Forum Replies Created
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- May 20, 2016 at 12:19 am
Just wanted to pass this information along. My brother was on BRAF/MEK twice, each time he had a wonderful 16 month run. We were told by his medical team not to take Tumeric supplements as they did not know the effects on the drugs. Also on one of the Cancer websites it also advise against taking the tumeric supplements while on cancer drugs.
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- May 20, 2016 at 12:19 am
Just wanted to pass this information along. My brother was on BRAF/MEK twice, each time he had a wonderful 16 month run. We were told by his medical team not to take Tumeric supplements as they did not know the effects on the drugs. Also on one of the Cancer websites it also advise against taking the tumeric supplements while on cancer drugs.
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- May 20, 2016 at 12:19 am
Just wanted to pass this information along. My brother was on BRAF/MEK twice, each time he had a wonderful 16 month run. We were told by his medical team not to take Tumeric supplements as they did not know the effects on the drugs. Also on one of the Cancer websites it also advise against taking the tumeric supplements while on cancer drugs.
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- May 4, 2016 at 3:13 pm
YES, you can return for a second time on the BRAF /MEK. My brother was on the initial trial got a good 16 months on this until progression. Went off did some immunotherapy and then went back on with ANOTHER good 16 months. Now he is on a different treatment. The idea is hopefully with some time off you can go back on. My brother suggested this to his doctor and he said lets give it a try even though there was not a lot of data. But this is now an option.
Praying for the best for you.
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- May 4, 2016 at 3:13 pm
YES, you can return for a second time on the BRAF /MEK. My brother was on the initial trial got a good 16 months on this until progression. Went off did some immunotherapy and then went back on with ANOTHER good 16 months. Now he is on a different treatment. The idea is hopefully with some time off you can go back on. My brother suggested this to his doctor and he said lets give it a try even though there was not a lot of data. But this is now an option.
Praying for the best for you.
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- May 4, 2016 at 3:13 pm
YES, you can return for a second time on the BRAF /MEK. My brother was on the initial trial got a good 16 months on this until progression. Went off did some immunotherapy and then went back on with ANOTHER good 16 months. Now he is on a different treatment. The idea is hopefully with some time off you can go back on. My brother suggested this to his doctor and he said lets give it a try even though there was not a lot of data. But this is now an option.
Praying for the best for you.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- April 30, 2016 at 11:13 pm
My brother was on BRAF/MEK for 16 months, then progression, went off for a year, then went BACK ON for second time and got another 16 months of great results. I have read you only need to be off for a few months to build resistence again. DISCUSS this with your doctor. My brother was the one who told the doctor he wanted to go back on the pills. The doctor agreed, said lets give it a month and see and it worked.
PLEASE DISCUSS THIS AS AN OPTION with your doctor.
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
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