@lisa13
Forum Replies Created
- Replies
-
-
- May 25, 2012 at 8:17 pm
Hi Everybody,
I'm looking forward to my sugery on Tuesday, but scared. I have some problems in my right arm and right lef, so I hopefully it will get better.
I know I feel good knowing I'm not doing WBR, but they think I should. They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while. I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery. So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.
Lisa
-
- May 25, 2012 at 8:17 pm
Hi Everybody,
I'm looking forward to my sugery on Tuesday, but scared. I have some problems in my right arm and right lef, so I hopefully it will get better.
I know I feel good knowing I'm not doing WBR, but they think I should. They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while. I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery. So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.
Lisa
-
- May 25, 2012 at 8:17 pm
Hi Everybody,
I'm looking forward to my sugery on Tuesday, but scared. I have some problems in my right arm and right lef, so I hopefully it will get better.
I know I feel good knowing I'm not doing WBR, but they think I should. They suggsted a wbr because obviosly, more cells could remain, but i'm that won't happen for a while. I'll be getting into Anti P1 in the states (Tampa). I'll have to wait for probably a week or 2 after the surgery. So far, my ipi just did"t work after my second try, which I;m trying Anti Pd1.
Lisa
-
- April 23, 2012 at 12:28 pm
Hi Jackie,The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.
Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.
I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.
-
- April 23, 2012 at 12:28 pm
Hi Jackie,The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.
Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.
I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.
-
- April 23, 2012 at 12:28 pm
Hi Jackie,The problem is, there is so much blood, so that they can’t see anything. This makes it difficult with possible WBR when I only have 1.
Today I go and get my MRI and my gamma tomorrow. On Friday, believe or not,we’re going to Florida. Whatever is growing is growing very slow and they suggested some of the blood may disappear. We’ll know everything in 10 days. If it was a smaller tumour, we could gamma.
I have the best neurosurgeon in Canada makes me Feel good. I also learned that whole brain s different in canada and not as strong. Would’t it be great if it was shrinking? I just had my last ipi and strong absolute lymphocyte, so we’ll see.
-
- April 20, 2012 at 8:29 pm
So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.
-
- April 20, 2012 at 8:29 pm
So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.
-
- April 20, 2012 at 8:29 pm
So far, in have no deal that ipi is losing it’s effect. My absolute lymphosyed are still 1700′ but of course I’ve always had good lymphocytes”. As my dr. s aid, we need to continue and wait as it’s too early.I found today that there is no options except whole brain. I have 1 being gamma. knifed on tuesady, but the large one I’ve had since novemer has started to grow. It’s had more blood and the blood is bigger which is not allowing to gamma knife or have surgery. It could shrink if I believe in ipi and will glet this done in 2. weeks. Apparently, it’s moving very slow. I just don’t know why this happened. Many people have had brain mets shrinking, so I still keep hoe cause it’s possible, Thank God I feel I have nothing wronging with ne.
-
- April 18, 2012 at 11:06 pm
I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.
-
- April 18, 2012 at 11:06 pm
I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.
-
- April 18, 2012 at 11:06 pm
I don’t qualify for the Zelboraf, so I’ve been on ipi I’m on my final ipi which I hope does good things for me.I have 2 tumours – 1 from from November which has grown, plus I just got another one. . I just want to figure out this tumor so we can figure out to do. They said it was. too big for gamma knife and is in a difficult area for surgery. After Friday, we’ll figure it out”.
-
