› Forums › General Melanoma Community › Moffit center recommendations.
- This topic has 18 replies, 4 voices, and was last updated 8 years ago by
Fsudom959.
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- April 30, 2016 at 10:01 pm
We may be traveling and need to establish an east coast relationship w a melanoma specialists. Any recommendations??
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- April 30, 2016 at 11:04 pm
What area ? Moffitt Cancer Center in Tampa, FL is wonderful. (west coast of Florida)
You can fill a form out online and receive an appointment sometimes in one week.
Can you explain a little more about your situation so I can see if I can help.
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- May 1, 2016 at 12:29 am
We live in California, this year has been hard. I have a high stress job and my husband has been alone a lot this last year – feeling sick almost every day from side effects from BRAF MEK. We see oncologist on Wednesday for newest scan results – last PET showed great shrinkage in right lunng, no chnage in lymph nodes and potential new in left lung. Not confirmed in left lunch, so the CT we just too should clarify.
We lived on the ease coast for years, and visited Anguilla so many times – a happy place for us. WE are kicking around the idea of moving for a few months to the islands, then Charles can fly to Tampa for treatment and check ups. It's selfish, but he is so tired of being sick ……he dreams of a little happiness. BUT we stil need to take care of his meds and treatment, so switching to Tampa [ his mom livesin Sarasota, and getting to FLA from Caribean is so much easier than the west coast]. So we would meet with a new oncologist and potentially switch treament facilities totally.
Thank you for any insight you have,
Rita
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- May 1, 2016 at 1:38 am
Participated in active trial for nivo (NED Stage IV arm) at Moffitt for 2 1/2 years (coming in from Chattanooga) as well as follow up from 2010 to present. The staff and nurses in the clinical research unit are beyond wonderful. They lost a great resource when Dr. Weber moved to NYU (I will be going there for my continued follow-up) but I have no hesitation in recommending Moffitt as a great place for melanoma care. C
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- May 1, 2016 at 1:38 am
Participated in active trial for nivo (NED Stage IV arm) at Moffitt for 2 1/2 years (coming in from Chattanooga) as well as follow up from 2010 to present. The staff and nurses in the clinical research unit are beyond wonderful. They lost a great resource when Dr. Weber moved to NYU (I will be going there for my continued follow-up) but I have no hesitation in recommending Moffitt as a great place for melanoma care. C
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- May 1, 2016 at 1:38 am
Participated in active trial for nivo (NED Stage IV arm) at Moffitt for 2 1/2 years (coming in from Chattanooga) as well as follow up from 2010 to present. The staff and nurses in the clinical research unit are beyond wonderful. They lost a great resource when Dr. Weber moved to NYU (I will be going there for my continued follow-up) but I have no hesitation in recommending Moffitt as a great place for melanoma care. C
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
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- May 1, 2016 at 12:03 pm
Sounds like a nice plan for your husband so he can be in a "happy place". Moffitt has built a new addtion, Mckinnely, across street from the main hospital that now houses cutaneous. So that is probably where you will go. My brother's Doctor was , Dr. Weber but since he has moved to NY. The team of doctors are great so anyone you get will be wonderfu. We currently see Dr. Nikhil Kushalani. We are extremely pleased. We also had to see Dr. Louis Harrison ( main hospital) for radiation to face. Results terrific . He is the head and neck oncologist, coming from NY, chair of the department. Been at Moffitt I think for over ayear or two. He is beyond excellent !!! My brother was on BRAF/MEk, then after 16 months had progression, did other things for a year, we went BACK ON Braf/Mek for another successful 16 months and now on ippi/nivo combo.
Hope things work out for you.
-
- May 1, 2016 at 12:29 am
We live in California, this year has been hard. I have a high stress job and my husband has been alone a lot this last year – feeling sick almost every day from side effects from BRAF MEK. We see oncologist on Wednesday for newest scan results – last PET showed great shrinkage in right lunng, no chnage in lymph nodes and potential new in left lung. Not confirmed in left lunch, so the CT we just too should clarify.
We lived on the ease coast for years, and visited Anguilla so many times – a happy place for us. WE are kicking around the idea of moving for a few months to the islands, then Charles can fly to Tampa for treatment and check ups. It's selfish, but he is so tired of being sick ……he dreams of a little happiness. BUT we stil need to take care of his meds and treatment, so switching to Tampa [ his mom livesin Sarasota, and getting to FLA from Caribean is so much easier than the west coast]. So we would meet with a new oncologist and potentially switch treament facilities totally.
Thank you for any insight you have,
Rita
-
- May 1, 2016 at 12:29 am
We live in California, this year has been hard. I have a high stress job and my husband has been alone a lot this last year – feeling sick almost every day from side effects from BRAF MEK. We see oncologist on Wednesday for newest scan results – last PET showed great shrinkage in right lunng, no chnage in lymph nodes and potential new in left lung. Not confirmed in left lunch, so the CT we just too should clarify.
We lived on the ease coast for years, and visited Anguilla so many times – a happy place for us. WE are kicking around the idea of moving for a few months to the islands, then Charles can fly to Tampa for treatment and check ups. It's selfish, but he is so tired of being sick ……he dreams of a little happiness. BUT we stil need to take care of his meds and treatment, so switching to Tampa [ his mom livesin Sarasota, and getting to FLA from Caribean is so much easier than the west coast]. So we would meet with a new oncologist and potentially switch treament facilities totally.
Thank you for any insight you have,
Rita
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