Hello fellow fighters,
- May 14, 2020 at 9:19 pm
I’m wondering if anyone here has developed a side effect from treatment after being off immunotherapy for more than a year.
Earlier this week, I started developing tiny bumps and itchiness all over my arms and legs. I haven’t changed detergents, been anywhere atypical or come into contact with any plants or bugs. I’m in Ohio and it’s still cool here so I haven’t even been outdoors in short sleeves or shorts/dresses for months. I cannot figure out what this could be from and the only thing I can think is that it is somehow related to my previous treatment of Ipi/Nivo. I did develop itchiness when I was on treatment, but my last treatment was 1/31/19 and I feel like it’s been too long to develop a skin reaction.
Has anyone else experienced something similar?
I hope you are all as well as can be expected when leaving with both Melanoma and madness of COVID.
sharonlynn210ParticipantMy son Ryan was doing a year of Keytruda. He was down to his last 2 treatments and he got a terrible rash on his hands,arms, and feet.He could not even walk because it started to bleed.He never got his last treatment because of it.He had this rash for months after stopping treatment and now has scars on his arms,hands, and feet.
- May 15, 2020 at 6:35 pm
gopher38ParticipantI was going to reply to this a few days ago, but I forgot my password and didn’t want to reset it. Got it back now.
- May 16, 2020 at 2:48 pm
I did a year of Opdivo and then stopped for six months. They then found some new mel spots, so I had to start again with the combo, but before I’d started that (so at the time, I’d still only had the Opdivo, which I had stopped six months before), I broke out with a rash all over the torso, front and back. Had to do some cream, I think with steroids in it, for several months to get it back under control, but I still have a lower level rash, mostly on the chest now.
Thank you so much for sharing this! It’s not the same amount of time but I’d say six months is still a significant time to be off treatment and developing new side effects! I see my oncologist next week and am going to ask her about getting big some steroid cream. Take care!
- May 16, 2020 at 10:20 pm
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