MRF-Logo2019-Horizontal-RGB
rrrule32
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

rrrule32

Forum Replies Created

Viewing 8 reply threads
1 2 3
  • Replies
      • November 8, 2012 at 5:16 pm
      rrrule32
      Participant

        Snickers, can you tell me how much baking soda he would use, and how often he would drink it each day?

        Thank you,

        Travis

        • November 8, 2012 at 5:16 pm
        rrrule32
        Participant

          Snickers, can you tell me how much baking soda he would use, and how often he would drink it each day?

          Thank you,

          Travis

          • November 8, 2012 at 5:16 pm
          rrrule32
          Participant

            Snickers, can you tell me how much baking soda he would use, and how often he would drink it each day?

            Thank you,

            Travis

            • November 2, 2012 at 7:39 pm
            rrrule32
            Participant

              Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

              Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

              Thank you so much in advance for the information, and congratulations on your great news. 

              Travis

              • November 2, 2012 at 7:39 pm
              rrrule32
              Participant

                Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

                Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

                Thank you so much in advance for the information, and congratulations on your great news. 

                Travis

                • November 2, 2012 at 7:39 pm
                rrrule32
                Participant

                  Ali, I've been following your story for some time now because I've been using you as an example to my oncologist.  My fiance, Kaitlyn, 23, has Stage IV Melanoma.  It's in her brain.  Her Zelboraf recently stopped working.  Temodar was one of the options her oncologist is considering.  But, I don't want to do Temodar unless we do Ipilimumab with it at the same time. 

                  Can you tell me, how did you convince your oncologist to let you go with both treatments?  Also, did your insurance cover both, or just one?

                  Thank you so much in advance for the information, and congratulations on your great news. 

                  Travis

                  • October 31, 2012 at 1:00 pm
                  rrrule32
                  Participant

                    Hey Everyone,

                    Thank you for your thoughts and advice.  I am looking into PD-1 and a couple other trials.  The only problem is, we don't know if her brain mets have progressed.  If so, that makes things even more difficult.

                    Nahmi, you are right it seems, her tumors seem to have gotten much more aggressive.  We speak with her oncologist on Friday.  Even that feels like an eternity away. 

                    Again, thank you all for your help and kind words.  Hopefully something comes up that helps.

                    Travis

                    • October 31, 2012 at 1:00 pm
                    rrrule32
                    Participant

                      Hey Everyone,

                      Thank you for your thoughts and advice.  I am looking into PD-1 and a couple other trials.  The only problem is, we don't know if her brain mets have progressed.  If so, that makes things even more difficult.

                      Nahmi, you are right it seems, her tumors seem to have gotten much more aggressive.  We speak with her oncologist on Friday.  Even that feels like an eternity away. 

                      Again, thank you all for your help and kind words.  Hopefully something comes up that helps.

                      Travis

                      • October 31, 2012 at 1:00 pm
                      rrrule32
                      Participant

                        Hey Everyone,

                        Thank you for your thoughts and advice.  I am looking into PD-1 and a couple other trials.  The only problem is, we don't know if her brain mets have progressed.  If so, that makes things even more difficult.

                        Nahmi, you are right it seems, her tumors seem to have gotten much more aggressive.  We speak with her oncologist on Friday.  Even that feels like an eternity away. 

                        Again, thank you all for your help and kind words.  Hopefully something comes up that helps.

                        Travis

                        • October 31, 2012 at 1:03 pm
                        rrrule32
                        Participant

                          Dammit, I wish our oncologist would have told us that.  Her tumor burden at the time was not very heavy.  Well, hopefully we can get on something quickly then.  Hopefully that something can work.  That's pretty discouraging about Zelboraf.

                          Travis

                          • October 31, 2012 at 1:03 pm
                          rrrule32
                          Participant

                            Dammit, I wish our oncologist would have told us that.  Her tumor burden at the time was not very heavy.  Well, hopefully we can get on something quickly then.  Hopefully that something can work.  That's pretty discouraging about Zelboraf.

                            Travis

                            • October 31, 2012 at 1:03 pm
                            rrrule32
                            Participant

                              Dammit, I wish our oncologist would have told us that.  Her tumor burden at the time was not very heavy.  Well, hopefully we can get on something quickly then.  Hopefully that something can work.  That's pretty discouraging about Zelboraf.

                              Travis

                              • October 4, 2012 at 1:28 pm
                              rrrule32
                              Participant

                                Thank you, Valerie.  I was just curious because I called them and they said because she had 5 brain tumors that she wouldn't qualify for these TIL clinical trials.  Even if those 5 tumors are stable, their limit is 3.  That's why I was curious how many Phil had.  Thank you for providing me with that information.  Good luck to you two and hopefully the good news keeps rolling in.

                                • October 4, 2012 at 1:28 pm
                                rrrule32
                                Participant

                                  Thank you, Valerie.  I was just curious because I called them and they said because she had 5 brain tumors that she wouldn't qualify for these TIL clinical trials.  Even if those 5 tumors are stable, their limit is 3.  That's why I was curious how many Phil had.  Thank you for providing me with that information.  Good luck to you two and hopefully the good news keeps rolling in.

                                  • October 4, 2012 at 1:28 pm
                                  rrrule32
                                  Participant

                                    Thank you, Valerie.  I was just curious because I called them and they said because she had 5 brain tumors that she wouldn't qualify for these TIL clinical trials.  Even if those 5 tumors are stable, their limit is 3.  That's why I was curious how many Phil had.  Thank you for providing me with that information.  Good luck to you two and hopefully the good news keeps rolling in.

                                Viewing 8 reply threads
                                1 2 3