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- December 1, 2022 at 3:13 pm
an update on nerve damage. I have never been able to get onc surgeon or oncologist to say much about my nerve damage. In particular I asked about an kind of PT to help. They smiled and nodded in the way the do.but
once out of the room the nurse said this: they don’t recommend PT before 6 weeks because, in my case of a lymphodectomy, that PT could dislodge remaining melanoma cells from excision site.50
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- November 14, 2022 at 2:39 pm
btw gopher and JudiAUi am still playing doctor. new clinic has not accepted me yet.
current oncs talked about getting a petscan……i see on the patient forum its not been scheduled.
but also
would a brain MRI be in order? in essence i am kinda starting over from the beginning. my thinking of course….if LN’s were much larger than original condition then its seems 60chances are microscopic melanoma likely other places but especially the brain.
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- November 8, 2022 at 3:58 pm
thanks gopher ..i take all ur pointsjudiAU…i am in Fort worth. i was at texas oncology and they had 1 melanoma specialists for 400 doc, in houston. so i went JPS FTW where my bro got good care for throat cancer. Ist onc suregeon was very good….alas he moved on.
so if there is anyway to find a melanoma onc specialist i would love to try. i am on medicare.
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- November 5, 2022 at 11:32 am
a follow up to my own post:i have no idea if these guys know didly about melanoma. I left one practice cause out of 400 oncs they had one melanomoa specialists.
so if they don’t specialize maybe they are not qualified to be my docs???
also, and forgive me for sounding like i know something….but have been forced to the internet for knowledge.
i definitely have never had a BRAF test but it seems that can be equally as efficacious as immo therapy and….660
I understand there is not much or any improvement with ipi+ nivo vs nivo…i am , self ascertained 3c. No comment on that from ONc’s after 3 years+.
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- October 14, 2022 at 1:27 pm
case study. type 3c. excised 4 axial LN and did 91 year opvido. never were the LN’s macroscopic, meaning no swollen LN or anything to visually observe.1-1/2 years after last infusion both axial areLN’s enlarged and hardened to point of discomfort and will be removed next week.
i presume i will do immmo again after that.
just specualtion but the time from 4 existing microscopic LN to enlarged, was 2-1/2 years its almost like opvido did little to nothing. no way to know i quess.
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- May 13, 2021 at 5:14 pm
JPS? who , what? well its the county hospital where u go for gunshot wounds, car wrecks, indigent careand this
Fort Worth’s JPS Named the Best Hospital in the Nation – D Magazine
its not unusual to go for a scan and see a deputy with a prisoner in shackles……but they saved my life.
I could have gone to Texas Oncology but it seemed the 400 doc practice, at least at the partner level opposed Obamacare. go figure. the AMA once opposed Medicaid. Docs are political creatures too.
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- February 22, 2021 at 1:02 pm
my derm basically told me he doesn’t do surgery if it reaches the dermis.you want to get all the melanoma, beyond the margins.
my wle required anesthesia and I used an oncological surgeon who understood surgery and cancer.
if you have a choice, why not go with the best available?
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- February 8, 2021 at 5:30 pm
3c. 4 axial Ln’s removed.i finished a year of Opvido in December. Since ending infusion I have had no ill effects except for a small bout of constipation.
Onc assured me there were not lingering effects from immo, although I might disagree in as much as I never had constipation before. That’s 64 years of history.
no fatigue though.
I did one round of Moderna with no side effects , Onc told me there would be side effects on second round including fatigue.
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- February 6, 2021 at 4:51 pm
a short intro. biopsy done, holiday looming , so i read my path report online. a few key words gave me a clue otherwise totally Latin to me. my opinion is the more you can research before you meet with the Doc the more questions you can poise. You will find yourself leaving an exam wishing you would ask this or that.more importantly:
I had a Oncological Surgeon do the SLNB and WLE. In the consult about lymph node scanning and surgery he discussed SLNB vs. CLNB and other factors. but he knew his way around a cancerous tissue.
I don’t know what level of expertise you might get from and ordinary surgeon.
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