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j.m.l.
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j.m.l.

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      • April 30, 2012 at 1:15 pm
      j.m.l.
      Participant

        I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck

        • April 30, 2012 at 1:15 pm
        j.m.l.
        Participant

          I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck

          • April 30, 2012 at 1:15 pm
          j.m.l.
          Participant

            I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck

            • March 15, 2012 at 7:00 pm
            j.m.l.
            Participant

              I had 3 infusions of yervoy and had to stop because of the terrible side effects. I am sorry to say that the worse side effect was with my eyes (esp. the left one)

              Most doctors just do not know about these side effects and they do not know what to do about them. Its been many months since I stopped the yervoy and my eyes are sore and blurry. I take drops every night.The drops help the soreness but my eyes are still blurry. I wear glasses which helps. Also you might want to use a product like Sustane which just helps a bit.

              Sorry…unfortunately  the yervoy did not help with the cancer either. I recently needed radical surgery. I hope that you had better results at least.

              • March 15, 2012 at 7:00 pm
              j.m.l.
              Participant

                I had 3 infusions of yervoy and had to stop because of the terrible side effects. I am sorry to say that the worse side effect was with my eyes (esp. the left one)

                Most doctors just do not know about these side effects and they do not know what to do about them. Its been many months since I stopped the yervoy and my eyes are sore and blurry. I take drops every night.The drops help the soreness but my eyes are still blurry. I wear glasses which helps. Also you might want to use a product like Sustane which just helps a bit.

                Sorry…unfortunately  the yervoy did not help with the cancer either. I recently needed radical surgery. I hope that you had better results at least.

                • March 15, 2012 at 7:00 pm
                j.m.l.
                Participant

                  I had 3 infusions of yervoy and had to stop because of the terrible side effects. I am sorry to say that the worse side effect was with my eyes (esp. the left one)

                  Most doctors just do not know about these side effects and they do not know what to do about them. Its been many months since I stopped the yervoy and my eyes are sore and blurry. I take drops every night.The drops help the soreness but my eyes are still blurry. I wear glasses which helps. Also you might want to use a product like Sustane which just helps a bit.

                  Sorry…unfortunately  the yervoy did not help with the cancer either. I recently needed radical surgery. I hope that you had better results at least.

                  • January 9, 2012 at 7:55 am
                  j.m.l.
                  Participant

                    good luck to you

                    as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                    Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                    • January 9, 2012 at 7:55 am
                    j.m.l.
                    Participant

                      good luck to you

                      as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                      Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                      • January 9, 2012 at 7:55 am
                      j.m.l.
                      Participant

                        good luck to you

                        as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                        Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                        • January 9, 2012 at 7:54 am
                        j.m.l.
                        Participant

                          good luck to you

                          as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                          Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                          • January 9, 2012 at 7:54 am
                          j.m.l.
                          Participant

                            good luck to you

                            as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                            Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                            • January 9, 2012 at 7:54 am
                            j.m.l.
                            Participant

                              good luck to you

                              as others have said, everyone reacts differently. For me, ipi did not work at all but did leave me with every side effect in the book. Headaches, very blurry vision, weakness, lack of concentration, you name it. I had to go on high dose steroids which has its own effects.

                              Did nt work for me, but good luck to you and only you have to decide what to do. IPI does sound like a good drug to use.

                              • April 23, 2012 at 9:55 pm
                              j.m.l.
                              Participant

                                thank you so much for your reply. I am going to call the manufacturer right now. I have heard of many others who had good success with ipi. Unfort. it did not work for me. In fact the melonon grew and had to be removed by surgery. then radiation.

                                thanks again

                                • April 23, 2012 at 9:55 pm
                                j.m.l.
                                Participant

                                  thank you so much for your reply. I am going to call the manufacturer right now. I have heard of many others who had good success with ipi. Unfort. it did not work for me. In fact the melonon grew and had to be removed by surgery. then radiation.

                                  thanks again

                                  • April 23, 2012 at 9:55 pm
                                  j.m.l.
                                  Participant

                                    thank you so much for your reply. I am going to call the manufacturer right now. I have heard of many others who had good success with ipi. Unfort. it did not work for me. In fact the melonon grew and had to be removed by surgery. then radiation.

                                    thanks again

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