RitysMom
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RitysMom

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      • July 14, 2017 at 4:16 am
      RitysMom
      Participant

      Great news! So happy for you!!!

      • July 5, 2017 at 6:08 am
      RitysMom
      Participant

      I'm heartbroken for you, Rob. Praying you find comfort in your lovely memories of Adriana.

      • June 30, 2017 at 4:16 pm
      RitysMom
      Participant

      That is wonderful news!!! I'm so happy for you and pray I will one day be posting the same! I completely agree with how much this forum is a lifeline to all who use it and want you to know that you have been such an encouragement to me!

      • June 28, 2017 at 3:34 pm
      RitysMom
      Participant

      Rob, I'm so glad you and Adriana were able to have such a wonderful vacation, but truly saddened to hear she has deteriorated since then. I'm praying you have many more 'not todays' filled with sweet, intimate, loving moments. I also pray that her family 'wakes up' and begins helping you out. Thank you for sharing your heart and experiences with all of us.

      • June 24, 2017 at 9:58 pm
      RitysMom
      Participant

      Janis, thank you for sharing…it was beautiful, and the comments by those that knew and loved Shane showed what a truly wonderful man he was. I'm heartbroken for you and pray you find peace and comfort in your many memories of him.

      • June 19, 2017 at 1:15 pm
      RitysMom
      Participant

      Janis, my heart is breaking for you. I have so appreciated your openness and honesty in sharing your journey. I pray now that your heart finds peace and comfort.

      • June 12, 2017 at 9:43 pm
      RitysMom
      Participant

      It definitely looks like ringworm to me…you can buy something over the counter like Lotrimin, but for your own peace of mind, go to urgent care.

      • July 2, 2017 at 6:27 am
      RitysMom
      Participant

      It's actually possible that hers is radiation induced also…she finished wbrt on 5/24 and had a high dose of radiation to her spine on 6/9. I thought it seemed early to have a reaction after the 1st ipi/nivo dose, but who knows…anything is possible. Hoping for some relief for Adriana in that regard!

      • July 2, 2017 at 6:23 am
      RitysMom
      Participant

      Thank you for your response, Patina. Yesterday was the worst thus far and it was 4-5x, today was only 3x, so we're making progress. I have ulcerative colitis myself, so I was very worried about her developing colitis…especially when she has no mobility from the waist down. I can't imagine her having 15x per day, so I will definitely stay on top of it. 

      • July 2, 2017 at 6:15 am
      RitysMom
      Participant

      Ed, thank you so much for the link! I contacted her oncologist Wed morning and he said to start Imodium and is having her come in on Monday. Based on the link you provided, she's probably a grade 1/borderline grade 2. She has shown improvement today, so I'm thinking I'll just stay the course. Thanks again!

      • July 2, 2017 at 6:05 am
      RitysMom
      Participant

      Thanks for the suggestion…I will ask at her appt on Monday. Today was better than yesterday, so maybe the Imodium is kicking in.

      • June 28, 2017 at 3:12 pm
      RitysMom
      Participant

      Barb, Thank you so much for the encouragement. She has shown some improvement since increasing the steroids, and hearing/reading that others have made it through such difficult circumstances definitely gives me hope!

      • June 28, 2017 at 3:08 pm
      RitysMom
      Participant

      Thank you for your response, Niki. We're back in LA and I plan to call Dr. Chang today!

      • June 28, 2017 at 3:07 pm
      RitysMom
      Participant

      We are back in LA and rescheduling with him is one of my goals today.

      • June 24, 2017 at 11:42 pm
      RitysMom
      Participant

      He thought the vomiting was from the pressure of brain mets. I'm wondering if they may be swelling in response to the combo???

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