mark1101
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mark1101

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      • April 20, 2014 at 2:45 pm
      mark1101
      Participant

      Sounds like side effects of treatment seem to vary little from patient to patient.  So I think I know what to expect there.  I will be receiving treatment in Seidman Cancer Center, so I am hopeful they are well schooled in handling whatever difficulties I encounter.  I had heard a lot of good outcomes from the Zelboraf/IL-2 sequence so I am hopeful that this will be a likewise for me.  Thanks for all of the feedback.

      • April 20, 2014 at 2:45 pm
      mark1101
      Participant

      Sounds like side effects of treatment seem to vary little from patient to patient.  So I think I know what to expect there.  I will be receiving treatment in Seidman Cancer Center, so I am hopeful they are well schooled in handling whatever difficulties I encounter.  I had heard a lot of good outcomes from the Zelboraf/IL-2 sequence so I am hopeful that this will be a likewise for me.  Thanks for all of the feedback.

      • April 20, 2014 at 2:45 pm
      mark1101
      Participant

      Sounds like side effects of treatment seem to vary little from patient to patient.  So I think I know what to expect there.  I will be receiving treatment in Seidman Cancer Center, so I am hopeful they are well schooled in handling whatever difficulties I encounter.  I had heard a lot of good outcomes from the Zelboraf/IL-2 sequence so I am hopeful that this will be a likewise for me.  Thanks for all of the feedback.

      • April 18, 2014 at 3:02 pm
      mark1101
      Participant

      Ipi failed for me at about 8 months into treatment.  I am on Zelboraf right now as part of a sequencing trial to study the benefits of IL-2 taken in sequence with BRAF meds.  I understand the IL-2 treatment can be tough.

      • April 18, 2014 at 3:02 pm
      mark1101
      Participant

      Ipi failed for me at about 8 months into treatment.  I am on Zelboraf right now as part of a sequencing trial to study the benefits of IL-2 taken in sequence with BRAF meds.  I understand the IL-2 treatment can be tough.

      • April 18, 2014 at 3:02 pm
      mark1101
      Participant

      Ipi failed for me at about 8 months into treatment.  I am on Zelboraf right now as part of a sequencing trial to study the benefits of IL-2 taken in sequence with BRAF meds.  I understand the IL-2 treatment can be tough.

      • February 17, 2014 at 5:27 pm
      mark1101
      Participant

      Ditto on my successful use of massage for arm and hand swelling.  My therapist tells me that the lymphatic system has the capability of re-routing itself when a short cirucit caused my surgery occurs.  Whether this is true or not, it works for me.  Each session causes immediate improvement which lasts longer each time. My therapist has alos imparted to me a few simple techniques I can emply at home to prolong the positive effects of her efforst.   I now only use compression sleeve occasionally around the house or when flying.  Also when you get your compression garment, definitely go to a medical apparatus shop where they can fit you for your particualr needs.  This is one area where buying off the internet is not a good idea.

      • February 17, 2014 at 5:27 pm
      mark1101
      Participant

      Ditto on my successful use of massage for arm and hand swelling.  My therapist tells me that the lymphatic system has the capability of re-routing itself when a short cirucit caused my surgery occurs.  Whether this is true or not, it works for me.  Each session causes immediate improvement which lasts longer each time. My therapist has alos imparted to me a few simple techniques I can emply at home to prolong the positive effects of her efforst.   I now only use compression sleeve occasionally around the house or when flying.  Also when you get your compression garment, definitely go to a medical apparatus shop where they can fit you for your particualr needs.  This is one area where buying off the internet is not a good idea.

      • February 17, 2014 at 5:27 pm
      mark1101
      Participant

      Ditto on my successful use of massage for arm and hand swelling.  My therapist tells me that the lymphatic system has the capability of re-routing itself when a short cirucit caused my surgery occurs.  Whether this is true or not, it works for me.  Each session causes immediate improvement which lasts longer each time. My therapist has alos imparted to me a few simple techniques I can emply at home to prolong the positive effects of her efforst.   I now only use compression sleeve occasionally around the house or when flying.  Also when you get your compression garment, definitely go to a medical apparatus shop where they can fit you for your particualr needs.  This is one area where buying off the internet is not a good idea.

      • January 22, 2014 at 4:46 pm
      mark1101
      Participant

      Thanks, Jerry.

      I am getting cardiac and pulmonary testing in 2 days plus a brain MRI to qualify me for IL-2 given in sequence with vemurafinib in a trial to see if the sequence will improve response and duration over either drug independently.  I finished Ipi this paast fall with no results for me.  Hoping IL-2 will do the trick.

      Mark

      • January 22, 2014 at 4:46 pm
      mark1101
      Participant

      Thanks, Jerry.

      I am getting cardiac and pulmonary testing in 2 days plus a brain MRI to qualify me for IL-2 given in sequence with vemurafinib in a trial to see if the sequence will improve response and duration over either drug independently.  I finished Ipi this paast fall with no results for me.  Hoping IL-2 will do the trick.

      Mark

      • January 22, 2014 at 4:46 pm
      mark1101
      Participant

      Thanks, Jerry.

      I am getting cardiac and pulmonary testing in 2 days plus a brain MRI to qualify me for IL-2 given in sequence with vemurafinib in a trial to see if the sequence will improve response and duration over either drug independently.  I finished Ipi this paast fall with no results for me.  Hoping IL-2 will do the trick.

      Mark

      • January 18, 2014 at 7:43 pm
      mark1101
      Participant

      TY Brian…problem with mel is there are a lot of choices, but none that actually work!  We need to just stay in the fight long enough for the right option to come along some day.

      Mark

      • January 18, 2014 at 7:43 pm
      mark1101
      Participant

      TY Brian…problem with mel is there are a lot of choices, but none that actually work!  We need to just stay in the fight long enough for the right option to come along some day.

      Mark

      • January 18, 2014 at 7:43 pm
      mark1101
      Participant

      TY Brian…problem with mel is there are a lot of choices, but none that actually work!  We need to just stay in the fight long enough for the right option to come along some day.

      Mark

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