tkoss

but

once out of the room the nurse said this: they don’t recommend PT before 6 weeks because, in my case of a lymphodectomy, that PT could dislodge remaining melanoma cells from excision site.50

i am still playing doctor. new clinic has not accepted me yet.

current oncs talked about getting a petscan……i see on the patient forum its not been scheduled.

but also

would a brain MRI be in order? in essence i am kinda starting over from the beginning. my thinking of course….if LN’s were much larger than original condition then its seems 60chances are microscopic melanoma likely other places but especially the brain.

i am going to Tex Onc who have an melanoma specialist in Dallas

preciate you all’30s help.

posted my experiences for newbies but it seems forum participation way down… so probably won’t reach anyone

tim

judiAU…i am in Fort worth. i was at texas oncology and they had 1 melanoma specialists for 400 doc, in houston. so i went JPS FTW where my bro got good care for throat cancer. Ist onc suregeon was very good….alas he moved on.

so if there is anyway to find a melanoma onc specialist i would love to try. i am on medicare.

i have no idea if these guys know didly about melanoma. I left one practice cause out of 400 oncs they had one melanomoa specialists.

so if they don’t specialize maybe they are not qualified to be my docs???

also, and forgive me for sounding like i know something….but have been forced to the internet for knowledge.

i definitely have never had a BRAF test but it seems that can be equally as efficacious as immo therapy and….660

I understand there is not much or any improvement with ipi+ nivo vs nivo…i am , self ascertained 3c. No comment on that from ONc’s after 3 years+.

and this

Fort Worth’s JPS Named the Best Hospital in the Nation – D Magazine

its not unusual to go for a scan and see a deputy with a prisoner in shackles……but they  saved my life.

I could have gone to Texas Oncology but it seemed the 400 doc practice, at least at the partner level opposed Obamacare.  go figure. the AMA once opposed Medicaid. Docs are political creatures too.

i was thinking about the other drugs that might be invovled if you are treated for Stage 4. pain or nausea or swelling or other palliative or complimentary drugs.