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Janet Lee

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      Janet Lee
      Participant

      What a beautiful tribute you wrote to your father-in-law. What a hard battle this melanoma beast hands us. You sound like a loving, insightful person who appreciates the gift of life that we are given, and how it can be taken from us in so many different ways. My loving thoughts and prayers are with you and your family.

      Janet Lee

      Janet Lee
      Participant

      What a beautiful tribute you wrote to your father-in-law. What a hard battle this melanoma beast hands us. You sound like a loving, insightful person who appreciates the gift of life that we are given, and how it can be taken from us in so many different ways. My loving thoughts and prayers are with you and your family.

      Janet Lee

      Janet Lee
      Participant

      What a beautiful tribute you wrote to your father-in-law. What a hard battle this melanoma beast hands us. You sound like a loving, insightful person who appreciates the gift of life that we are given, and how it can be taken from us in so many different ways. My loving thoughts and prayers are with you and your family.

      Janet Lee

      Janet Lee
      Participant

      Personally, I would try for SRS treatments before doing WBR. I watched a webinar not too long ago, led by a neuro-radiation oncologist at Yale, who talked about the advantages of SRS over WBR. I don't know if the larger mets are too big for SRS, so you would have to check that out.

      Janet Lee

      Janet Lee
      Participant

      Personally, I would try for SRS treatments before doing WBR. I watched a webinar not too long ago, led by a neuro-radiation oncologist at Yale, who talked about the advantages of SRS over WBR. I don't know if the larger mets are too big for SRS, so you would have to check that out.

      Janet Lee

      Janet Lee
      Participant

      Personally, I would try for SRS treatments before doing WBR. I watched a webinar not too long ago, led by a neuro-radiation oncologist at Yale, who talked about the advantages of SRS over WBR. I don't know if the larger mets are too big for SRS, so you would have to check that out.

      Janet Lee

      Janet Lee
      Participant

      My husband, Don, was diagnosed January 2013 with Stage IV. He had mets everywhere, including the brain. He has had 2 Cyberknife treatments, a surgical resection, and another SRS treatment for yet more. This was all between February and August of 2013. As of now, no new brain mets and he is holding steady.

      He completed Ipilumumab treatments (Yervoy) last August, and I attribute this drug for holding his brain mets steady.

      We were strongly encouraged to do "whole brain" radiation instead of the targeted stereotactic radiation treatments, but we did not go that route.

      I know the brain mets scared me more than any of his others, so I can appreciate your concern. But they are just another part of this melanoma roller coaster.

      Take care, and good luck.

      Janet Lee

      Janet Lee
      Participant

      My husband, Don, was diagnosed January 2013 with Stage IV. He had mets everywhere, including the brain. He has had 2 Cyberknife treatments, a surgical resection, and another SRS treatment for yet more. This was all between February and August of 2013. As of now, no new brain mets and he is holding steady.

      He completed Ipilumumab treatments (Yervoy) last August, and I attribute this drug for holding his brain mets steady.

      We were strongly encouraged to do "whole brain" radiation instead of the targeted stereotactic radiation treatments, but we did not go that route.

      I know the brain mets scared me more than any of his others, so I can appreciate your concern. But they are just another part of this melanoma roller coaster.

      Take care, and good luck.

      Janet Lee

      Janet Lee
      Participant

      My husband, Don, was diagnosed January 2013 with Stage IV. He had mets everywhere, including the brain. He has had 2 Cyberknife treatments, a surgical resection, and another SRS treatment for yet more. This was all between February and August of 2013. As of now, no new brain mets and he is holding steady.

      He completed Ipilumumab treatments (Yervoy) last August, and I attribute this drug for holding his brain mets steady.

      We were strongly encouraged to do "whole brain" radiation instead of the targeted stereotactic radiation treatments, but we did not go that route.

      I know the brain mets scared me more than any of his others, so I can appreciate your concern. But they are just another part of this melanoma roller coaster.

      Take care, and good luck.

      Janet Lee

      Janet Lee
      Participant

      Good luck, Karen! You're in my thoughts and prayers. Keep on believing…

      Janet

      Janet Lee
      Participant

      Good luck, Karen! You're in my thoughts and prayers. Keep on believing…

      Janet

      Janet Lee
      Participant

      Good luck, Karen! You're in my thoughts and prayers. Keep on believing…

      Janet

      Janet Lee
      Participant

      Jenny,

      Don sees Dr. Keith Flaherty at MGH.

      Janet

      Janet Lee
      Participant

      Jenny,

      Don sees Dr. Keith Flaherty at MGH.

      Janet

      Janet Lee
      Participant

      Jenny,

      Don sees Dr. Keith Flaherty at MGH.

      Janet

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