Melanoma Research Foundation | tedtell1 | Activity https://forum.melanoma.org/user/tedtell1/activity/ Activity feed for tedtell1. Tue, 21 Apr 2026 12:26:38 -0400 https://buddypress.org/?v= en-US 30 hourly 2 c6dcc3e5167980c45e9620e130f31f79 tedtell1 replied to the topic New baby and new diagnosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-baby-and-new-diagnosis/#post-276525 Sun, 27 Mar 2022 22:44:21 -0400 Hi again;
My WLE was on the back of my shoulder. Was very sore and tight, but (I am old, my babies are grown up) I could have held a wee one within a day or two. It was a nine inch excision, but not problematic. Guess it depends on how deep they need to go. MD Anderson is sure a good place according to many. Make sure you stop and enjoy your…Read more

]]> d454c14c8e70979b5efee404aa19fe64 tedtell1 replied to the topic New baby and new diagnosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-baby-and-new-diagnosis/#post-276523 Sun, 27 Mar 2022 20:35:41 -0400 Hi Amanda;
So sorry you are here and are having such a hard time with your diagnosis. I think a little more information might be helpful to others (especially moms) who are responding to your post. You said that you have been diagnosed and are going to have surgery. Is this a wide local excision to establish margins? Or removing tumors seen on…Read more

]]> 5cc7b7450c71d8f038e643a29ac75edb tedtell1 replied to the topic Please allow me to share my dear father's Melanoma journey :*( in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/please-allow-me-to-share-my-dear-fathers-melanoma-journey/#post-276519 Fri, 25 Mar 2022 16:00:13 -0400 Hi;
First, please don’t beat yourself up on the second guessing the early treatments etc., it sounds like everything was explained and careful thought was given to your dad’s preexisting medical conditions. Each patient is different and it seems like the entire team, including you were being very observant of your dad
‘s conditions. Secondly, you…Read more

]]> 9b74a21b4b85c28b6138719ca73b0c11 tedtell1 replied to the topic Update BillB in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-billb/#post-276518 Fri, 25 Mar 2022 15:43:26 -0400 A big woot woot for you Bill. Here’s to many more years of NED!
Ted

]]> 0307f89bf5fe55420ed92b509d02e22f tedtell1 replied to the topic Brain mets have shrunk after Cyberknife radiation and Braf/Mek in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-have-shrunk-after-cyberknife-radiation-and-braf-mek/#post-276136 Wed, 22 Dec 2021 23:40:42 -0500 Great news Jen!!! Merry Christmas.
Ted

]]> 9f6125859c730e969c8b463412f46a1d tedtell1 replied to the topic Stomach Mets in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stomach-mets-2/#post-275894 Thu, 28 Oct 2021 10:12:06 -0400 Amanda, So sorry you are going through this, but glad that treatment seems to be working!
Have you considered putting things in pudding/jello form. You could add protein and fruit etc to both forms. Also have you tried soups? There is so much you can do with soup to add nutrition!
Good luck,
Ted

]]> b91d62a2ef27ed74aca14595bc3a67e6 tedtell1 replied to the topic NED, But in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-but/#post-275747 Wed, 29 Sep 2021 10:06:41 -0400 Warren, thanks. It is great to hear from you despite the situation. Yep, one of the things I am hoping might be a positive for me (or two things) is no pigmentation and it is like a sore throat and cancer tumors don’t usually hurt. It is great to hear from you, how are you doing, still seeing Dr. Dudek at Regions? I seem to recall you were…Read more

]]> 5cbcb5ed0e4b0c61edb0645eaaa32544 tedtell1 replied to the topic NED, But in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-but/#post-275743 Mon, 27 Sep 2021 17:25:02 -0400 Celeste;
Thanks for the quick response. Yeah, while we melanomies all have nerves about bumps and lumps, this one is very much visible and not hard to see, but has no pigmentation, it is just a lump in the area where my tonsils (which I don’t have) would have been. And yes, when I first discovered it, it was because I constantly felt like…Read more

]]> fa5185158541c90198dc557cf26bf3f6 tedtell1 started the topic NED, But in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-but/ Mon, 27 Sep 2021 10:01:42 -0400 Hey Melanomies;
It’s been a bit. I am NED and I have been so since late 2018. Unfortunately of late I have developed some issues in my throat. It has been sore for about a month and I have a noticeable lump in the back as well as a good lump on my lower jaw underneath my tongue. I went to see my primary care, he gave me a consult to ENT, but can’t…Read more

]]> 4ea352ac9af66e73d1496caa50465d51 tedtell1 replied to the topic WLE after shave biopsy came back severely atypical in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/wle-after-shave-biopsy-came-back-severely-atypical/#post-275727 Fri, 24 Sep 2021 10:02:57 -0400 Good morning;
Please remember that they do WLE’s for severe Atypical’s out of an abundance of caution, that it might turn into something bad, not because it is currently bad! There are very very high chances that the biopsy results of your WLE will show margins clear and nothing else! I am sorry you had to have a WLE, that is no fun, but try to…Read more

]]> e642c7eb367457ff27dd14cfe22dd583 tedtell1 replied to the topic Dysplastic nevus with spitzoid features? melanoma in the forum Pediatric & AYA Melanoma Community https://forum.melanoma.org/forums/topic/dysplastic-nevus-with-spitzoid-features-melanoma/#post-275496 Sat, 14 Aug 2021 18:45:50 -0400 Hi;
I understand your worry, I think we worry about our kids more than ourselves sometimes. If the moles have been cut off and then excised, they have done testing on them, that is how they determine that they are atypical nevi (spitzoid) and not actual melanoma, so they do know the make up of the tissue removed. On the lymph node, there are many…Read more

]]> 17f0e07c213c7ab581b3d45a44970527 tedtell1 replied to the topic The TIL process in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-til-process/#post-275495 Sat, 14 Aug 2021 11:50:42 -0400 Wow Tim, what a great journal of your experience. Glad you are on the backside and hoping that you can get some positive results when you have your scans!
Ted

]]> e71032e983179e5f6618720870c1865d tedtell1 replied to the topic When the triplet fails... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/when-the-triplet-fails/#post-275364 Tue, 20 Jul 2021 15:49:45 -0400 Hey Tim, been following your challenging saga without commenting but wanted to chime in and wish you well with this very difficult but hopeful process!

Ted

 

]]> 17fe5b1ab19dd1b5b9ce6c4f8136a701 tedtell1 replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275357 Fri, 16 Jul 2021 11:35:24 -0400 Good morning Erika;

I read your note and it sounds like it has been tough but you have done a great job keeping on keepin on. This is a tough journey with a loving partner and supportive network, can’t imagine how it would be without that, so big props to you on navigating. I wanted to reach out and point you to a great FB (if you are on FB)…Read more

]]> 2e3d8041b21ad260d4310236311697ff tedtell1 replied to the topic Forever changed - Quality of Life after Melanoma (and how to help) - ASCO 2021 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/forever-changed-quality-of-life-after-melanoma-and-how-to-help-asco-2021/#post-275351 Wed, 14 Jul 2021 12:13:03 -0400 Hey all, I guess this one hits close to home. When it comes to stage IV melanoma, I was one of the really lucky ones. I was stage IV with just one metastatic tumor and an unknown primary. To date all scans have shown my organs to be clear and have been NED for over three years. That being said, post diagnosis and treatment have been extremely…Read more

]]> c606aaf623c87765c960fb34e7482e41 tedtell1 replied to the topic Scare of my life in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/scare-of-my-life/#post-275329 Sun, 11 Jul 2021 11:25:45 -0400 Patrick;

Glad you talked to the doctor. Charlie gave good advice. Most people on this forum who have been here for a long time have experienced the anxiety of having to “wait”. But the advice I am sure all of us will also give is to take it as it comes, don’t over think and let the anxiety of the situation take over your life. You don’t know that…Read more

]]> b6bbc87cbe690c936010bd57803d5812 tedtell1 replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275191 Mon, 28 Jun 2021 20:11:09 -0400 Very sad news, thanks for sharing though. It is always good to hear the news, the bad and the good!

Ted

]]> c7fec5834c98259d406576bda78a1b6d tedtell1 replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275154 Sun, 27 Jun 2021 10:57:22 -0400 Gosh yes, it has been a while. I have always loved her posts. I am hoping that maybe she is out there enjoying life? Love and prayers and good vibes etc headed out to SOCAL.

Ted

]]> a2953812ede8c9eb96c7a4c63801acd8 tedtell1 replied to the topic Staging Question in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/staging-question-4/#post-274524 Sat, 17 Apr 2021 14:06:32 -0400 Tim;

More knowledgeable peeps will answer this later I am sure. In my little bit of a brain, I would think that you would continue to be 3C since the cancer has not spread to a distant location from the original location. I believe that you would be stage IV if your nasty beast had spread to another location, but I could be wrong. Sounds like the…Read more

]]> afb3c9fd8d71caff0090a4bafd73411c tedtell1 replied to the topic Scalp Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/scalp-melanoma-3/#post-274515 Fri, 16 Apr 2021 01:47:09 -0400 Hi Wil;

Sorry you are here and have to experience this. Yes melanoma is an equal opportunity pain in the ass. It does affect people with darker skin less, but still pops up. I think better minds than mine will answer some of your questions. My lesion was on my back, not my scalp, so different animals. Mine had already spread, so no lymph node…Read more

]]> cc96ff0dfc5062b823c9f90182bac2a7 tedtell1 replied to the topic Many symptomatic brain mets - need hope in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/many-symptomatic-brain-mets-need-hope/#post-274469 Thu, 08 Apr 2021 11:37:12 -0400 Hi Jenny;

There are much more knowledgeable people than I on this forum but I can remark on a few things. First, make sure your hubby is seeing or at least consulting with a melanoma specialist. Also, find our if your husband has the braf mutation or not. That is important for treatment considerations. I may be wrong but I believe others have…Read more

]]> c660613a286710627a6e5fd509687cc5 tedtell1 replied to the topic Still NED????? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-4/#post-274382 Wed, 17 Mar 2021 10:53:57 -0400 Soooo,

Was sent to an ENT yesterday to get my throat/nose all that checked as a precaution. The wonderful PA who saw me had looked at my charts from visits for the last month and asked me if I had any follow ups scheduled. I told her no, and she asked me if they had told me what was going on with my lungs. I mentioned the small node seen in my…Read more

]]> 0c0de962bd54a56f33569add755e2f0c tedtell1 replied to the topic Still NED????? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-4/#post-274373 Mon, 15 Mar 2021 21:32:07 -0400 Hey everybody;

MRI was negative….yay, but ended up going to the ER to get checked. Everything normal….except a new 8MM nodule in my lung. We all know that means nothing!

Thanks for the good vibes everybody. Exhausted and a little depressed about the”ghost” condition that remains undiagnosed. Almost like I am imagining it or something.

Ted

]]> b3161f5ae89e6688d7d3d3a58d631308 tedtell1 started the topic Still NED????? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-4/ Sun, 14 Mar 2021 11:52:30 -0400 Hey melanomies;

I am kind of worried right now. After being NED for almost three years in the last week I have developed discomfort and swelling in the base of my neck and constriction in my throat. I can’t feel obvious lumps or bumps, just see the swelling and feel the pressure that runs all the way up the sides of my neck. Also feel like a have…Read more

]]> ec8c92e84136ee626561cde10807e305 tedtell1 replied to the topic Chances after recurrence? (10 mths Nivo) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/chances-after-recurrence-10-mths-nivo/#post-274315 Fri, 05 Mar 2021 11:49:20 -0500 Ekaterina;

I just wanted to say, I know that more knowledgeable members of the forum will pop in, but in reading many past posts, people who have had progression with one drug and have moved to the two drug therapy have had some success, so take heart!

Your mom sounds strong and able to take on this new challenge. She is lucky to have you. Good…Read more

]]> 7e67dc47d90d44b71bfc9e48642f5c38 tedtell1 replied to the topic Medical use of Cannabis in the forum Caregiver Community https://forum.melanoma.org/forums/topic/medical-use-of-cannabis/#post-274216 Fri, 12 Feb 2021 18:15:25 -0500 Hi,

I think you really need to get a response from somebody in The Netherlands. But, I am a little confused, you mentioned UCSF, which if I am thinking correctly is UCAL San Francisco. In California they have a great medical cannabis program and have been doing it for years. I live in Minnesota and our program is relatively new but my experience…Read more

]]> 8ef6dbc4949a9bcf48a2e6668e2fed8b tedtell1 replied to the topic first CT scan after 24x opdivo, ended 12-07-2020 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/first-ct-scan-after-24x-opdivo-ended-12-07-2020/#post-274052 Tue, 26 Jan 2021 22:04:09 -0500 Hey; I see no one else has answered this, thought I would chip in with my experience anyway. I have twice had tiny nodules show up in my lungs during scans, radiologists and onco both said it is a relatively common occurrence especially for individuals who have middle age up…but neither time did it show up on the next scan. They just kind of…Read more

]]> 90cf7272e043127cc25202cc88416ec9 tedtell1 replied to the topic How likely is a new, irregular mole to be benign? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-likely-is-a-new-irregular-mole-to-be-benign/#post-273797 Fri, 01 Jan 2021 14:14:41 -0500 Yes,  I have had 12 removed that were “slightly” suspicious and while some of them were “atypical”, none were positive for Mel! You can hear from many, many people here who have skin checks and moles removed alot and have those moles turn up negative for mel. Happy new year, and try not to worry until you are presented with an issue to worry…Read more

]]> 42b442ff9b459d6af71123abdf0c3f02 tedtell1 replied to the topic How likely is a new, irregular mole to be benign? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/how-likely-is-a-new-irregular-mole-to-be-benign/#post-273794 Thu, 31 Dec 2020 13:30:43 -0500 Good morning;

I have had many moles removed (and a few looked like yours) and none have ever tested positive for Mel. It is good to get checked, but don’t worry too much, as worry only makes things worse. I never found my primary, don’t even know where it came from! So, enjoy the holiday and get into the derm when you can.

Hope you can find some…Read more

]]> 46eb3ab0390597e97f24ffa3c4ed9761 tedtell1 replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-273664 Tue, 22 Dec 2020 15:55:53 -0500 Damn, thanks for letting us know Tex. This is a blow. No two ways about it. Mike’s strength and good humor despite his pain and suffering will always be a reminder to us. God bless and keep his family in this difficult time and to all my fellow Melanomies who loved Mike, love you, and peace and blessings be with you. I have no doubt some tears…Read more

]]> 52fed95d90a5b608b30e1b5487814d88 tedtell1 replied to the topic Looking for some positivity while waiting for biopsy results in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-some-reasurrance-re-melanoma/#post-273543 Sat, 19 Dec 2020 10:28:27 -0500 Hi AC; as has already been said, unfortunately we have all been in the position of waiting on biopsies. I have had the unfortunate experience of only being diagnosed after what was thought to be an infected cyst well under the skin, and we never found the primary spot. Since I have had many “suspicious” moles removed and biopsied. None were…Read more

]]> dbc498d426aa90f146071a92c28836fe tedtell1 replied to the topic Welcome to the New Patient Forum in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/welcome-to-the-new-patient-forum/#post-273542 Sat, 19 Dec 2020 10:20:44 -0500 I am with ED, I do like the new emojis. But they are hard to use, and we all are so used to knowing who is commenting/liking our posts, With the emojis we have no way of knowing who is clapping etc., I like the tags, just don’t know how to use them. Overall, once we get used to this, I think it will be okay.

Ted

]]> b0fc4da343aa88476316b192a3238670 tedtell1 replied to the topic Hmmmm..... The NEW and IMPROVED MPIP! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hmmmm-the-new-and-improved-mpip/#post-273463 Thu, 17 Dec 2020 20:23:46 -0500 :yahoo:

 

]]> f785762d99c88f37176a612e01b8494f tedtell1 replied to the topic Hmmmm..... The NEW and IMPROVED MPIP! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hmmmm-the-new-and-improved-mpip/#post-273455 Thu, 17 Dec 2020 19:20:08 -0500 Wow, this is the new improved version? Interesting….I guess it will take some time getting used to. Was wondering since so many are viewing this thread, does anyone have contact with Mike’s family if he is having a hard time posting. I seem to remember that someone was in contact with his wife at one point. Love to know how he is doing as would…Read more

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