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Maureen038

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      Maureen038
      Participant
      I’m so very sorry Kerri. I will keep you and Jake and your family in my prayers. You are an amazing mom and my heart aches for all that you have been through. May you have some peace in knowing how much you did for Jake.

      Hugs,

      Maureen

      Maureen038
      Participant
      I’m so sorry Mike that you keep getting bad news. That sucks! Please don’t give up though because there are options. I would contact Dr. Hamid for TIL therapy or Dr. Rosenberg at NIH for TIL treatment. My husband went through TIL treatment and even though he wasn’t considered a responder, he feels it helped. If you read his story you will see he also had chemo too. He has had many surgeries and treatments. Right now he is on a breast cancer drug. He went to Sloan Kettering and found out he had an over expression of Her 2 mutation. Keep fighting Mike!!
      Maureen
      Maureen038
      Participant
      Brian, I’m glad to hear your rash isn’t a big deal. Thanks for the info on vitamin d. I will have Bill check his level. He’s doing well but he had surgery last month and they removed the last part of his big toe due to an infection in the bone. Everything is great now and he’s even played some golf. I’m so happy that you and Celeste are doing well too! Let me know if either of you ever attend a cancer event. It would be wonderful to meet both of you! We’re going to the DC Melanoma gala in two weeks! Take care my friends!
      Maureen
      Maureen038
      Participant
      Hi Brian! Great to see you post and Celeste too! Do you still have a rash? What happened with the biopsy? Please keep us posted.
      Maureen
      Maureen038
      Participant
      I’m sorry Brian that you are dealing with annoying drug reactions. Please let us when you find out further information. Take care .
      Maureen
      Maureen038
      Participant
      Thanks so much Brian!!! We’re looking forward to having a relaxing summer! We hope you and family have a fantastic summer too!!

      Maureen

      Maureen038
      Participant
      Thanks so much Ed!!
      Maureen038
      Participant
      Aww thanks so much Les!! You are such a kind soul!! That’s awesome that you’re doing so much exercise! I love Barre class too. I hope you and your family have a fantastic summer too!!!
      Love,
      Maureen
      Maureen038
      Participant
      That’s wonderful that you are NED Marc! I hope that never stops! I very much agree with you that your life changes with this disease. You definitely want to surround yourself with supportive and compassionate people. Take care.
      Maureen
      Maureen038
      Participant

      Thank you very much!

      Maureen

      Maureen038
      Participant

      Thanks so much Brian!! Let’s hope so!! I just wanted to tell you and Celeste that I read both of your last replies to my previous post  when Bill and I were waiting for the doctor to come into his room. I started crying and I had to explain to him that my buddies on MRF were raising my spirits. You both will never know how much that helped! Wishing you and your family the best!

      Maureen

      Maureen038
      Participant

      Thanks Jackie! That’s awesome news about being NED for 5 years!!! Fingers crossed for us.

      Maureen

      Maureen038
      Participant

      Thanks so much Cindy!

      Maureen038
      Participant

      Thanks so much! Hope everything goes great with your radiation!

      Maureen

      Maureen038
      Participant

      Thanks so much Celeste!!! You are such a shining light for so many of us here!! I will keep reading your blog to see how things are going for you with your treatment. I love all the pictures!

      Maureen

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