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Lisa13

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      Lisa13
      Participant

        Hi Everybody,

        I'm looking forward to my sugery on Tuesday, but scared.  I have some problems in my right arm and right lef, so I hopefully it will get better. 

        I know I feel good knowing I'm not doing WBR, but they think I should.  They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while.  I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery.  So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.

         

        Lisa

        Lisa13
        Participant

          Hi Everybody,

          I'm looking forward to my sugery on Tuesday, but scared.  I have some problems in my right arm and right lef, so I hopefully it will get better. 

          I know I feel good knowing I'm not doing WBR, but they think I should.  They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while.  I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery.  So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.

           

          Lisa

          Lisa13
          Participant

            Hi Everybody,

            I'm looking forward to my sugery on Tuesday, but scared.  I have some problems in my right arm and right lef, so I hopefully it will get better. 

            I know I feel good knowing I'm not doing WBR, but they think I should.  They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while.  I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery.  So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.

             

            Lisa

            Lisa13
            Participant

              John,

              I know alot of people who've had this problem.  I wonder what they're dozers give them.

              Lisa

              Lisa13
              Participant

                John,

                I know alot of people who've had this problem.  I wonder what they're dozers give them.

                Lisa

                Lisa13
                Participant

                  John,

                  I know alot of people who've had this problem.  I wonder what they're dozers give them.

                  Lisa

                  Lisa13
                  Participant
                    Hi Jackie,

                    The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.

                    Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.

                    I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.

                    Lisa13
                    Participant
                      Hi Jackie,

                      The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.

                      Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.

                      I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.

                      Lisa13
                      Participant
                        Hi Jackie,

                        The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.

                        Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.

                        I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.

                        Lisa13
                        Participant
                          So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.

                          I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.

                          Lisa13
                          Participant
                            So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.

                            I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.

                            Lisa13
                            Participant
                              So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.

                              I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.

                              Lisa13
                              Participant
                                I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.

                                I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.

                                Lisa13
                                Participant
                                  I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.

                                  I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.

                                  Lisa13
                                  Participant
                                    I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.

                                    I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.

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