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Rona

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      Rona
      Participant

      smiley That is great news!!!! I hope you are NED forever!!! 

      Enjoy LIFE and all that comes with it….. 

       

      Rona

      Rona
      Participant

      smiley That is great news!!!! I hope you are NED forever!!! 

      Enjoy LIFE and all that comes with it….. 

       

      Rona

      Rona
      Participant

      smiley That is great news!!!! I hope you are NED forever!!! 

      Enjoy LIFE and all that comes with it….. 

       

      Rona

      Rona
      Participant

      This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

      Rona

      Rona
      Participant

      This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

      Rona

      Rona
      Participant

      This really shows me that every ONC is different. My ONC stressed the importance of informing her of Colitis. She said it was a deal breaker for me. If I did develope colitis I would be put on steroids and taken off the Yervoy. 

      Rona

      Rona
      Participant

      sending love

      Rona

      Rona
      Participant

      sending love

      Rona

      Rona
      Participant

      sending love

      Rona

      Rona
      Participant

      John,

      My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

      When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

      Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

      Keep us posted on your journey,

      Rona

      Rona
      Participant

      John,

      My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

      When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

      Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

      Keep us posted on your journey,

      Rona

      Rona
      Participant

      John,

      My experience with the treatment did not go very smooth. I actually did much better the first month when its given everyday. I worked full time and went to school. But, I was very weak and slept every chance I could. I slept on breaks, in between classes. If I was not driving, I would sleep. I think it really helped that I drank  about 80 oz's of water. I'm not kidding, that's all I drank(water), that's all that I could tolerate. Nothing tasted good and nothing else stayed down. I dropped 20 lbs that month. 

      When I started the self injections, I just went down hill. I finally had to stop after the 4th time I got pneumonia. I was hospitalized and stopped the treatment. The nurses kept letting me that it will get easier, but it didn't. I lasted 4 months.

      Now, that's my story. That doesn't mean that it will effect you the same way. There are many people that tolerate it much better……

      Keep us posted on your journey,

      Rona

      Rona
      Participant

      I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

      Rona

      Rona
      Participant

      I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

      Rona

      Rona
      Participant

      I have to agree with that. After I stopped the treatment (in Aug 2010) I had surgery to remove MEL in Aug '10, Dec '10, Feb '11, Mar '11, Apr '11,May '11, Jun '11, and Oct '11. It was like the interferon pissed off my MEL. And, all those surgeries were while I was on DTIC. 

      Rona

Viewing 11 reply threads
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