sharonlynn210
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sharonlynn210

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      • May 15, 2020 at 6:35 pm
      sharonlynn210
      Participant
      My son Ryan was doing a year of Keytruda. He was down to his last 2 treatments and he got a terrible rash on his hands,arms, and feet.He could not even walk because it started to bleed.He never got his last treatment because of it.He had this rash for months after stopping treatment and now has scars on his arms,hands, and feet.
      • October 10, 2019 at 4:29 pm
      sharonlynn210
      Participant
      🙂
      • August 29, 2019 at 4:49 pm
      sharonlynn210
      Participant
      Hello Ed,
      My son Ryan was diagnosed Jan.26 2018. He did a year of Keytruda.He has two lung nodules we have been watching since May 2018. They have both remained stable at 4mm and 3mm. I always wondered if they could be dead tissue or something I have to always worry about. They have never done a second Pet always ct scans.
      • August 6, 2019 at 8:22 pm
      sharonlynn210
      Participant
      Hello,
      I am checking in.It has been about 10 months. Ryan’s scans continue to be good except for the same nodules with no change.
      • May 2, 2019 at 4:20 pm
      sharonlynn210
      Participant

      My son also had a mole on his back when he was 18 removed and he is stage 3 . 

      • March 22, 2019 at 3:15 pm
      sharonlynn210
      Participant

      Did he do immunotherapy?

      • February 15, 2019 at 6:11 pm
      sharonlynn210
      Participant

      All scans are clear.However he also had 2 nodules on his lungs they have been watching all year. 3mm and 4mm

      • February 15, 2019 at 5:24 pm
      sharonlynn210
      Participant

      Hello,

      My son was also diagnosed with Melanoma on 1/26/2018 and also Is being treated at the University of Penn.He was 18.Staged at 3c.Had surgery and a year of Keytruda.Yesterday he completed his treatment.What was your fathers initial stage?

      • October 19, 2018 at 4:32 pm
      sharonlynn210
      Participant

      I do get a print out each visit but I can also go on My Penn and see all his resuults as well.The beginning it went in the upper 200's but has been now in the 150"s.

      • October 16, 2018 at 6:03 pm
      sharonlynn210
      Participant

      Did they speak with you about braf testing?Can they test your orginal Melanoma?I know it took six weeks for my sons test to come back.

      • October 16, 2018 at 5:56 pm
      sharonlynn210
      Participant

      Hello Mike.

      They did a Pet s

      can before his first infusion.They said they could of been there and the Pet scan did not pick up.

      • October 12, 2018 at 3:55 pm
      sharonlynn210
      Participant

      Thank you for your reply:)

      • October 11, 2018 at 4:18 pm
      sharonlynn210
      Participant

      So true.My son does not even like to discuss it.He just wants to finish the Keytruda and be done.I am not sure if he really understands Melanoma like I do,Ive done a lot of research and know how sneaky it is.Trust me if I can get through one day with only crying once then that was a good day for me.It was so hard seeing him go from completely healthy to surgeries,drains,scans,needles.I so wish it was me:(

      • October 11, 2018 at 4:13 pm
      sharonlynn210
      Participant

      Same here.I believe the Keytruda stopped it.

      • October 11, 2018 at 4:11 pm
      sharonlynn210
      Participant

      Thank you for your response.I will let you know:)

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