen

      • January 15, 2017 at 7:28 pm
      snow white
      Participant

      Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

      xo Jen

      • January 15, 2017 at 7:28 pm
      snow white
      Participant

      Safe travels to you and your daughter!  Hoping we cross paths tomorrow, our appointment is at 2pm.  Hang in there!!!!!!

      xo Jen

      • January 16, 2017 at 12:42 am
      casagrayson
      Participant

      Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

      • January 16, 2017 at 12:42 am
      casagrayson
      Participant

      Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

      • January 16, 2017 at 12:42 am
      casagrayson
      Participant

      Ah, DH would *love* a Tesla — I keep telling him to go for it.  After battling melanoma twice, and now NED, I think he deserves it.  Glad you spoiled yourself!  All my best wishes and good karma for a great appointment, and keeping the pain at bay!

      • January 16, 2017 at 1:47 am
      Linny
      Participant

      Hi Paul!

      I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

      Good luck in LA! I'll be thinking of you. 

      • January 16, 2017 at 1:47 am
      Linny
      Participant

      Hi Paul!

      I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

      Good luck in LA! I'll be thinking of you. 

      • January 16, 2017 at 1:47 am
      Linny
      Participant

      Hi Paul!

      I am happy the bracelet is working for you and has reduced any heaving. As you've already figured out, it has to be positioned just right to be the most effective. Sometimes the tendons on my wrist throw it off and I have to jiggle it a bit. But it's been a godsend for me.

      Good luck in LA! I'll be thinking of you. 

      • January 16, 2017 at 4:20 am
      Mark_DC
      Participant

      Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

      Good luck in LA

      Mark

      • January 16, 2017 at 4:20 am
      Mark_DC
      Participant

      Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

      Good luck in LA

      Mark

      • January 16, 2017 at 4:20 am
      Mark_DC
      Participant

      Paul, if the Tesla does not cut it, I have a 1993 Camry (beige) that you might be interested in πŸ™‚

      Good luck in LA

      Mark

      • January 16, 2017 at 12:57 pm
      maperny
      Participant

      Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

      Maria

      • January 16, 2017 at 12:57 pm
      maperny
      Participant

      Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

      Maria

      • January 16, 2017 at 12:57 pm
      maperny
      Participant

      Hope the appointment goes well, Paul.  Thinking of you today and hoping Dr Hamid has some great options.

      Maria

      • January 16, 2017 at 6:43 pm
      jbronicki
      Participant

      Hey Paul,

      Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

      many prayers today πŸ™‚

      • January 16, 2017 at 6:43 pm
      jbronicki
      Participant

      Hey Paul,

      Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

      many prayers today πŸ™‚

      • January 16, 2017 at 6:43 pm
      jbronicki
      Participant

      Hey Paul,

      Hoping for the very best today!  I didn't know what all the fuss was about Tesla until I got the chance to ride in one last summer……..now I get it!   

      many prayers today πŸ™‚

      • January 16, 2017 at 6:43 pm
      jenny22
      Participant

      Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

      I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

      Will be looking for your udpate POST appt.

       

      Best,

      jenny

      • January 16, 2017 at 6:43 pm
      jenny22
      Participant

      Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

      I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

      Will be looking for your udpate POST appt.

       

      Best,

      jenny

      • January 16, 2017 at 6:43 pm
      jenny22
      Participant

      Hi Paul- as i write this I'll assume yhou are already in the midst of your appt.  I hope the rest of your trip went well, and your pain level is sometwhat under control.

      I hope your tupperware tub gives the folks at MDA all the info they need to find your magic bullet.

      Will be looking for your udpate POST appt.

       

      Best,

      jenny

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