› Forums › General Melanoma Community › complications and issues with docs
- This topic has 6 replies, 5 voices, and was last updated 4 months ago by
tkoss.
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- November 8, 2022 at 4:19 pm
i post this to be informative to any reader. YES I HAD COMPLCATIONS from an axial lymph node lymphodectomy. since it was my second time on the same lympth node i didn’t expect problems and the oncologocial suregeon only fleetingly mentioned NERVE DAMAGE. Which I got! Too soon to tell how it will resolve itself. They must do 10’000 or more a year as lymphodectomies are involved in many other cancers and diseases. you would think they figured this out.secondly in 3 years of treatment no one as mentioned the BRAF test. i attribute this to the oncs not being melanoam savy. If there are other reasons i don’t know what they are.
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- November 23, 2022 at 11:40 pm
Thank you so much for this great information -
- December 1, 2022 at 3:13 pm
an update on nerve damage. I have never been able to get onc surgeon or oncologist to say much about my nerve damage. In particular I asked about an kind of PT to help. They smiled and nodded in the way the do.but
once out of the room the nurse said this: they don’t recommend PT before 6 weeks because, in my case of a lymphodectomy, that PT could dislodge remaining melanoma cells from excision site.50
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- March 19, 2023 at 3:31 am
Hello how are u? -
- July 22, 2023 at 11:27 am
This reply has been marked as private. -
- July 30, 2023 at 3:57 am
an update from Tkoss…i actually thought i had the best case going for me…….but….after recurence and a 2nd lymphedectomy I had nerve damage which settled to a manageable state….IOW no impairment but a feeling that never leaves my upper arms….i had to do a 3rd surgery because PETSCAN* after 2nd Lymphodectomy* revealed melanoma still existing after 2nd suregery…….problem is the 2nd lympedectomy left scar tissue which could not be gotten behind on 3rd lympthodectomy. so there is some question as too efficacy of 3rd surgery.
but what i want to draw you attention to is that after 2nd and quickly there after 3rd surgery i had 4 rounds of ipi + 4 rounds of nivo. 3 weeks after last ipi infusion I had debilitatigng headaches requiring ER and hospitalization . Seems Ipi inflamed and enlarrged my pituatary gland causing the debilitaing headaches but also disruptions to pituartry activities as well as thyroid disprutpion. I am thus on homrmone presumbly for years to come. Of course it may not have been just ipi, but the combo of ipi + nivo but i am back on nivo since about 4 weeks. so that is too soon to judge…..SO if it happpens that you get debilitating headaches don’t wait around,..get to an ER stat that knows from headaches and that will do an MRI………i think they diagnososed me within minutes of review of case history becase they gave me some IV homrmones and the pain was gone in minutes never to return..so far its been about 8 weeks.
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