newmanmark
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newmanmark

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      • April 21, 2017 at 1:40 pm
      newmanmark
      Participant

      I have been on the combo since December.  I've had some minor complications but the tumour shrank to half of it's size after only 3 treatments.  I will have another scan in June.  Give it some time and hang in there!

      • March 1, 2018 at 12:42 am
      newmanmark
      Participant

      Thanks Barb.  I really appreicate your response and I'm happy to hear that your sister is doing well after such a huge tumour burden.  

      • November 15, 2017 at 5:30 pm
      newmanmark
      Participant

      I also had hypophysitis and will now likely be on hydrocortisone for the rest of my life.  What’s the outcome of your hypophysitis?

       

      • November 10, 2017 at 8:43 pm
      newmanmark
      Participant

      Do they believe the osteopenia is from the steroid use?

      • November 10, 2017 at 8:43 pm
      newmanmark
      Participant

      Thanks for the info Celeste!

      • November 10, 2017 at 8:42 pm
      newmanmark
      Participant

      Thanks Julie.  After 8 years of dealing with melanoma, I feel ready for a break.

      • November 10, 2017 at 8:41 pm
      newmanmark
      Participant

      I don't think TVEC has been approved in Canada yet.  We are going to have an excision discussion with a surgeon next week.

      • May 9, 2017 at 12:25 am
      newmanmark
      Participant

      Hi Ed.  My AST was 185 U/L and my ALT was 64 U/L.

      • April 13, 2017 at 2:03 pm
      newmanmark
      Participant

      Hey Kerri.  My heart goes out to your son.  No kid should have to go through this.  I wish him the best and I pray he beats this thing!

      • April 13, 2017 at 2:02 pm
      newmanmark
      Participant

      I hear you on the fatigue as well.  Not fun!  Good luck with everything!

      • April 13, 2017 at 2:02 pm
      newmanmark
      Participant

      Happy to hear you are NED Eileen.  It must be a huge relief.  Two years is a long time to be on treatment but it obviously worked for you.  Here's to many more years of NED!

      • April 12, 2017 at 4:48 pm
      newmanmark
      Participant

      Here's hoping that you get your NED status very soon!

      • April 12, 2017 at 4:48 pm
      newmanmark
      Participant

      Congrats on your husband's NED status.  So amazing!

      • April 12, 2017 at 4:47 pm
      newmanmark
      Participant

      I understand that I could be in a much worse place but it has been a very long road for me.   I was diagnosed in 2009.  I was hoping to dodge some of these side effects but it looks like that won't be the case.  

      • April 12, 2017 at 4:46 pm
      newmanmark
      Participant

      I'm so happy to hear that you're in remission Terrie!  I hope you remain there forever!

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