Melanoma Mom

Donna,

Be sure to get ahead of the side effects, as best you can. Alternating between Tylenol and Advil can really help with the effects when they kick in, usually 4-6 hours after dosage. My son took Tylenol when he began the infusion, Advil two hours later and then Tylenol again two hours after that. Of course run this by your Oncologist, but this really helped a lot.

Ignore that anonymous troll …. 

Donna,

Be sure to get ahead of the side effects, as best you can. Alternating between Tylenol and Advil can really help with the effects when they kick in, usually 4-6 hours after dosage. My son took Tylenol when he began the infusion, Advil two hours later and then Tylenol again two hours after that. Of course run this by your Oncologist, but this really helped a lot.

Ignore that anonymous troll …. 

Kevin,

I always watch for your posts and hope that you are doing well. You have a wonderful outlook and I wish so earnestly for your complete remission. Keep living and loving …. it's a lot more than some people ever do in their lives! I believe that a positive approach to life can truly add to your healing.

We are soon approaching my teenage son's one year anniversary of his diagnosis. I thank God every day that he is with us and that this insideous disease has not taken him. 

Kevin,

I always watch for your posts and hope that you are doing well. You have a wonderful outlook and I wish so earnestly for your complete remission. Keep living and loving …. it's a lot more than some people ever do in their lives! I believe that a positive approach to life can truly add to your healing.

We are soon approaching my teenage son's one year anniversary of his diagnosis. I thank God every day that he is with us and that this insideous disease has not taken him. 

Our son's Onc supported the supplements even while on Interferon. Our son takes many of the ones you all have mentioned. Should I be worried? Has anyone else had their Onc say not to take them while Interferon??

It's very obvious who anonymous is …. sometimes he forgets to click that choice and his real MRF name is used. Again, report him to MRF, as I have, and we might get somewhere!

It's very obvious who anonymous is …. sometimes he forgets to click that choice and his real MRF name is used. Again, report him to MRF, as I have, and we might get somewhere!

Lisa,

Anonymous is wanting to offend – and be offended – that is why he posts what he does. We just need to continue to contact MRF and hope that they address the issue. Bickering back and forth with him will get us nowhere. 

Lisa,

Anonymous is wanting to offend – and be offended – that is why he posts what he does. We just need to continue to contact MRF and hope that they address the issue. Bickering back and forth with him will get us nowhere. 

Denise,

I totally get where you are coming from! Our 14 year old son's growth was also extremely deep – 14mm like yours, and ulcerated. His nodes and scans were clear, thankfully, but they highly encouraged us at Dana-Farber to try Interferon. Our son has completed six months of treatment. 

I really wish the statistics were more favorable. It truly comes down to what your gut tells you to do … our son said that he wanted to try it, because if he didn't and the cancer came back, he would always question his decision. So at least he can feel he tried it. Only time will tell and of course, we will never know truly if the Interferon helped in any way. I believe in my heart he will remain NED. He is a strong, courageous boy who just rode 600 miles on his bike along the West coast and I believe he can conquer anything! But, that's a proud Mom speaking. 🙂

Best of luck and know that there are many of us supporting you on this road.

Elizabeth, "Melanoma Mom"

Denise,

I totally get where you are coming from! Our 14 year old son's growth was also extremely deep – 14mm like yours, and ulcerated. His nodes and scans were clear, thankfully, but they highly encouraged us at Dana-Farber to try Interferon. Our son has completed six months of treatment. 

I really wish the statistics were more favorable. It truly comes down to what your gut tells you to do … our son said that he wanted to try it, because if he didn't and the cancer came back, he would always question his decision. So at least he can feel he tried it. Only time will tell and of course, we will never know truly if the Interferon helped in any way. I believe in my heart he will remain NED. He is a strong, courageous boy who just rode 600 miles on his bike along the West coast and I believe he can conquer anything! But, that's a proud Mom speaking. 🙂

Best of luck and know that there are many of us supporting you on this road.

Elizabeth, "Melanoma Mom"

No, it's not anonymous, actually. I have a profile you or anyone can look at, I have shared info about my teenage son battling melanoma. Thus, I am Melanoma Mom. I am also a stage 4 thyroid cancer survivor. 

It is obvious that your way is the only way and anyone who chooses otherwise will face your wrath. 

Again, hiding behind "Anonymous" makes you a loud-talking coward. 

Feel free to respond, but I won't be reading it. Miserable people like you won't change. Thankfully I am not like you.

No, it's not anonymous, actually. I have a profile you or anyone can look at, I have shared info about my teenage son battling melanoma. Thus, I am Melanoma Mom. I am also a stage 4 thyroid cancer survivor. 

It is obvious that your way is the only way and anyone who chooses otherwise will face your wrath. 

Again, hiding behind "Anonymous" makes you a loud-talking coward. 

Feel free to respond, but I won't be reading it. Miserable people like you won't change. Thankfully I am not like you.

Anyone who posts as anonymous and isn't brave enough to stand behind their word isn't worth the time of day. You are a troll, Mr. Anonymous.

Anyone who posts as anonymous and isn't brave enough to stand behind their word isn't worth the time of day. You are a troll, Mr. Anonymous.