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a wild ride stage 3ish to 4
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a wild ride stage 3ish to 4

› Forums › General Melanoma Community › a wild ride stage 3ish to 4

  • Post
    • June 13, 2023 at 11:15 pm
    tkoss
    Participant
      recurence in left axial LN……2nd surgery didn’t get it all…new clinic UTSWST and new docs start afresh. 3rd surgery + ipi + nivo

      4 rounds of ipi/novo barely a side effect…mainly itching…then on to nivo only. so 3 weeks after last ipi/novo combo and 1 nivo……man comes the headache, just one, all day all nite , all the head, set in. Problem is i had eye surgery same week…so every one is confused about the cause……cooler heads prevailed at UTSWT ER….opthamologists Ist , then nueroogist and then brain MRI …..and viola ,…sowollen pituitary which was was easily treated with steroids….and presto chango…4 miserable day of debiltating headache,,again just the 1, all the head. all the time…gone in 60 seconds,,,,or there abouts.

      anyway the onc steps in…seems like some kind of delayed reaction to ipi or the ipi/novo combo…or perhaps the pituitray gland was growing all along……..the moral to the story….get that brain scan……it will save you alot of headaches….

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        • June 20, 2023 at 8:25 am
        tkoss
        Participant
          u didn’t say what you didn’t understand
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