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newmanmark
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newmanmark

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      • April 21, 2017 at 1:40 pm
      newmanmark
      Participant

        I have been on the combo since December.  I've had some minor complications but the tumour shrank to half of it's size after only 3 treatments.  I will have another scan in June.  Give it some time and hang in there!

        • March 1, 2018 at 12:42 am
        newmanmark
        Participant

          Thanks Barb.  I really appreicate your response and I'm happy to hear that your sister is doing well after such a huge tumour burden.  

          • November 15, 2017 at 5:30 pm
          newmanmark
          Participant

            I also had hypophysitis and will now likely be on hydrocortisone for the rest of my life.  What’s the outcome of your hypophysitis?

             

            • November 10, 2017 at 8:43 pm
            newmanmark
            Participant

              Do they believe the osteopenia is from the steroid use?

              • November 10, 2017 at 8:43 pm
              newmanmark
              Participant

                Thanks for the info Celeste!

                • November 10, 2017 at 8:42 pm
                newmanmark
                Participant

                  Thanks Julie.  After 8 years of dealing with melanoma, I feel ready for a break.

                  • November 10, 2017 at 8:41 pm
                  newmanmark
                  Participant

                    I don't think TVEC has been approved in Canada yet.  We are going to have an excision discussion with a surgeon next week.

                    • May 9, 2017 at 12:25 am
                    newmanmark
                    Participant

                      Hi Ed.  My AST was 185 U/L and my ALT was 64 U/L.

                      • April 13, 2017 at 2:03 pm
                      newmanmark
                      Participant

                        Hey Kerri.  My heart goes out to your son.  No kid should have to go through this.  I wish him the best and I pray he beats this thing!

                        • April 13, 2017 at 2:02 pm
                        newmanmark
                        Participant

                          I hear you on the fatigue as well.  Not fun!  Good luck with everything!

                          • April 13, 2017 at 2:02 pm
                          newmanmark
                          Participant

                            Happy to hear you are NED Eileen.  It must be a huge relief.  Two years is a long time to be on treatment but it obviously worked for you.  Here's to many more years of NED!

                            • April 12, 2017 at 4:48 pm
                            newmanmark
                            Participant

                              Here's hoping that you get your NED status very soon!

                              • April 12, 2017 at 4:48 pm
                              newmanmark
                              Participant

                                Congrats on your husband's NED status.  So amazing!

                                • April 12, 2017 at 4:47 pm
                                newmanmark
                                Participant

                                  I understand that I could be in a much worse place but it has been a very long road for me.   I was diagnosed in 2009.  I was hoping to dodge some of these side effects but it looks like that won't be the case.  

                                  • April 12, 2017 at 4:46 pm
                                  newmanmark
                                  Participant

                                    I'm so happy to hear that you're in remission Terrie!  I hope you remain there forever!

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