@ninniditti
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- April 23, 2016 at 6:29 pm
I agree! I have got a lot of information in her blog wich I have not found elsewhere. My oncologist is always interested to discuss what i have read. Thank you Celeste!
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- April 23, 2016 at 6:29 pm
I agree! I have got a lot of information in her blog wich I have not found elsewhere. My oncologist is always interested to discuss what i have read. Thank you Celeste!
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- April 23, 2016 at 6:29 pm
I agree! I have got a lot of information in her blog wich I have not found elsewhere. My oncologist is always interested to discuss what i have read. Thank you Celeste!
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- April 17, 2016 at 9:21 pm
Thank you very much MoiraM and Celeste!
I thought about what would happen over the the next year and I realize that I can't stand the pain if the tumor grows. I understand that the effect of radiation doesn't last for long and I can't do another radiation. So I became very interested in biphosphonates and I now read that it can reduce the pain. I know that I don't have the mutations for BRAF or CKIT. I will ask my onc about the others you mentioned Celeste. I live in Sweden so all treatments are not available here. I am so greatful for your answers, its worth a lot. I often read your blog Celeste and get a lot of information there. I wish you and everyone who reads this the best of luck!Ninni -
- April 17, 2016 at 9:21 pm
Thank you very much MoiraM and Celeste!
I thought about what would happen over the the next year and I realize that I can't stand the pain if the tumor grows. I understand that the effect of radiation doesn't last for long and I can't do another radiation. So I became very interested in biphosphonates and I now read that it can reduce the pain. I know that I don't have the mutations for BRAF or CKIT. I will ask my onc about the others you mentioned Celeste. I live in Sweden so all treatments are not available here. I am so greatful for your answers, its worth a lot. I often read your blog Celeste and get a lot of information there. I wish you and everyone who reads this the best of luck!Ninni -
- April 17, 2016 at 9:21 pm
Thank you very much MoiraM and Celeste!
I thought about what would happen over the the next year and I realize that I can't stand the pain if the tumor grows. I understand that the effect of radiation doesn't last for long and I can't do another radiation. So I became very interested in biphosphonates and I now read that it can reduce the pain. I know that I don't have the mutations for BRAF or CKIT. I will ask my onc about the others you mentioned Celeste. I live in Sweden so all treatments are not available here. I am so greatful for your answers, its worth a lot. I often read your blog Celeste and get a lot of information there. I wish you and everyone who reads this the best of luck!Ninni -
- December 11, 2015 at 9:41 am
So very sorry!
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- December 11, 2015 at 9:41 am
So very sorry!
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- December 11, 2015 at 9:41 am
So very sorry!
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- December 8, 2015 at 1:35 am
Hi Artie!
My situation is a little like yours, but me beeing 66 years old make a lot difference to accept it all. I love LIFE but can accept the end of it.I know you have written about cannabisoil willing to try it. I have had it in periods for two years ( Rick Simpsons recip). I can't say it reduced my pain, nor killed cancercells. It's diffycult to know which one is working if you take more than one drug. I took it all the time I was on Dacarbazine. The tumours were stable for one year and one tiny tumour in my lung diasappeared. Was it dacarbazine, cannabisoil or none of them? When I started Keytruda I finished cannabisoil. Like you I now take opiates, hate it but it takes away most of the pain. I am going to test Transcutaneous electrical nerve stimulation (TENS) , having a demonstration this wednesday. I have read all your posts over the years and they have inspired me to go on. Since I read your post this morning I have been thinking of writing to you. Now in the middle of the night i read a post that you are in hospital. I really hope they can help you to get your spirit back. I am amazed that a complete stranger so fare away (I live in Sweden) can affect you so much as you do.Warm hugs to you/Inger -
- December 8, 2015 at 1:35 am
Hi Artie!
My situation is a little like yours, but me beeing 66 years old make a lot difference to accept it all. I love LIFE but can accept the end of it.I know you have written about cannabisoil willing to try it. I have had it in periods for two years ( Rick Simpsons recip). I can't say it reduced my pain, nor killed cancercells. It's diffycult to know which one is working if you take more than one drug. I took it all the time I was on Dacarbazine. The tumours were stable for one year and one tiny tumour in my lung diasappeared. Was it dacarbazine, cannabisoil or none of them? When I started Keytruda I finished cannabisoil. Like you I now take opiates, hate it but it takes away most of the pain. I am going to test Transcutaneous electrical nerve stimulation (TENS) , having a demonstration this wednesday. I have read all your posts over the years and they have inspired me to go on. Since I read your post this morning I have been thinking of writing to you. Now in the middle of the night i read a post that you are in hospital. I really hope they can help you to get your spirit back. I am amazed that a complete stranger so fare away (I live in Sweden) can affect you so much as you do.Warm hugs to you/Inger -
- December 8, 2015 at 1:35 am
Hi Artie!
My situation is a little like yours, but me beeing 66 years old make a lot difference to accept it all. I love LIFE but can accept the end of it.I know you have written about cannabisoil willing to try it. I have had it in periods for two years ( Rick Simpsons recip). I can't say it reduced my pain, nor killed cancercells. It's diffycult to know which one is working if you take more than one drug. I took it all the time I was on Dacarbazine. The tumours were stable for one year and one tiny tumour in my lung diasappeared. Was it dacarbazine, cannabisoil or none of them? When I started Keytruda I finished cannabisoil. Like you I now take opiates, hate it but it takes away most of the pain. I am going to test Transcutaneous electrical nerve stimulation (TENS) , having a demonstration this wednesday. I have read all your posts over the years and they have inspired me to go on. Since I read your post this morning I have been thinking of writing to you. Now in the middle of the night i read a post that you are in hospital. I really hope they can help you to get your spirit back. I am amazed that a complete stranger so fare away (I live in Sweden) can affect you so much as you do.Warm hugs to you/Inger -
- August 29, 2016 at 7:02 pm
Hi Jennifer! I and my sister are identical twins. I have melanoma my twin has not. I believe she is the one who suffers most. It's funny but when I suffer from sideeffects my twin seems to have the same symtom.
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- August 29, 2016 at 7:02 pm
Hi Jennifer! I and my sister are identical twins. I have melanoma my twin has not. I believe she is the one who suffers most. It's funny but when I suffer from sideeffects my twin seems to have the same symtom.
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- August 29, 2016 at 7:02 pm
Hi Jennifer! I and my sister are identical twins. I have melanoma my twin has not. I believe she is the one who suffers most. It's funny but when I suffer from sideeffects my twin seems to have the same symtom.
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